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I met someone lovely at the airport recently and she left a lasting impression. She also reminded me, regardless of circumstance, love doesn't end here. Chronicallywhole.com

#Grievingwell New on the blog this week. Maybe you're grieving the loss of a loved one or one of the million losses along the way... How do you know when you've done it well?

#grievingwell

Are you a mom with chronic illness? Do you ache to be a mom? Do you support moms? #celebratingyou

#celebratingyou

Washed my hair for the first time in four days. My dear friend put clean sheets on my bed. Folks, today is a win. #chronicillness #markingthewins

#markingthewins #chronicillness

I want to tell you the happy ending answer. I want to tell you I'm currently at Mother's Day breakfast at preschool and not in my bed. I want to tell you I had a wonderful restful night, but that is not the answer. The answer is, my daughter and I, we're both home. And last night she wrote out words of love for me, presented me with flowers she'd picked, and sang me a song. Today, when her Daddy asked her about me going or her staying home (she's feeling puny, too) She said she'd rather let mommy rest and give her her gifts on another day. Truthfully? Mommy really really needs the rest. And I feel incredibly loved. Far beyond what I could ever put into words. #chronicillness #loved #parentingwithachronicillness

#chronicillness #loved #parentingwithachronicillness

Called my doctor's office today. Explained my symptoms, all the things I'd already tried and how I'd reached "the wall." I also explained I hadn't yet brushed my teeth or hair and wasn't wearing a bra. Would they squeeze me in today. "Put your shoes on and come on." They ushered me into the back room turned the lights out and let me rest in the darkness until it was my turn. Then I got my booty shots and rescue meds. And I told them it was Mother's Day breakfast tomorrow at preschool. I would have tried to hold out longer, but... And they whispered words of life my soul needed to hear about who I am whether I make it there tomorrow or not. As I left, I turned and said, "Thank you, I love you guys." Because I do. #chronicillness #careteam #parentingwithachronicillness

#chronicillness #careteam #parentingwithachronicillness

#working #chronicillness Not because I am, but have. What tips would you add?

#working #chronicillness

Tonight I put my angry body in a detox bath. ( even though there was no hot water) I looked over at this bin and I stared for a while. I thought about all the things it might represent to other people~ -my lack of faith -my being flawed -my having a lot of "problems" or "issues" - my over reliance on medical intervention - my failure to take care of my body - 456773344 other things Do you know what it represents to me? My fight. My fight to be present. My fight to live as much of this life as possible. My fight to have skin in the game. My fight to be there for my kids. My fight to keep going even though it feels lonely and impossible and unfathomably long. My fight to demonstrate tenacity and perseverance to my kids. My fight to overcome when it feels like I'm being overcome. It represents my fight every.single.day. to give as much of me to anywhere everywhere to anyone in need as I can. It represents that I will never never never stop fighting. What represents your fight? #myfight

#myfight

#strength #chronicillness #stronger

Because you are. So much stronger than you think. New on the blog today. #strong #chronicillness Chronicallywhole.com

#chronicillness #strong

Went live with my hubby today talking about fighting for marriage when chronic illness is present. (Or circumstances are less than ideal.) You can check it out at chronicallywhole.com #marriage #chronicillness #fightingforconnection

#chronicillness #fightingforconnection #marriage

#overachieving #chronicillness

#chronicillness #overachieving

Me: You can do this, just keep at it. Five minutes later: Don't cry. I can't do this. Two minutes later: This is for your kid. You can do anything for your kid. Get back at it. God have mercy on the soul of the person who chastises me about the wastefulness of precut fruit anytime in the next six months. #chronicillness #chronicpain #angryjoints

#chronicillness #chronicpain #angryjoints

#spoonielife #chronicillness

Days and days of angry joints and #selfcare over here. Missed IVIG because of a schedule/insurance issue. So thankful for the time to just breathe. Hope your day is filled with rest, comfort and light.

#selfcare

#findingthelight #chronicillness

#chronicillness #findingthelight

Ever feel like someone turned the lights out and left you in the darkness? #chronicillness #findingthelight

#chronicillness #findingthelight

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