Does anyone else who have had a long spinal fusion find running painful? Iâm trying to find ways around it

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@courageousandcurvy
Does anyone else who have had a long spinal fusion find running painful? Iâm trying to find ways around it
Spinal Fusion and Sport
If youâve had a spinal fusion, reblog this with when your fusion was and what sport(s) you do
My art from long ago, being angsty after being diagnosed with mild scoliosis. (7-25-18)
love this
*wake up*
Me: oh what a beautiful morning it is.
Scoliosis: let's make things interesting
*back pain*
Me: oh great đ
post surgery scar progression
I was looking back through all the pictures my mum took from hospital when I had my spinal surgery (Nov 2015, I was 14) and found some pictures of my scar Iâd never seen before.
Before my surgery I was curious as to what my scar would look like and honestly excited for that aspect. The light in the dark perhaps.
So Iâve decided to compile this post showing off my scar over the last three years toâŚ
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Just Scoliosis Things:
*sits with body contorted into a terrible position even though I know when I stand up my back will hurt just because it makes me feel cozy when I lay my head just like so*
Five Feet Apart
I have cystic fibrosis, and I have a lot of feelings about the trailer. Most of my feelings are, admittedly, negative. I hope the Cole Sprouse fandom, etc will try to see these points. But, Iâll give the positives first. At the end, Iâll stress why this movie genuinely scares me.
Positives:
I heard Cole and his co-star worked with Claire Wineland. This is incredible. Claire was a beautiful, beaming light for the CF community. While I value her contributions though, I hope they looked for CF resources beyond her.
The medications shown are EXTREMELY accurate. Quite impressed actually (I was watching this while doing my own meds)!
Some representation! Just perhaps not the way I would want it⌠Iâm unsure at this time.
CFers as lovers and people with feelings and wants!
Negatives - (warning: this may come off as EXTREMELY critical, but Iâm emotional at this time):
Why couldnât we care about people with Cystic Fibrosis before we used them as a means of crafting a tragic romance?Â
Are directors running down a list of illnesses and asking: which of these can we use next for a tragic romance? First The Fault in Our Stars with cancer. Then Me Before You with a man who is paralyzed. Now this. Overall, this just seems like⌠kind of a bad trend.
When did Cole Sprouse or his co-star ever care about the CF community before they were paid to act like members of it?
I donât believe any of the filmâs proceeds will be going to the Cystic Fibrosis Foundation.
The premise of this movie is really, genuinely dangerous. Now, some CFers do get together in real life! But we acknowledge itâs VERY bad and has the potential to be EXTREMELY dangerous. The message it currently seems to present is: maybe, just maybe, romance can overcome all - including Cystic Fibrosis and other chronic/terminal illnesses. Which⌠is, sadly, not true. God how I wish it were.Â
Corny dialogue (but hey, almost all romance films are)
This movie is going to be big, and I can see it. My fear is that it provides misinformation or portrays this as more a romance, with CF being the motivating tragedy factor. My best case scenario for this movie is they both live, but both decide to leave one another (which, knowing for the rest of your life you can never be with the one you love⌠now THAT is tragic). This would be a heart-wrenching end, and it would reemphasize the importance of health and self love/care. I think if the movie ended in this way, I would feel much better about it.Â
On a separate topic, Iâm terrified that audiences will see the filmâs potential inaccuracies and go on believing them. Iâm frightened at the invasive questions Iâll get. Iâm afraid of people saying âoh I know ALL about CFâ just because they saw the film. Iâm afraid of their assumptions. Already, we are seeing people shut CFers down because Cole Sprouse fans, etc. dislike their criticisms. Iâm just saying⌠please, everyone, remember this film is about real people. Many CFers arenât and will never be in relationships with one another (though a tiny percentage will). Please remember our illness is not a plot device. I hope this movie is as good as the next person hopes it will be. But⌠from what Iâm seeing⌠Iâm skeptical and concerned.
Also⌠if you are excited about the movie but do not have CF, you DO NOT have a right to tell CFers how to feel. This is based on our lives. It directly impacts us. Not you.
