Chronicling My Chronic

I am in my mid-twenties, and I fight my chronic illnesses every day. I am also a writer. Recently, I have been trying to blend the two into something useful.

[myalgicencephalomyelitiscfstom]

[chroniclingmychronic]

Looking for suggestions...

Grain-free and dairy-free foods (snacks or meals).

I was already gluten-free and lactose-free. I adapted, but now my doctor wants me to eliminate all grains and all dairy. Everything tastes like cardboard, and I’m feeling pretty frustrated. So, hit me with your favorite foods to eat (brands or types of food) that preferably don’t require a ton of effort to prepare. These aren’t my only Illnesses, and I don’t have a lot of spoons left for cooking.

[chronic-illness-resources]

[chroniclingmychronic]

#dysautonomia awareness month

[1spoonatatime]

No one ever teaches you how to mourn your health. You just realize one day that it’s gone, and you are not the same as you were before. Most days, it’s all right, but then something happens: you can’t go to dinner with your family because you’re nauseous, you can’t go hiking because fatigue and pain. You can’t you can’t you can’t, and then it hits you: you are irreversibly changed.

[fight-until-the-wars-done]

I love how people act as if my illness is an inconvenience to them. Like, imagine how I feel buddy.

[chroniclingmychronic]

Tfw you had to go through an awful medical test only to find out that the results were normal. So they still don't know what's wrong with you or how to fix it, and you had to go through all of that for nothing. Cool.

[bipolarblueberries]

Me: I hope this new and debilitating symptom isn’t permanent, idk it’ll probs just go away after a bit

Narrator: It was permanent

[fishermenandhunters]

I swear my life is just a list of things to bring up at the doctors.

[energysavingselfcare]

Here’s a shoutout to all the chronically ill and/or disabled folks who are doing everything they’re told and still getting worse. It’s incredibly demoralising to take your meds, do your physical therapy, wear your splints, do your pacing, stick to your diet, whatever, and still get worse … I want you to know it’s NOT YOUR FAULT when your body doesn’t work the way the medical folk wish it did. It’s so hard when this happens. I see you. Solidarity.

[youngchronicpain]

quick question: how the fuck do I get through the rest of my life like this

[phloxy-foxxy-deactivated2022062]

Shoutout to all the people who grew up dreaming big only to have chronic illness take your dreams away

[spooniestrong]

[winterhalters]

3 hours of sleep: I’m exhausted

8 hours of sleep: I’m exhausted

16 hours of sleep: I’m exhausted

[chroniclingmychronic]

Disability and Chronic Illness Representation and Inclusivity! Way to go Aerie/American Eagle! This should be the norm, but I never thought I would see a major company like American Eagle do it.

[hazelbeewitched]

doctor: so have you noticed any side effects?

me: you’re assuming that i DONT spend every waking minute actively ignoring everything to do with my fucky body

[heyatleastitsnotcancer]

Gets anxious about the time it takes to get my disabled body off the couch and walk to the door to get my take out.

[chroniclingmychronic]

YES!!!

[kipplekipple]

When we talk about being fat-positive and we say, “weight is not an indication of health,” I will reblog it. But I want us to also say, “health is not an indication of value.”

I could be at any weight and I will never be healthy, because I am chronically ill. Someone might be chronically ill and fat, or they might be chronically ill and not fat, and it really doesn’t matter.

When you make it about health, you’re saying health is the pinnacle of human achievement, and you’re shitting on those of us for whom health will always be a pipe dream.

[rollerskatinglizard]

Oh Oh