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Video from Actor Ken Baumann from the interview. Super awesome dude with Crohn’s.
Interview with Ken Baumann
I recently was able to do an Interview with Actor Ken Baumann. For those of you who do not know who he is he is an actor best known for playing Ben on the hit TV show "The Secret Life Of the American Teenager." Ken was diagnosed with Crohn's in 2012 and had to have bowel surgery at that point while in the midst of filming the TV show. I reached out to Ken while I was in the hospital last month he gladly agreed to do an interview with me. He answered questions, we videoed and he also sent a video just telling who he is! I asked him three simple questions related to his illness.
1. When were you diagnosed with Crohn's Disease? 2. How did it affect you and your acting career? 3. What advice would you give someone with IBD whose pursuing something as stressing such as an acting career or just a high stress career in general?
Here is his response:
1. I was diagnosed with Crohn's around April of 2012, so I'm a relatively fresh Crohnie.
2. Well, when I was diagnosed, I was in the midst of filming episodes of The Secret Life of the American Teenager. I'd been feeling awful—losing weight, running a high fever, limping—and so Mariana Fayman, a wonderful PA at Cedars-Sinai's gastroenterology department, commanded that I go to the ER. Turns out I had a huge abscess on my psoas muscle that had formed via a hole in my small intestine. I had no idea; Mariana might've saved my life. Because I was in such horrible shape, I had to undergo a couple surgeries. The second surgery, a small bowel resection, required a month of recovery at home. I couldn't work, but Brenda Hampton, my boss at the time, was incredibly generous and concerned about my wellbeing, and so managed to reorganize the show's production schedule to accommodate my monthlong recovery. Not many bosses are as understanding and generous as Brenda, so I lucked out. After I recovered, I went back to work and finished out the season. But the question lingered: would going public with my having Crohn's be detrimental to my career? To me, though, this was a silly question, in that I figured that the opportunity to comfort a bunch of IBD sufferers via making it less of a stigma and by saying, "Hey: I'm sick too! Don't be ashamed", would FAR outweigh the possibility that I might find less work as an actor because of my non-stable guts. I'm so glad I made the decision to speak about my experience with Crohn's, and about IBD in general.
3. Good question. You know, I like to keep my advice negative (so as to avoid being a charlatan who isn't exposed to the harm that might arise if positive advice I doled out wound up backfiring): don't let your stress become so real as to feel like a monster that can't be slain. Try to remind yourself that, no matter how stressful your career might seem, that you, like everyone else, have to die; let this reminder of your mortality shrink your current stresses by putting them in a proper, long-term perspective. Your career—your work—need not define you; who you are when you're with your friends and family and when you're interacting with the myriad strangers on the street, that is the person that you properly are. To put it really simply: don't believe that your career—as an artist, lawyer, actor, writer, doctor, or whatever—will be the boon that will pave your life into one smooth beautiful road. And good luck.
Ken was awesome! He was so nice and willing to work with me! He also sent in a video I will post next.
Blogging
Trying to move my other blog into this one so going to be reposting some older blog posts!
Me and the many misspellings of my disease that I’ve seen on the internet by people who have given me unwanted advice on how to cure myself????? IM SORR Y but WHY R u giving me curing advice when U CAnt even spell iT??????? bYe
I was laughing at this and then I was like w8 how do u spell it
But it’s ok I remembered ;)
Hahaha :P
Omg lmfao I see this so much!!!😂😂
Literally see this all the time. I'm like.. What?! Haha
Presenting research today and this is what my friends do.
My Crohn’s Story So Far
I am 23 years old and I have Crohn’s Disease. My fight with Crohn’s Disease started when I was younger, I always have had stomach problems we just did not know what was causing them. In 2009 my very first semester of college when I was 17 years old I finally received a diagnosis and could put a name to what was causing me so much pain and sickness and could start treating it appropriately. Shortly after my diagnosis I was hospitalized for the very first time for a Crohn’s Flare up due to being extremely ill and needing to get medication in my system as quickly and safely as possible. Early 2010 I started Remicade infusions because my medications were not working and I was steroid dependent for 3-4 months, so starting Remicade was my best option. Once I started that I felt so much better than I ever have and was able to get off of the steroids and start to get control of my symptoms.
So, about a year after my diagnosis I was in the hospital for the 3rd or 4th time and during that visit I had a CT scan done of my abdomen, well fortunately it caught the top part of my hip bones and they discovered that I had developed Avascular Necrosis of both of my hips and I was only 18 years old. Devastating news for me at the time because I knew inevitably my hips would fail me and I would need hip replacements we just did not know how long it would take. Unfortunately it did not take long because two years after I found out I had AVN I could barely walk without pain so we had no choice but to move forward with Bilateral Hip Replacements at the age of 20. Over a span of 6 months I had 3 hip surgeries 2 of which were the total hip replacements. That was probably the hardest year of my life to date, an emotional rollercoaster and a very tall mountain I had to climb. Today I am doing well, I have two brand new hips that work well enough for me to live a pretty normal life and I am currently managing my Crohn’s Disease.
Back tracking to 2010 after I started Remicade is around the same time that I created my Crohn’s and Colitis Support Page www.facebook.com/ItTakesGuts. When I started the page it was to meet people with the same diagnosis but its turned into something so much more. We have over 21,000 members to date! I have two people that I brought on to help me manage it who have become some of my closest IBD friends (Jaime Weinstein and Sarah Simkin). I could not run it without them! I have had opportunities that I never dreamed of having such as speaking at conferences, being on Health Advisory Boards etc. I currently am working towards a PhD in Microbiology and Immunology I will be getting a Masters of Biology Research Degree starting in the fall and then going into PhD. I really want to try and mend the gap between IBD Research and IBD patient communities and also do hands on research as well. I could not do any of this without the support from the IBD community, my family and friends. I always loved the quote, “I have IBD but it does not have me” because I do not want my illness to define me I want to have control over my illness and use it to my advantage.
Thank you all for reading this and being there for me and I hope to continue to make a difference in the IBD community as long as I possibly can.