#potsie

[acpi-s2]

Went to the cardiologist the other day, the POTS meds have worked so well that apparently I no longer meet the diagnostic requirements for POTS when I’m on them. Heart rate is much healthier, and so is my blood pressure.

I’ve 100% felt the difference since getting onto them, so that’s why I haven’t been venting here as much lol

[prettyparkerprincess]

i’m genuinely so happy to finally have a proper diagnosis like the joy is unmatched

[prettyparkerprincess]

my cardiologist said that ive got dysautonomia, more specifically ist & pots but he doesn’t wanna deal w the semantics of it all lmao but that confirms everything i’ve been thinking which is so great to hear!! he’s gonna prescribe a medication to bring my heart rate down & i’m gonna get a device that goes under the skin to continuously monitor my heart rate, not sure what it’s called lol but yea i’m super excited bc he actually listened to me & my concerns & didnt js brush me off like so many other doctors have in the past!!

[chaosatthebookclub]

ok fucked up dysautonomia symptom incoming

i’ve been feeling a lot of chest pain recently but put it down to heavy breathing & palpitations. just sat down at my desk and for a sec my boobs were on the desk. oh my god the pain relief. wanna make it clear that i’m like a d-dd cup, i’m not even big chested. dysautonomia means it hurts to wear a bra most of the time so guess i’m fucked for the time being lol.

i am so sorry to people with big boobs that’s got to fucking hurt.

[weathernerdmando]

tfw your heart rate hits 164 after standing in a line outside and finally sitting down in your hot car

[kkm-spn]

hi, i saw ur recent post and was wondering if you have any tips for managing chronic illness! i have severe pots and am in a wheelchair and i’m really struggling to find thing that help. also i absolutely love your fics ! 💕

hi!!!! thank you so much, i’m really glad you like the fics!! i’m honestly still trying to navigate my pots. i got diagnosed about two years ago and i unfortunately live in an area where absolutely no doctors know how to treat it. so i actually am currently in the car to see a pots specialist at the mayo clinic in florida! it’s like a 15 hour drive😩😩 but im hoping to find out more about my pots and what i can do to help. but i will offer the few tips that i do have!

my tips-

i always have my fan with me. it is LITERALLYYYY a life saver… it also has a flashlight as well as doubling as a portable charger! i’ll try to link it.

i also always carry salt on me. anytime i go to chick-fil-a (if your not from the united states, it’s a fast food restaurant) i also ask for a bunch of salt packets and get them for free to keep in my purse. that way if i feel like i am going to pass out, or even feel a little “potsy” i take a “salt shot.”

also another tip i learned from working at a chronic health camp.. i like to call it my pots shot. it’s literally a little dixie cup with gatorade in it and a bunchhhh of salt. it tastes DISGUSTING but it really helped me.

another one i learned from a friend is to buy and abdominal binder!! you can get them from drugstores or at some grocery store too. wear it when you are eating or if you are having a bad pots day and it really helps. it apparently helps because when you are eating, the blood pools in your stomach and causes discomfort as well as symptom flares sometimes.

also if you are in the er or at a doctors appointment and they are refusing to do a specific test/treatment on you, ask then to document that they are refusing.

those are the tips that i could think of off the top of my head. i know it’s not a lot but i hope they helped you!! you’ll have to let me know:)) also if you want tips for other health things besides pots let me know, bc i have a lot of health issues so i may be able to help lolol

here is a link to the fan that i use, as well as a abdominal binder:

the abdominal binder is not the exact one that i have, because i got mine from a local drugstore, but it’s very similar!

Amazon.com

Amazon.com

[potsiefaerie]

Wait I have not shown y'all my medical alert bracelet! So here it is:

Medical bracelet is from here:

https://www.etsy.com/listing/1791378847/custom-silicone-medical-alert-bracelet

And mine says:

Dysautonomia: frequent fainting

& Non-epileptic seizures

card in phonecase with details

Though I still need to update the card again 😅

Oh and for those interested, the heart rate smart watch is the Xiaomi Smart Band 7, which honestly I've been liking more than my previous FitBit, and it was like half the price of a new FitBit.