#potsie

[weathernerdmando]

tfw your heart rate hits 164 after standing in a line outside and finally sitting down in your hot car

[kkm-spn]

hi, i saw ur recent post and was wondering if you have any tips for managing chronic illness! i have severe pots and am in a wheelchair and i’m really struggling to find thing that help. also i absolutely love your fics ! 💕

hi!!!! thank you so much, i’m really glad you like the fics!! i’m honestly still trying to navigate my pots. i got diagnosed about two years ago and i unfortunately live in an area where absolutely no doctors know how to treat it. so i actually am currently in the car to see a pots specialist at the mayo clinic in florida! it’s like a 15 hour drive😩😩 but im hoping to find out more about my pots and what i can do to help. but i will offer the few tips that i do have!

my tips-

i always have my fan with me. it is LITERALLYYYY a life saver… it also has a flashlight as well as doubling as a portable charger! i’ll try to link it.

i also always carry salt on me. anytime i go to chick-fil-a (if your not from the united states, it’s a fast food restaurant) i also ask for a bunch of salt packets and get them for free to keep in my purse. that way if i feel like i am going to pass out, or even feel a little “potsy” i take a “salt shot.”

also another tip i learned from working at a chronic health camp.. i like to call it my pots shot. it’s literally a little dixie cup with gatorade in it and a bunchhhh of salt. it tastes DISGUSTING but it really helped me.

another one i learned from a friend is to buy and abdominal binder!! you can get them from drugstores or at some grocery store too. wear it when you are eating or if you are having a bad pots day and it really helps. it apparently helps because when you are eating, the blood pools in your stomach and causes discomfort as well as symptom flares sometimes.

also if you are in the er or at a doctors appointment and they are refusing to do a specific test/treatment on you, ask then to document that they are refusing.

those are the tips that i could think of off the top of my head. i know it’s not a lot but i hope they helped you!! you’ll have to let me know:)) also if you want tips for other health things besides pots let me know, bc i have a lot of health issues so i may be able to help lolol

here is a link to the fan that i use, as well as a abdominal binder:

the abdominal binder is not the exact one that i have, because i got mine from a local drugstore, but it’s very similar!

Amazon.com

Amazon.com

[potsiefaerie]

Wait I have not shown y'all my medical alert bracelet! So here it is:

Medical bracelet is from here:

https://www.etsy.com/listing/1791378847/custom-silicone-medical-alert-bracelet

And mine says:

Dysautonomia: frequent fainting

& Non-epileptic seizures

card in phonecase with details

Though I still need to update the card again 😅

Oh and for those interested, the heart rate smart watch is the Xiaomi Smart Band 7, which honestly I've been liking more than my previous FitBit, and it was like half the price of a new FitBit.

[aurora1040]

siiiiiigh.....

why does existing have to be so exhausting?

[punksrespectpronouns]

Sometimes I forget how chronically ill I am until summer hits 🫠

[the-sparkling-diamond-satine]

i need to put away my laundry but just standing up has my heart rate doubled. during pride month? homophobia :((

[stonebutchooze]

its a very culturally important time of year for dysautonimic butches. nosebleed season