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Show & Tell
Peter Solarz
Xuebing Du
titsay
ellievsbear
Cosimo Galluzzi
Sweet Seals For You, Always
Product Placement
oozey mess
sheepfilms
dirt enthusiast
❣ Chile in a Photography ❣
YOU ARE THE REASON
d e v o n
Andulka
Sade Olutola
Misplaced Lens Cap
Not today Justin
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seen from Ecuador
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@cfchampion
Had a great lunch at @mrmikeswinkler then off to my cousins for an afternoon of fun with family. Thanks for all the birthday wishes 😊 #31 (at MR MIKES Winkler) https://www.instagram.com/p/BviHQ6uFVc9/?utm_source=ig_tumblr_share&igshid=f22fmvga13n6
Orkambi: 6 Week Update
Today was CF clinic. I was very excited because I had a lot of good news for my cf team, hoping with all these weekly blood tests I’ve been doing that they would have good news for me too.
On our way to WPG
At first we had cops and firemen blocking our way to the underground parking and entrance, so it was a cold long walk inside. I still don’t know what was going on, I’ve been going to that…
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Orkambi Day 1
I’ve been nervous about today since I knew it was happening. January 28, 2019 my life would change forever.
I did not make the decision to go on Orkambi lightly. I’ve been following the trials, I’ve been paying attention to my friends in the CF community who are on it, looking at the side effects, seeing results. I know I needed to at least give it a try.
With my lung function in the 90’s this…
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First solo win #fortnite #ps4 https://www.instagram.com/p/BqOQYCTHSkc/?utm_source=ig_tumblr_share&igshid=ooxe4cx0ed6s
Asking about weed and Orkambi
Family watched our boys while Abe and I headed to CF clinic on September 10th. I had many thing I wanted to remember to ask the doctor.
We started with PFTs and my lung function went up! The last time I had real PFTs was before I got pregnant with Liam in April 2016, they were at 86%. This time I was at 95%!
My results from my yearly blood test and bone density was great too. My vitamin D was up…
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Had Abe’s work picnic today which Colby kept on referring to as “Abe’s sandwich”
Had a fantastic Sunday #siblingday
Colby and I had a picnic the other day while Liam napped. #spring #citylife
If I believed in soul mates I know you’d be mine, Happy Anniversary @meatball.90 #8years
My mom with my boys ❤️
How I play #fortnite #battleroyale #pvp
People are posting their #postpartum pics and tagging #katemiddleton birth can be beautiful, relaxing and in the comfort of your own home. #homebirth #cysticfibrosis #momlife
So excited! @realfarmmilk #goatsmilk #cysticfibrosis
How mom gets to play @fortnite #savetheworld #pve
Have I mentioned lately how much I love #portraitmode? #iphonex #9monthsold #thatsatooth
Very eventful, wonderful 30th birthday. Lunch at #mrmikes with Abe. my mom made clay for a present (boys hand prints) Colby “helped”. Afternoon with family and yummy treats. Evening with Sara watching #13goingon30 #30flirtyandthriving
#30thbirthday weekend. #newhaircut by @purplesarabear #ribs for dinner thanks to @meatball.90 #bubblebath #relaxation #turning30 #neverthoughtidgetthisfar