Me: ugh, I need to lie down
Me: *is already laying down*
Me: fiddlesticks
âGo enjoy your life. Go enjoy it, âcause there are people fighting like hell for it.â
-Claire Wineland
The lack of diversity no one talks about:
Characters with:
- Epilepsy
- DiabetesÂ
- Psoriasis
- Rheumatoid Arthritis
- Inflammatory bowel disease (crohnâs disease or ulcerative colitis)
- Cystic Fibrosis
- Celiac Disease
-Â Hypothyroidism/Goiter
- HyperthyroidismÂ
- AsthmaÂ
-Â Paramyloidosis
-Â Sarcoidosis
- Multiple Sclerosis
- Amyotrophic lateral sclerosis
- Spina bifida
- LupusÂ
And many more.
my neck
my back
my joints, hear them crack
the amount of misinformation and wishful thinking and belief that yoga can fix everything really bugs me when it comes to scoliosis
yes types of physio type exercises can reduce scoliosis curves, particularly the lower the curve. however that will. not. work. for everyone, and doesnât work for the majority.
the books online and youtube videos and Instagram posts that claim to know how to âcureâ your scoliosis are often stupid. i saw some of a dude who had the outline of a curved spine on the back of his shirt and was bending so it straightens claiming itâll work for your spine too. the exercise didnât even take into account a part of scoliosis so many forget: the twist.
but what would I know as someone whoâs has three braces, spinal surgery, friends whoâve had successful and un-successful physio attempts and other things.
thatâs sarcasm I know what Iâm talking about
also before someone comes to attack me Iâm not saying exercise and natural things canât improve scoliosis, im just saying it shouldnât be such a big assumption that it will work for everyone and anyone who it doesnât work for didnât try hard enough, or didnât do it right.
spine: hey! you currently seem stressed about something entirely unrelated to your bone structure. allow me to make everything nine hundred times worse and remind you how fucked up your body is in addition to whatever else is bothering you.
me: hey! go fuck yourself
Little Scoliosis Things
- moving makes your back hurt
- sitting still makes your back hurt
- only lying on the hard floor gives some relief
- making porn moans when you stretch
- âCan you give me a massage?â
- pins and needles in your arms and legs
- wearing baggy shirts
- constantly grumpy because of pain
- some fool: âJust stand up straight!â
- asking your friends if they want to feel your weird curvature
- you have one bony hip you could stab somebody with
- always out of breath
Hi babe! I hope this isn't intrusive but I saw that you got spinal fusion when I was looking through the tag. I just wanted to send an ask in because I'm facing spinal fusion and I really don't know what to do. My curve size is quite severe but it isn't really causing me many problems aside from mental which is why I think it's a hard decision, but my surgeon kinda put it to me as either get it now or later, and later he might have to fuse more. Reading up on it scares me more tbh so I'm a bit ?
Hello dear! Not intrusive at all Iâve very open about my back problems but please remember Iâm not a doctor nor am I comfortable giving medical advice :$
Iâm so sorry to hear that youâre in this position but I am very glad to hear that itâs not physically causing you pain!! đđź
Although I had a severe double curvature and rib rotation I still feel that my surgery was not ânecessaryâ (none are. Theyâre purely cosmetic. They donât actually help at all, they cause a lot more pains and problems as well as limitationsâ not to mention the risks associated, the lowered expectancy of life length and enjoyment, etc etc etc).
I still believe that I would have been able to heal myself with yogaâ I believe this so deeply because of the progress and healing itâs given me even after this botched spinal fusion and all of its limitations! Please please please, find an honest chiropractor that you trust, look into physical therapy and yoga (you can search Julie Wilkins on YouTube, she has a full spinal fusion and teaches yoga) just be careful and cautious and donât push or hurt yourself
Now the fusion I had was using an outdated method (the Harrington rod procedure) so my story is a hell of a lot different than most, as the scar for spinal fusions for scoliosis usually run along the spine, where as mine started at my bra line and curves around my hip towards my belly button (itâs sadly shrunk a lot, but I still do like my scar hehe) but with that being said Iâm still not pro spinal fusions, at all. No matter the method I feel they wonât help scoliosis at all.
I think that they are just a bandage / temporary solution. My scoliosis returned a few months after my operation.. My pain is incredibly worse than it ever was before the operation and I did have a lot of pain beforehand too, so thatâs saying a lot.
Please, do not get a spinal fusion unless you think itâs best. Do not let a doctor force or scare you into one like they did with me. I know itâs scary and disheartening but please continue to do your own research, and please seriously try alternatives like physical therapy and / or yoga
Scoliosis is a muscular disorderâ not skeletal! Our muscles on one side are weak and are being pulled, while the other side is too tense and is doing the pulling. It reshapes our bone structure if we allow it. If we monitor and are cautious of our posture, and work to strengthen the weak side as well as to stretch and relieve the tense side we can see improvements. Iâm not saying youâll 100% be better, but Iâm saying youâll feel a lot better and hopefully wonât be needing to deal with endless chronic pain and severe nerve damage for the rest of your life
We have so much power in our own healing, we just have to actively try!
