artificial sounds from my heart @coolasakuhncumber - Tumblr Blog

Once again, the workplace is making it a fight to access and be approved for leave entitlements.

#work #working hard or hardly working #need to leave this place #ABSURD that i work in the disability space and the lack of consistency in advice and apolication of workplace policies #big smad

Day 48 of 8 weeks face down for 22 hours/day. Round 2

Saw surgeon and needed some more laser done today. Face down for another 2 weeks or as long as the gas bubble lasts. Sigh.

But we're getting closer to the end!

#retinal detachment #18.5 weeks in since the start #that's 129 days since symotoms started #WILD

Bestie started a fancy new job last week that has a lot of assumed knowledge about government/politics which us not exactly her forte so each day features fun questions and the chance for me to yap.

#bestie #tash #work #working hard or hardly working #honestly am so proud of and pleased for her landing this job #we knew it would be a bit of a steep learning curve and I love that I'm the trusted person #:')

Something I rather enjoyed about the Commonwealth Games was the way the para events were integrated into the 'mainstream' events and programming.

I think this was the first time the combined approach was taken and I can recognise jt was probably a cost saving measure with the change in host from Melbourne, Australia to Glasgow, Scotland, and there's value in having distinct para competitions but I would really like more of this in the future.

#commonwealth games #Glasgow 2026 #integrate the disability awareness!#normalise it!!#a bunch of evenrs were cur from the program and thats a shame but yeah it was probs as good as it could be in a year of sports fatigue with #winter olympics and football world cup and all the regular sportsball on tv and it's only the start of August!#also australia absolutely KILLED IT and dominated medals yay

Describing surrealists as people who viewed the world 'at a right angle to reality' is a lovely turn of phrase.

#phryne fisher #kerry greenwood #dead mans chest #surrealism

Dinner tonight with Mrs Mason might prove to be trying and Phryne liked a little alcoholic applause for her social efforts.

- Dead Man's Chest: A Phryne Fisher Mystery, Kerry Greenwood

Quite the commentary on the benefits of a good cocktail

#phryne fisher #dead mans chest #kerry greenwood #cocktail #introvert coded #though phryne is not that!#maybe more 'doesnt suffer fools gladly' coded #which is probably why it resonated with me

I enjoy that she wants to be close, even if we're just hanging out not doing much.

#dog #retinal detachment #fifi #warm winter sun is the best

On life passing by

Feels are being felt about life being at a standstill for me while it's still happening for everyone around me.

In the 16.5 weeks I've been face down, there have been two engagements, a birth and two pregnancy announcements, cancer and chronic illness diagnoses, and today there was news of the passing of someone I had great affection for.

Life hey

#delighted for friends but man is there grief in this too #ez and gabriel engaged and james/grace too earlier this year #claire/geoff baby and pheebs and jake pregnancies #derrick cancer phil parkinsons #and Bev has passed away #Bev who was Anna's second mum #Bev who welcomed us into her home for Christmas 2020 (2021?) when Covid meant I couldn't see my family #personal #grief #retinal detachment #nephew heart thing

Day 34 of 8 weeks face down for 22 hours/day. Round 2

Saw surgeon today, everything looking stable (big yay), gas bubble dissolving v slowly so continuing the face-down life for at least another 2 weeks.

#retinal detachment

111 days since symptoms started

#retinal detachment #obscene

Day 24 of 8 weeks face down for 22 hours/day. Round 2

Today is 15 weeks since symptoms started (that's 105 days, INSANE). Everything is feeling like Groundhog Day.

#retinal detachment #groundhog day

You reach a hand out to me then I’m gonna hold it

- Big Scary, The Opposite of Us

#big scary #the opposite of us #jay #he came by tonight and it was the first time we've seen each other in 16 weeks #there were hugs and some hand holds and knee touches and just comfy y'know #we can't not touch a little #the fingers may not interlock anymore but they're still holding a bit

We talk about Stargirl and how I am coping. I tell him I expected I would have good days and bad days, but I didn't expect to have good hours and bad hours within the same morning.

The emotional swings are exhausting.

Steve shares stories of his own grief when his mother died, and reassures me that the old cliche that time heals is indeed true, but the wait can be agonising.

- Indira Naidoo, The Space Between the Stars

#Indira Naidoo #the soace between the Stars

You can't grieve unless you have loved, and loving is a good thing.

- Indira Naidoo, The Space between the Stars

For Indira this was about love for her sister. It's a bit different for me but still resonates.

I am grieving my life having changed. I liked being able to see. I was trying to love my life again in 2026.

This is about my failing vision but it is also about Jay. I'm still grieving that loss of what we could have been but never got the chance. I know there was love there and that's a good thing.

#Indira Naidoo #the space between the stars #personal #grief #love #retinal detachment #jay

Day 18 of 8 weeks face down for 22 hours/day. Round 2

A friend shared this week that she and her partner are getting married on 21 November so please save the date, which was exciting and happy news to hear!

This is the second friend to get engaged while I've been recovering and I'm so happy for my friends but very selfishly it also kinda sucks seeing other peoples' lives progressing when I've literally been lying down for 22 hours/day for 14 weeks now. And I've lost so much vision I'm grieving and don't know what the future is going to be like.

There's so much i want to do with my life that doesn't involve perpetually being in recovery and it's a bit tough on ye olde brain.

#retinal detachment #Ez engaged after 9 months WILD #Gabriel engaged after 17 months #Nov 21st being same day as Two Door Cinema Club gig in Syd and I've had tix for ages but wedding probs more important!?!???#and Jay us going to Adelaide for a week to hang out with GF while she supports her dad recovering from surgery and he has wanted to go for #while according to him and I just have this feeling he might be wanting to ask her parents permission to marry her #and my heart is not ready for that #jay #i thought i was over it but i am not #and im probably annoyed army boy has been distant while dealing with his stuff #also i need to remember the love jay offers does not come with honesty and transparency so it's not the love i want

The whole Cabo Verde underdog story in the 2026 World Cup has me in a chokehold. This team has made me feel the absolute romance of the game.

#football #football world cup 2026 #cape verde #i am not typically into sportsball but this has conpelled me greatly #cabo verde

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artificial sounds from my heart