@endcoreh - Tumblr Blog

Ohhhh midodrine.

Does anyone have tips on how 2 deal w chronic fatigue nd brainfog, am suffering constantly

#actually chronically ill #chronic illness #pots syndrome #dysautonomia #brain fog #fatigue

Something upsetting is tht sometimes it feels like my parents blame me for my limitations caused by My chronic illness, for example, ill eat nd ill feel ill so i lay down for a few hours, my dad will see me laying nd say im lazy nd dont do anything 2 help myself, like iak trying my best, i dnt choose the nausea, or if its hot out nd i start feeling ill my mom just thinks im exaggerating when ive explained to her why that happens. My mom also doesnt take my health seriously it seems bc ill b like "i cant eat tht thing, it will make me feel sick" she will b like "but i made it 4 u 🥺" nd ill b like???? but u kno wht i can nd xant eat so whyd u make me this when u kno u put stuff i cant eat in it???? she will try nd convince me its ok to eat nd it gets on my NERVES!! when im laying im called lazy nd when i try nd actually help myself shes not happy. wht do u want from meeeee

#dysautonomia #potsie #pots #pots syndrome #actually chronically ill #chronic illness #chronically ill #spoonie

idk-anymore-dude-deactivated202

Me waking up at 3am with a heart rate of 170:

thespooniewhitney-deactivated20

ghostpersevering

owlet

anyone else w dysautonomia have Seasonal Sweet Spots

like right now i'm in the stretch of weeks in spring where things are just ok. barely need my wheelchair. i can go hike all willy nilly and shit right now.

but as soon as the daily high temperature starts reaching higher than 75F things will very quickly suck again

nvld-hedslife

Yes!! It’s not too hot, not too cold, and the weather has to be somewhat consistent because barometric pressure fucks me up. It can’t vacillate too much from day to day and it has to remain consistent within the given day.

#hope this is ok to rb!#but me too rn #the weather mixed w the wind is perfect #nd i feel pretty okay #but ik once the weather gets even slightly higher #i will b a mess

glittergroovy

body-of-ouches

When I have an energy drink even though I know it’ll just make me sweaty and dizzy

#me literally rn drinking a monster DFKJGSKDJFH

adhd-alien

Most people are still surprised when I say I have ADHD. It’s not that I hide it on purpose - a lot of it is ingrained into me in order to avoid ridicule and trouble. Here are more ways I (consciously or not) hide my ADHD!

cuntess-carmilla

If you get (what you may think is) seasonal depression but during the summer instead of during winter, check for symptoms of dysautonomia.

For a lot of people with dysautonomic disorders (POTS included) hot environments are hell. This goes x2 if the hot environment you’re in is humid rather than dry and things such as hot showers and saunas make you dizzy or tired (nothing worse for us than humid heat).

This happens because the extra warmth makes our blood vessels dilate even more than they already inadequately do and too dilated blood vessels may make your blood pressure low or unstable, which in turn means your upper body is deprived of enough oxygen (your blood is pooling down in your feet instead of being pushed upwards thanks to more constricted blood vessels). Most worryingly, our brains are being deprived of enough oxygen.

An oxygen deprived brain, especially if deprived of it persistently through time, causes chronic fatigue and brain fog, two symptoms often misdiagnosed as depression, since you have no energy to even think, focus or have good memory (brain fog), much less to be active, experience pleasure/enjoyment, or be motivated. It can also reduce sex drive, among many other things.

On top of that, experiencing chronic fatigue and brain fog is very likely to make you genuinely depressed, because it’s very debilitating, confusing, emotionally miserable and hard to combat.

saprophetic

doubly keep this in mind if you’ve had covid - one of the possible lasting effects of covid is dysautonomic disorders. not many people (excluding those already with dysautonomia) have talked about this which is really frustrating considering how genuinely debilitating it is. more people should know so they can be aware of it if and when it happens to them, especially because (to my knowledge) there is no cure.

cuntess-carmilla

From what I’ve seen people say, it can go away but it’s not like, something YOU make go away on purpose it just sort of happens, so yeah there’s no cure, only palliative treatments, but some people are lucky enough that it goes away for either a long time or even permanently, at least when it comes to POTS, I don’t know about other forms of dysautonomia.

#this is actually so interesting #bc my entire life i got this #nd i only got diagnosed w diasutomnia like #over the summer #this makrs so much sense

cuntess-carmilla

No, but seriously. If whenever you get up from wherever you start to feel faint, get palpitations, get numb, get nauseous, get light-headed and/or literally feel your blood drop to your feet, check the symptoms of Postural Orthostatic Tachycardia Syndrome.

cuntess-carmilla

Also add more salt to your diet lol. With or without the POTS unless you have hypertension in which case I’d be more cautious.

cuntess-carmilla

Actually, it’s not just that you can reblog this. I want people to reblog this.

My poor mom went by years without knowing why the fuck she was having all these debilitating symptoms.

All it took was me making her add some more salt to her diet and have an isotonic drink daily and she IMMEDIATELY (as in, less than an hour) stopped feeling faint whenever she got up from kneeling down and her hair is slowly falling off less and less.

She used to need at least 5 minutes to recover from kneeling down and now she kneels down and stands up like it’s nothing. Even her joint pain from EDS and brain fog have improved tremendously and she has much more energy.

cuntess-carmilla

It’s not normal to always get dizzy when you kneel down and then get up, or when you get up from bed or a chair.

It’s not normal for any of that to make you light-headed or nauseous, or get blurry vision, headaches or palpitations.

It’s not normal for your body to suck at regulating its temperature and for your heart rate to go insane if you’re just mildly stressed.

It’s not normal to want to be active and “productive” but be unable to get your body to do anything so you just lay there, or if you manage to get anything done, you’ll need a whole week to recover.

It’s not normal to be tremendously tired all the time no matter how much you rest and sleep, even if people think you’re just “lazy”.

I’m pointing all these things out as abnormal because chronically ill people tend to not realize that our symptoms are symptoms.

Our individual bodies are the only bodies we’ve experienced and since most of us don’t look any different from others and aren’t taken seriously when we complain of any ailment, we assume our symptoms happen to everyone. They do not.

People with no physical conditions (at least not impairing ones such as being a bit short-sighted) do not have their bodies make life difficult for them, unless they’re temporarily ill. But we are ill ALL the time.

Take yourself seriously. Doctors and healthy people already don’t, so if you don’t take yourself seriously, who will?

If your body is making life difficult for you, there’s probably something going on with it, and if it persists and nothing makes it go away, it may be a chronic illness.

sleepysigh

POTS can develop in previous healthy people after a Covid infection. If you have had Covid recently or know someone who has, please keep this in mind.