Wanting to put the End to my Endometriosis
Ugh. Periods. Vaginas. Bleeding. Pain. None of it is fun. It sucks actually, and it sucks even more for women who also have to deal with the icing on the endometrial cake- Endometriosis.
I never really went into detail about this before but I figured it might help someone else so here we go- My obgyn has told me Iāve had endo for years. It started with insanely painful periods as a teen, featuring glob like blood clots that looked like something out of a horror movie, and more blood than what pours out of the elevator in The Shining. I didnāt get it. I was a small, thin girl, why was all this shit coming out of me??? And why so painfully??? I had girlfriends at the time who would get their period and be like- āWanna go shopping?!ā Meanwhile if I got my period I had to stop whatever I was doing, take pain pills and lay down for a week with a heating pad on my vag. I didnāt get it. Why? But more importantly, what could I do?
My doctor wanted to put me on birth control to help because I also had developed several ovarian cysts and the birth control would supposedly shrink them. Unfortunately, for whatever reason, I couldnāt take the birth control with the antidepressant I was on and so I had to stick to the pain meds and heating pad routine once a month. That was if I even got my period. Sometimes I would go months without getting it then boom! Itās the battle of Normandy in my ovaries.
I tried coping the best I could and survived this long without any birth control etc. Just dealt with the pain and took time off around my cycle until I could function again. Of course there was always the random trips to the hospital for a cyst rupture here or there but that was just the norm. Just my life. I thought I had it pretty under control...until now.
About a month ago I started experiencing severe right side/back pain. I went to the hospital because I figured it was my kidneys but tests were all clear. Blood was clear, urine was clear, MRI was even clear...but I was in SOOOO much pain and it was getting worse and worse by the day. I ended up in the ER and they did an ultrasound and told me I had polycystic ovaries. Great. So now, endo, AND polycystic ovaries. RAD. It broke my heart but it made sense. I had always had weird facial hairs growing out of my face and acne, and ALWAYS cysts rupturing.
So now, at 32 years old, Iām looking for answers. The endo pain in combo with the cystic ovaries was getting to be too much, itās still too much. I went to my obgyn today and she prescribed me Orlissa. Itās a new drug thatās supposed to be the end-all, be-all for endo patients. I took my first dose of 200mgs today and hereās what happened- Within a few minutes I felt dizzy and tired, like I was almost in a fog, then within 30 minutes I felt my endo pain dissipating, and within an hour it was gone completely. I was stunned. Although I did end up getting so tired from the medicine I fell asleep, and got a pounding headache, it really beat not having to feel my insides for a few hours.
Now, this is only my first time taking it and I read that it can have some gnarly side effects such as- crazy hot flashes and weight gain, so Iāll keep you posted. Also I took it at 4pm and itās 2am now and I feel it wearing off and the pain coming back :(
BUT I wanted to share this because I never really talked about my endo and I wanted people who also have it to know they arenāt alone in this uphill battle. Itās shitty and quite frankly I think all this depression/anxiety/endo shit is all related. Iām going to do my best to keep trying to figure this out and keep you posted as I get there...
Stay strong sisters ā¤ļø
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