stomach: hey im going to overreact to harmless foods
me: why
stomach: i gotta

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Today's Document
YOU ARE THE REASON

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Sweet Seals For You, Always
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@crohnsworld
stomach: hey im going to overreact to harmless foods
me: why
stomach: i gotta
Bad things to say to spoonies
These come from personal experience. They are things people say to chronically ill people that are either an attempt to make them feel better, solve their problem, or just to be rude. Feel free to add your own:
“Your life is an inspiration to me!”
“I couldn’t live a day as you”
“Yeah, I feel tired too sometimes”
“I know you’re in pain, but you need to tough it out”
“Things could be worse”
“You don’t look sick”
“You need to be more active/go to the gym”
“You’re just out of shape. Exercise will help”
“Stop using your illness as an excuse”
“You’re dwelling too much on the pain”
“You just have anxiety”
“Get outside”
“I wish I could stay in bed all day”
text: your worth is not measured by your productivity
hold on. you can do this.
You don’t have to do something extraordinary with your life to be an extraordinary person
Chronic Illness Feel
ignore it, ignore it, ignore it, fuck, there it is, just keep going, try to ignore, it oh n o, here it comes, fuck fuck fu c k shit fuck, this HURTS LIKE A BITCH, fuck fuck, wait, i think its fine, we’re good, wait, n o, no we are nOT, here it comes again, fuck shit fuck UGH.
Normalize disabled characters in tv shows
Normalize disabled characters not having a job due to their disability.
Normalize disabled characters having their own story arcs and not just being there to develop an able bodied character.
Normalize disabled characters that are both mentally and physically ill
Normalize disabled characters having invisible illnesses
Normalize having more than one disabled character per show
Feel free to add
Chronic Illness
Me: I have an illness that will never go away
Relative: I hope you get better
Me: Thank you (were you even listening)
I was talking to my mom the other day, and she said she was going to start going to the gym, because its important care for your body. I’m disabled w/ multiple chronic illnesses, so going to the gym is impossible for me. She seemed to realize this, and started to backtrack, saying like - its part of taking care of herself, and I interrupted and said, “Its okay mom. You and I taking care of ourselves look very different”. And thats what I would like you to know.
Taking care of yourself looks different.
For some people, taking care of themselves looks like fruit smoothies and gym visits, cutting out sugar and weight training.
For some people, taking care of themselves looks like hospital visits, feeding tubes and ports. Needles and tests.
For some people, taking care of themselves looks like taking medication and lying down in a cool dark room.
For some people, taking care of themselves looks like getting any calories in their body that they can.
For some people, taking care of themselves looks like adding in more vegetables and trying to go outside to get sun more often.
For some people, taking care of themselves looks like seeing a therapist, keeping symptom journals, and practicing mindfulness, meds, or grounding techniques.
We all have different needs. Please don’t feel bad about how you care for yourself just because someone else is able to do “more”, or their care is more performative or obvious. Please don’t look down on someone for caring for themselves in a way that you do not. Medication and rest are just as important as exercise and vegetables.
Keep doing your best to care for yourself, the best way you know how. Your self care and health is important, no matter what it looks like.
Life is like a box of chocolates spoonie edition
Things I need to hear:
No matter how hard it gets, don’t stop fighting. You never know when circumstances will change.
Chronic illness culture is getting weirdly excited about doctors performing invasive medical tests on you because you’re so desperate for a diagnosis.
This is your daily reminder that strict attendance policies only work for people who are super healthy and that professors who believe you at your word that you can’t be in class today are magnificent and deserve praise.
Me: *Makes a funny joke about my chronic illness as a coping mechanism* Ahahaha! I’m one sick bitch!
Someone else: Woah, dude, that sucks. I am so sorry. It must be so hard. :(
Me: Wait, no.
Spoonie life
No good meal goes unpunished.