Hi, my name is Milo and my bladder sucks. :)

Milo. They/them. Queer. Non-binary. Trans. Chronically ill. Neurodivergent. Married. Owner of a crappy bladder.

[hunters-angel]

i could've lived in a functioning body. instead i'm living in the flesh prison. meat jail. tissue penitentiary.

[thoughts-in-me]

[transjudas]

When that stuff happens how do you keep up momentum in a band? (x, x)

[thecatfortress]

Pain Everpresent, Pain Everlasting

[ylfva-remade]

having chronic pain while being an artist is just like.

i haven’t finished a drawing in months. i can’t sit in one position long enough to get anything substantial done. i have so many ideas and no way to get them out. seeing other people’s art fills me with inspiration and jealousy. i thought i would be able to do art for the rest of my life. its the one constant since i was a kid. and now it hurts.

[liberaljane]

Not all illnesses and disabilities are visible. 💖

Digital illustration of a green chameleon sitting on a branch. There’s text that reads, ‘not all pain is visible.’

[fickes]

Top surgery journal #1

[helenaieroway]

Welcome to the Black Parade

track no. 05

Week 3: The Black Parade // My Chemical Romance

[eddiescouch]

I hate how when I'm hurting, I viciously want to be alone so I can be terrible and disgusting on my own, but I also want to be comforted. I can't ever just pick one.

[chronicallymilo]

Big mood.

[vicsmysteriouslife]

I hate when I have periods of feeling freedom from my pain only for it to hit me even harder when it comes back.

[chronicallymilo]

Me so badly rn 😓

[kurushimi-hime-hoshi]

One of the worst parts of living with chronic pain for years is that after a while it can feel like no one cares that you're in pain.

Sometimes when my pain is at it's highest levels I find myself screaming out into the universe "Some one care about me! Can't anyone see I'm suffering? Doesn't anyone care at all that I'm in so much pain I can hardly bare existence?"

But there is often no one there. Maintaining friendships is hard with chronic illness and most people get fed up with you or your illness or just plain drift apart when its difficult to keep contact.

Even family members can get sick of hearing about your sickness, or too busy living their own lives or dealing with their own issues to give support.

Sometimes people just plain don't know how to help you even if they wanted to. They then have the luxury of putting your pain on the back shelf of their mind while you do not.

Everyone around you can become numb to your pain but you.

But when I'm at an 8 or higher and entering a pain crisis, I just wish someone could care: sit with me, watch a movie, treat me to one of favorite things, show me cute animal pictures, and commiserate.

Instead I mostly suffer in silence because I would rather that than to tell someone and get the same old non-reaction.

No one ever bothers to ask how I'm feeling anyway so why should I go to them and say, "I'm in pain! Care about me!"

[chronicillnesslife]

I hate being asked by abled people how I can live and deal with my pain and conditions, like I’m some sort of inspiration. I don’t have a fucking choice, this is my life. That’s how I live with it, because I don’t have the option to live any other way.

[icrants]

Doctor: List all your medications and dosages.

Me: *weeps*

[odos-amorphous-dick]

Shout out to my disabled transmascs who can't bind even if you want to. Who want to, maybe even used to, but who's bodies won't let them. For those where it will cause pain, it will cause breathing issues, it will trigger sensory issues, it will be unbearable. Toughest dudes out there.

[accessories-not-included]

Behind every strong, Chronically Ill, or Disabled person is a story that gave them no choice.

[spooniestrongart]

[disabilityhealth]

Ngl if my bladder keeps this up I’m gonna have to take it out back and

… ask it very nicely to please give me a break