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How many incisions did u have? And how long did it take after surgery for ur wounds to heal?
I had 1 in my belly button, 1 left side and 1 right side.
My stitches fell out after 3 and a half weeks. They got super tight, but they fell out quite easily.
Pt.2 the wait for surgery
So the consultant who signed the consent papers was by far the nicest and most understanding iâd seen so far. She seemed genuinely concerned about the amount i was bleeding, and how much pain i was in every day. The consent papers were signed on the 9th November 2017. In the mean time my GP was concerned i wasnât informed fully of endometriosis, what it was and how it effected you, so she referred me to a different hospital, which has an endometriosis specialist at. I was nervous but really looking forward to my appointment, because although i hadnât been diagnosed, i was almost certain i had it. At the end of the day, i know my body best. The day of the appointment came, and when i arrived i learned my appointment wasnât with the endo specialist, it was in fact with a normal gynaecologist. I knew then the appointment was going to be pointless, but i made the trip so i may as well stay for it. I sat in the waiting room anxious and nervous until my name was called. When it was finally called, i was asked to go into a room with a student nurse, who asked me a ton of questions about how i felt, what type of pain i had, what were my symptoms and my general health. She then went into the consultants room, brought him up to speed, and i was called in with him. Before i had even entered the room, he clearly already had his mind made up about me. He started with explaining how i was wasting his time if i already had a surgery booked, how this has made a massive dent on the NHS because it all costs money. He did an internal examination and stated, everything looked normal, and i would be wasting more money by getting surgery cos he knew I didnât have endometriosis. I went away from that appointment feeling even more depressed than before, completely defeated, and i started to wonder if i was imaging all the symptoms i was having. I even contemplated cancelling my surgery, because i thought i was wasting money the NHS clearly didnât have. My boyfriend persuaded me not too, and told me to ignore that appointment. And iâm so glad i took his advice. Soon after that i got my letter in the post for a pre op assessment, and my surgery date for the 3rd April 2018. The pre op was all normal, asked about my general health, if i was allergic to anything. She explained the rundown of the day, how i would arrive and be taken to a ward. What i needed to bring, slippers, dressing gown, underwear and toiletries incase i needed an overnight stay. She also explained the risks because i am overweight, what would happen after when i got into recovery and then eventually back onto the ward. My mind was finally at ease about it all, i knew surgery was the right thing to do. No matter what the outcome was, if endometriosis was ruled out, then they would have to look into what else could be causing me to have all of these symptoms, and be in agonising pain every day. Surgery day! I was up at 6:00am to have some toast, i wasnât allowed any food or drinks after 7:00am, i was a bit anxious on the morning, i didnât really feel like eating or drinking. I had one bite of my toast and left the rest. I got a bath and got my clothes on, grabbed my bag and headed to the car. When i got there, I was told my surgery wouldnât be till 3:00 in the afternoon, and all i wanted was my boyfriend to be able to stay with me, and they said he wasnât allowed. Which really didnât help my anxiety. A lady over in the next bed to me was allowed her boyfriend to sit with her all day, i really didnât understand why she was allowed and i wasnât. So i asked the nurse, and she said i had been wrongly informed, and he could have been here. So i rang him to come back and keep me company. I got my gown on in the mean time, and had my surgeon/gynaecologist come and see me. She explained the procedure again, told me she was putting the Mirena Coil in during the surgery, which i really did not want. I tried to tell her no, but she was adamant i was getting it. I felt so pressured i ended up agreeing, then asking the nurse once sheâd left to tell her i wasnât getting it in. I decided against it purely because the injection had screwed my body up so much, i didnât want anything else to potentially stop me from conceiving naturally. I sat there all day with my boyfriend, he was an absolute god send, until finally my name was called. I grabbed my pillow, and walked down to theatre. The room was weird, full of medical equipment and a massive bed. I was asked to lie on the bed, get comfortable as possible, and he began sticking stickers all over my chest, feet, legs and back. Then began to put the drip in my hand, surprisingly didnât hurt one bit. Once it was in, he raised the bed up, and they explained about the mask they were about to put over my face. My heart was racing so bad, they were really calming and reassuring. They told me to count back from 10, they placed the mask over my face, i remember 10, 9.... then i woke up in recovery.
