you can call me nix/nyx or something else entirely if you want. (and if you know me by a different name, feel free to keep calling me that.) i'm also 29, white, TME, and go by they/them or any pronouns.
some descriptors i use for myself are queer, neurodivergent, and disabled. i'm also engaged to @woofelss, but they don't use this website much. i spend too much time playing video games but i'm still not any good at them. some other more general interests include music (i take voice lessons on and off and am learning bass), alt fashion, writing, streaming (i'm a vtuber), reading, and more. due to my anhedonia, it's pretty hard for me to get into anything, so i often don't have many (or any) current and specific interests, but i'm trying to work on that.
notes: reblogs are okay if they're turned on! i’m also very bad at responding to messages for multiple reasons, but i do appreciate any messages sent to me. i’d also like to thank everyone who has sent me a message for their patience! please only follow if you’re 18+, and i’ll probably only follow back if you’re 20+.
links
about page
other blogs:
@hauntedsounds (music blog)
@spirallibrary (studyblr/journalblr / inactive)
@nixcrossing (ac blog / mostly active?)
@doggonedifficultquest (okami blog / mostly active?)
i'm also a vtuber and have a blog for that! feel free to ask for the url.
other sites:
twitter | instagram | bluesky | the storygraph | my anime list | anilist | serializd | rate your music | letterboxd | backloggd | infinite backlog | retro achievements
credits:
icon: jiuzhuario / dividers: @ianrkives / okami gif: NatalyaTheRieten73 on da
maybe i can handle critisism. maybe that's not the problem here. maybe it's just 70% of what this person says to me is telling me how to do better. i feel like maybe a lot of people... would have a problem with it?
mast cell activation syndrome (MCAS) is more complex than just "having a lot of allergies." MCAS is distinctly different from traditional allergies.
MCAS is caused by a problem with mast cells, a type of immune cell in your body that acts as an alarm for invaders, having a faulty threat detection system.
mast cells release inflammatory markers called histamines in a process called "degranulation." these histamines do not attack the source of the problem directly like other immune cells do but instead act on your own cells to create responses like swelling and the production of mucus.
in a traditional allergic reaction, mast cells will incorrectly react to a harmless particle. with traditional allergies the same particles will receive a reaction every time the mast cells interact with them. in traditional allergies it is common for the reactions to improve or worsen with repeat exposure. sometimes people grow out of a traditional allergy but this takes time.
MCAS operates differently. in MCAS, mast cells will still degranulate incorrectly in response to harmless particles. the difference is that MCAS lacks consistency. in MCAS, mast cells not only incorrectly label harmless particles as dangerous but also are unable to make up their mind about what is dangerous and what is safe. MCAS is caused by not just a faulty ability to distinguish threats but also a highly heightened sensitivity to potential threats.
in MCAS, triggers for reactions will change frequently and unpredictably. things that were safe the day before may be dangerous the next day and safe again the day after. people with MCAS often have a handful of consistent triggers that will reliably produce a response. people with MCAS will also usually struggle to identify all of the things that trigger a reaction because, by the time someone has started narrowing down possibilities, the trigger has changed.
before diagnosis, many people with MCAS will build a long and disorganized list of allergies that they have attempted to narrow down. these lists will usually have new, often highly specific, triggers being added frequently as that person attempts to identify a consistent pattern behind their reactions.
while some people who are diagnosed with many allergies actually have MCAS behind it all, many people also just have a lot of allergies unconnected from MCAS.
i see apd being talked about sometimes, mostly in passing jokes, but i almost never see people talk about how disabling it can be. like no, i can't hear 90% of the words in a conversation and barely make it by by guessing, but i'm supposed to function because i still know the language. also, i just want to hear people and be a part of the conversation.
auditory processing disorder is so exhausting. and then, when you become exhausted from trying to understand every word you hear, it's like everyone else is speaking an unfamiliar language.
I am Israa Alwan I am 23 years old, a young woman who once had big dreams and was ready to achieve them. After years of hard work and study, I finally received my degree in Early Childhood Education. It was an indescribable joy, knowing I was about to start my journey as a teacher, to help shape young minds and walk alongside them in their first steps toward knowledge.🥺🧑🏻🎓🧑🏻💻
But my dream didn’t last. The war came and turned 🇵🇸my life upside down. My home, once a safe haven, is now rubble, and I’m left with only a few belongings and broken dreams. Now, I have no home, no job, and no sense of security. I move from one place to another with my husband, carrying my unborn child, searching for shelter to protect us from the cold winter and the scorching summer.😭😭🍉
I would like to share a part of my life with you…🥺🌠
I am Esraa 🤍 I married the man I love, and he is my support and strength in this difficult world. Now I am pregnant with our little baby, and we dream of the day we hold our child in our arms, filling our lives with love and hope.
But the reality around us is very hard 💔
We are living in a worn-out tent that cannot protect us from the cold or the rain. Every day, I worry about my baby growing inside me and how I can keep him safe in these conditions.
During this sensitive time, I truly need proper care, healthy food, clean water, and vitamins to protect my baby and myself 🤰💧💊
Donation link...... 🍉
From a future teacher to a homeless woman
My story and my hope to survive
My name … Maryam Awad needs your support for Help the famil
If you can help, even a little, it would make a huge difference in our lives 🙏💗
Verified...,🇵🇸
(Vetted by gazavetters – my number on the list: 687)
sci fi is all about desperately trying to reclaim your violated bodily autonomy. it’s all about asserting that you are a being with agency, and you can choose what happens to your own person, even if that’s ripping tubes out of yourself. and also sometimes an alien is there
a week into artfight i would like to give out the following reminders: it is okay if you thought you were going to participate but ended up not having time. it is fine if you started out enthused and then lost steam. you do not owe anyone revenges. you are not 'behind' and you are not letting anybody down. it is a silly little game for fun. do not forget this.
So, my fellow narcoleptics, as well as those with idiopathic hypersomnia, at least in the US.
The specialist I go to for my narcolepsy told me yesterday during my appointment about how he is involved in three studies on orexin agonists, and mentioned that not only do the side effects seem minimal, but that people have described the difference as magical.
And he said that if things continue as planned, some should be approved by the FDA this year, and that these next few years will likely be revolutionary for treatment, in the same way Xyrem was when it was first approved.
And the little research I did on the ESS scores from Xyrem/Xywav and for one of the main orexin agonists being studied (TAK-994), the average score improvement for the lowest dose of the agonist tested was slightly higher than the average at the two-week final dose given with Xywav.
gracieabrams
baratheonpilled
snowghoul
ellievsbear
origamiaround
dailybridgerton
turnnoffyourmind
