i seized the wrong day

hi, i'm aut! i'm 26, they/them, married, and i have juvenile myoclonic epilepsy. this is my epilepsy blog! i'm photosensitive so submissions are off and i won't open any links, sorry!

[bugileptic]

epilepsy is so weird and unpredictable :') to preface, the last time i had a seizure it was bc i missed a day and a half of my keppra. i had covid last week (why can't people respect personal space?) and accidentally grabbed two bottles of metformin instead of a bottle of metformin and a bottle of keppra, so for idk how many days i was double dosing on metformin and not taking my keppra at all, and i didn't have a single seizure of any kind during that time?? not even a myoclonic jerk or absence or anything? i'm so confused and it makes no sense, my lamictal was working HARD ig! it definitely affected my brain somewhere though because my word recall has been horrible for the past few days 😩 i know i didn't have any seizures in my sleep bc i sleep with my husband, and he didn't notice any absences or anything during the day. has anyone else had a weird experience like this where you should've had a seizure bc of missed medications but didn't? i'm grateful but so confused :0 i also no longer have insurance and i'm out of the country so i can't ask my neurologist about it :')

[palia-tive]

Inaccessibility in Palia

This survey is aimed at disabled Palia players, but abled Palia players or disabled players of all video games are welcome to participate to

Hey! I'm Bruje Butch, I play Palia and I'm disabled. I've seen it firsthand, and lots of other disabled players have too: Palia isn't accessible. It's not inclusive hen it comes to us. That sucks. I'd like for that to be fixed. Even moreso I'd like to be heard about it. Here's my attempt at that.

Please participate if you're a gamer, disabled or not, Palia player or not!

[bugileptic]

hello my fellow epileptics and other photosensitive people! there's a game called palia that recently added an event that causes the entire event area to flash whenever someone sets off a big fireworks show, and the game has no flash toggle. i've seen only a few people mention submitting feedback to the devs about it, so if you could write to them and bring more attention to it i would appreciate it so much! the game is otherwise pretty safe (although some people have reported having problems with the light that shows up while mining/chopping trees), but a flash toggle is always good to have.

this is the link to their feedback form: https://palia.info/feedback

thank you to anyone who helps out!

[harley-quinns-girlfriend]

I make funny little jokes about my medical problems then remember they are debilitating illness and they aren't so funny anymore

[foldingpaperflowers]

Full offense but I'm tired of it being so hard to find adult oriented spaced that are accessible for photosensitive people.

Like yeah, I'd love to go to a club with my friends for someone's birthday thing, but whatever. I'd love it if I could just go see an r rated movie on opening weekend but good luck finding anything about photosensitivity warnings.

I'd love to see my favourite bands preform in concert but sucks for me I guess.

A friend's sister told me the other day about the roller disco in her town and how they're making "family friendly options that don't have the crazy lights"

And yeah, I'm thrilled that there's accessibility for kids because seizures are fucking terrifying to watch. I'm glad people are so on top of pushing photosensitivity warnings for kids media. It's fantastic.

But it feels so fucking infantilizing to ONLY see accessibility in child friendly spaces. And it sucks that so often I try to explain this to people and they're just like "well don't do the thing"

[bugileptic]

the spiritfarer devs continue to refuse to add a flash toggle and claim their game is safe even after learning that their game caused at least one person to have a seizure. screenshots (alt text available):

link to their photosensitivity warning page where they claim the game is safe for photosensitive people:

Photosensitive Seizure warning A very small percentage of people may experience a seizure when exposed to certain visual images, including..

the spiritfarer devs already have a history of ableism, so this really isn’t a huge surprise

Thunder Lotus Games has issued a public apology for the use of ableist language that is present in the studio's latest game, Spiritfarer.