Waking up for me was horrific, the breathing tube was being pulled out of my throat, i was gagging and choking from it. I am already asthmatic so i was gasping for air. The lady in recovery was so nice, i was crying because i couldnât breathe, she put the oxygen mask on me and helped me to stop coughing and calm down. I kept trying to take it off asking for my boyfriend, because i was confused and upset. I just wanted him next to me. My oxygen levels kept dropping, so i took a while in recovery. After about 45 minutes in recovery i was wheeled back to the ward. Again continuously asking for my boyfriend, i just needed a familiar face, especially his. I was panicked and hated how much i couldnât breathe. I was given more morphine, and really i couldnât feel a thing anywhere. The massaging leg wraps i had on were a dream, wish i could have taken them home with me haha. They finally let my boyfriend come see me, it instantly lifted my mood. They explained that if my oxygen levels didnât improve over the next 30/45 minutes i would have to be kept in over night. I was constantly drifting in and out of consciousness, and they decided i would need an overnight stay due to my lack of awareness, and my dropped oxygen levels. I was moved to a ward to try and get more comfortable. I was left by the nurses in my gown, with nothing else on my bottom half. I was bleeding very heavy, and after pressing and pressing my button, the nurses didnât come and help me up. So my boyfriend bless him, had to help me. He had to help but a pad and underwear on me, since i couldnât bend down, and i certainly wasnât ready to stand on my own. He helped me dress and clean up a little, and then walked me to the toilet so i could try clean the bucket loads of blood and iodine off me from the surgery. The pain in my shoulders and lower back was unbearable, i spent the rest of the night crying in pain, i needed assistance all through the night just to get up and go to the toilet, i really struggled to walk due to being light headed, and my oxygen levels still werenât great. I was discharged the next day at around lunch time. Although the pain in my shoulder was horrific, i found the more i moved around and walked a little bit the better i felt. I went to my boyfriends Nanâs house who kindly let me use her shower, since i donât have a shower at home. He helped me change my dressings once i was done in the shower. Then his mam gave us her flat to live in for the week so he could care for me. I really donât know what i would have done without him, both physically and mentally. He really was and is my rock.Â
how it all started...
I started my period around age 13, and from my very first period, it lasted around 9 days and it was heavy, i remember having to change every 2/3 hours during school, and i also even leaked through during PE which was extremely embarrassing. My periods used to make me nauseous, and i felt faint and lightheaded, back then i didnât understand any of it, I just thought i was being a drama queen, because it was all new to me. And my Mam always used to say to me âCome on, every girl in the entire world has a period, you canât have days off school every monthâ So i dismissed everything I felt, it was normal... apparently. By age 16, I remember one period in particular, i was in AGONY. Sweating up, so dizzy i could barely walk, and this went on for 3 or so days at the very start of my period. I was so heavy i was bleeding through a pad and tampon every hour and a half. At the time i did have a boyfriend, young i know... but I was sexually active. And my Mam scared me half to death saying it seemed like i was having an ectopic pregnancy, and started saying how id need surgery, id be super ill in hospital. Spent days sobbing in excruciating pain thinking i was pregnant and going to die, but the pain started to fade out, and the bleeding got lighter, i eventually came off my period. So then i realised, well it would have been impossible to be an ectopic pregnancy so what could it be. I never ever thought anything of it. From then on i got the Depo Injection, and my periods disappeared, it was GREAT.Â
Fast forward to age 18, still on the depo injection. I gained a whole lot of weight on it, around 8 stone to be precise, and the doctors said it wasnât possible for the injection to make me gain that much weight. But i wasnât eating any different, and i was doing the same amount of exercise, if not more... I played basketball at university level, i trained twice a day, some times 3, yet i had gone from 14 stone to 22. I decided to come off the injection due to the weight gain, it also hadnât helped very much with my mental health. I had suffered low mood/depression since age 14/15 and it had progressively got worse this time. I had suicidal thoughts, i self harmed, i just genuinely did not see a purpose for me, there was no reason for me to be alive anymore. Age 19, i had been off the injection for around a year now, and lucky me!! Still no period. I began wondering, when would my periods come back. About 2 weeks after it had hit the year mark, i began bleeding, medium flow. I was changing around every 4 hours, it was manageable, i had cramps but nothing i couldnât manage. I would take paracetamol and it would take the pains away. Fast forward 9 months, 2 weeks... still bleeding, over the months it got heavier and heavier. There