Please please please let me know if you have any more questions and I truly hope that this helps you a little, sending you so so so much love and light and wishing you the best of luck! đđđđđđđ
Ps. Iâll be making a video series on my YouTube channel soon regarding my tips and tricks as well as sharing my story so others like you donât feel so alone or hopeless like I did âĽď¸âĽď¸
Okay wow.. let me break this down bit by bit because this is not okay.
â¨
âAlthough I had a severe double curvature and rib rotation I still feel that my surgery was not ânecessaryâ (none are. Theyâre purely cosmetic. They donât actually help at all, they cause a lot more pains and problems as well as limitationsâ not to mention the risks associated, the lowered expectancy of life length and enjoyment, etc etc etc).â
To say that no surgery is ânecessaryâ is straight up wrong. I know of people who had the surgery for cosmetic reasons but I also know people (including myself) who needed the surgery.
I had difficulty breathing, trouble eating, and if my curve was allowed to progress further I would have lost use of my legs.
But ya know.. not ânecessaryâ right?
Yes surgery has risks but Iâm sure a trained medical professional would weight those risks against the risks of not proceeding with surgery.
Also.. life expectancy decreases when your spine is crushing your internal organs mkay.
â¨
âI still believe that I would have been able to heal myself with yogaâ I believe this so deeply because of the progress and healing itâs given me even after this botched spinal fusion and all of its limitations! Please please please, find an honest chiropractor that you trust, look into physical therapy and yoga (you can search Julie Wilkins on YouTube, she has a full spinal fusion and teaches yoga) just be careful and cautious and donât push or hurt yourselfâ
A few bullet points here:
* âBotched spinal fusionâ how shitty was your surgeon?
* Chiropractorâs, physio, and yoga can help some people but are not the be all and end all.
* Chiropractors can be dangerous if they arenât knowledgeable in scoliosis.
â¨
âNow the fusion I had was using an outdated method (the Harrington rod procedure) so my story is a hell of a lot different than most, as the scar for spinal fusions for scoliosis usually run along the spine, where as mine started at my bra line and curves around my hip towards my belly button (itâs sadly shrunk a lot, but I still do like my scar hehe) but with that being said Iâm still not pro spinal fusions, at all. No matter the method I feel they wonât help scoliosis at all.â
I have Harrington rods, and as far as Iâm aware these are still an in dated method.
my scar runs down my spine. But I have a friend with the same scar you do.
Your experience governs your opinions, so it sucks that you had such a crappy experience. The same method you had helped my scoliosis, so thereâs that.
â¨
âPlease, do not get a spinal fusion unless you think itâs best. Do not let a doctor force or scare you into one like they did with me. I know itâs scary and disheartening but please continue to do your own research, and please seriously try alternatives like physical therapy and / or yogaâ
Please listen to medical professionals and take into account that your reluctancy to go through with surgery is more than likely just an emotional fear response. Because yes, surgery is scary. Humans tend to flee in the face of danger. Any decent doctor will discuss non-surgical options (if they are actually viable options) for each individual person. Good doctors will not tell you to go ahead with surgery unless the actually think itâs the best option for you. Yes you should do your own research, but seriously listen to medical professionals, and if you feel it necessary seek a second opinion.
â¨
âScoliosis is a muscular disorderâ not skeletal! Our muscles on one side are weak and are being pulled, while the other side is too tense and is doing the pulling. It reshapes our bone structure if we allow it. If we monitor and are cautious of our posture, and work to strengthen the weak side as well as to stretch and relieve the tense side we can see improvements. Iâm not saying youâll 100% be better, but Iâm saying youâll feel a lot better and hopefully wonât be needing to deal with endless chronic pain and severe nerve damage for the rest of your lifeâ
There are different types of scoliosis, one of which is muscle based however there is also AIS the type I have and there is skeletal based scoliosis. Iâm not saying Iâm an expert but I know that scoliosis comes in many forms. What your describing might work for people with a muscular issue but thatâs not everyone.
â¨
âWe have so much power in our own healing, we just have to actively try!â
That actually hurts me.. at first I thought ~fuck you and your hippy bull shit, go shove some crystalâs up your arse.~
But honestly you just seem very uneducated about anything but your own situation. So please, before you spread so much misinformation. Do your own research.
@scoliblog thanks for making this reblog before I did and got filled with rage. Especially the âdonât get surgeryâ part. Listen to medical professionals! Yoga and all that crap can work for minor degrees but not everyone. agh
what to pack for hospital (for scoliosis surgery)
The hospital stay after scoliosis surgery can be different for everyone. But no matter your circumstance, the question of what to pack has crossed your mind. I remember being fourteen, packing my bag a night or two before and critically thinking through every item I packed. To my surprise however, I used barely anything that I took with me.
This will a little bit tailored to my experience but IâŚ
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