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@alupielady
Howdy Tumblr world... Its been awhile since I have been on. I'm trying to catch up a bit with everyone. I have had a few really bad spells in a row with my lupus but... Hopfully I am on the up and up now. Two words... Autoimmune pancreatitis!!!! Ouch ouch and more ouch!
My body doesn't like all these weather changes... Ugg
My doctor: if you have these symptoms, you MUST go to the ER.
Me (having the symptoms): eh I’ve made it this far. I’ll probably be fine.
When your love sits you down in your favorite chair with a glass of wine and your laptop... and then makes you dinner and cleans the kitchen... feeling spoiled :-)Â
So... cleaning out my closet seemed like a good idea at the time. :-/Â
Spoiler alert: IT WASN’T!Â
You know you are chronically ill where every time you meet a new doctor it feels like a job interview. Showing up, dressed up with a bunch of paperwork, wondering if this one will take you seriously.
But not *too* dressed-up or put-together, because that would mean you’re obviously faking, not that you used half your day’s energy in order to make a good impression by “looking like you care” Gotta strike that balance.
So. Much. Truth
Ouch! That is all...
When my chronic health issues won’t go away
I’m like:
[Image Description: A gif from Full House wherein one of the little twin girls with blonde hair in pigtails tied with pink scrunchies says dejectedly, “But I was polite and I said please.”]
A reminder to myself and others: It’s important to let yourself rest when you need it 💙
There should be a limit to how many bad things can happen to a person at one time :-\
Well... I have Had a job for 3 months now :-) I'm on a roll!
Me: Santa, can I have a unicorn for Christmas?
Santa: Be realistic my child.
Me: ok. Can I have a pain free day?
Santa: what colour unicorn do you want?
When a new doctor first looks at my medical history...
[gif of a man turning to face the camera, eyes wide and expression vaguely horrified, saying, “Sweet Jesus!”]
doctors: don’t go off this medication suddenly!!!!
also doctors: hmm i’m going to take my damn sweet time approving your refill lol too bad if u run out?
also doctors: you need a refill? oh, come in for an appointment that’ll be way past when u’ve run out
the pharmacist who you see every month: ummm we don’t have this lol? come back in 5 days. and take this prescription with you it is tainted and you take a Bad Drug and we are Suspicious of you
also doctors: hmmm yeah i don’t think you need this anymore because it’s working so well you don’t have the symptoms anymore so go ahead and stop taking it suddenly
doctor: just take as needed pharmacist: NO you’re supposed to take it EVERY DAY also doctor: You can totally mix these medications aslo pharmacist: Your doctor is a moron
Yes!
Raise your hand if you’ve ever missed telling a doctor about an important symptom because you’re so used to it you kind of just thought that was what bodies do.
🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