wasnât one single day i hadnât bled. I definitely needed shares in Tampax by this point! Over this time i had been to A&E on 3 occasions with abnormally heavy bleeding, but all they ever did was check my blood count, i wasnât suffering from Anemia so they told me to wait it out, see if the bleeding stopped on its own. It was called âBreakthrough Bleedingâ and this was due to me missing all those periods on the injection. The lining of my womb had started shedding and didnât know how to stop itself. The bleeding got heavier again, i went to my local walk in centre, and the nurse timed 7 minutes, for me to bleed through a super tampon and a night pad... 7 minutes!! I was also passing clots the size of my hand... Something was up! I got sent straight to A&E again, expecting to be told to go home. I got admitted that night, i spent 4 nights/5 days in hospital. They put it down to a burst cyst, I found out that day i had PCOS, i was told the severity of the cysts on both ovaries would make it very hard for me to conceive children without medical assistance, i was heart broken. I was sent home with tablets called Tranexemic Acid to stop the bleeding, and Norethisterone which stopped and started your periods as and when you took them. After 5 days on those pills, the bleeding stopped. However i was so badly Anaemic, I had no energy at all to even be excited by this. I was on Norethisterone for 3 weeks, then a break for my period. In this time i had searched up something called Endometriosis. EVERY SINGLE SYMPTOM i had matched this. I thought this is great, all i have to do is bring this up next time i see my GP... If only it was that easy. I came off the Norethisterone and found the pain getting worse and worse, the bleeding heavier and heavier. All over again. I couldnât cope with this, back to A&E. I was sent home instantly... told to come back if the pain got any worse. By 27 hours later, i was barely conscious, the pain had drained me. I went back to A&E and i was admitted again, to get the pain under control... Morphine was my life saver that night. 2 gynaecologist doctors came to see me on that morning, they said there was no reason for me to be in this much pain, maybe i just have a low pain threshold... i was gobsmacked... i brought up my worries about Endometriosis due to my Mams recent hysterectomy, sheâd unknowingly had Endo the whole time without realising or having any symptoms. The doctor burst into fits of laughter, nudging the other doctor and she continued to laugh with him. âYouâre far too young to have Endometriosis, thats a ridiculous suggestion, you have been using the internet too much. People who are 30+ get endometriosisâ then the lady doctor chips in âWhy donât you get pregnant and have a baby, then you wont have periods and you wont have this mystery pain youâre gettingâ I asked them to leave and i burst into tears. Not only because i was so embarrassed for myself, but i was on a ward with 7 other people, who all heard the conversation. Humiliated with an audience... From then i had 8 more appointments with Gynae, 4 more hospital admissions. A whole lot of crying and begging for a diagnostic laparoscopy. Until one caring and empathetic consultant finally gave in and signed consent for me to have it. I was put on a waiting list for surgery hopefully within 6 months,Â
Suspected melanoma??
Been sent for a referral for suspected melanoma? What should I expect for the appointment. Any help gratefully received đ
Itâs shocking how many women with severe periods and most probably a related medical condition are just left to suffer and get on with it.
Hereâs to us!
Fatigue is such a struggle with chronic illness!
Myth- Chronic illnesses can be cured with diet and exercise.
Hey there friends since itâs Endometriosis Awareness Month (and also Endo Awareness Week Iâm pretty sure) hereâs some important info about it:
Endometriosis affects one (1) in ten (10) people assigned female at birth
Itâs when the lining of the uterus grows outside in other areas of the body
Its common symptoms are pelvic pain, abdominal pain, lower back pain, heavy/abnormal menstrual bleeding, painful intercourse, nausea, extreme fatigue, digestive problems, and sometimes fertility problems
You donât need all those symptoms to have endometriosis
Anyone at any age, race, and identity can be affected as long as theyâve started their period
It doesnât just affect you during your cycle (Iâve been wiped out from this for months now so trust me, I know.)
Many doctors, GPâs, and even gynaecologists donât know much about it
Halsey, Whoopi Goldberg, Chaz Bono, Dolly Parton, Daisy Ridley, Marilyn Monroe, Cyndi Lauper, Yuki Murofushi, and even Hillary Clinton all have endo
Surgery isnât the only solution, and birth control, acupuncture and natural medicines usually end up working better anyway
There currently isnât a cure for it
And remember: heavy and painful periods arenât normal, theyâve just been normalised. You arenât making it up or overrreacting, and you donât deserve to suffer like this.
Love n spoons đ
using this as a space to vent
so im brand new to tumblr, but i wanted a place i could write about my journey through the diagnosis of endometriosis and pcos. i hope one day to raise some awareness about these chronic illnesses because they just arenât being taken seriously, and they legitimately are a living hell (:Â