Endo The Pain

This blog belongs to the owner of Endo the Pain, Ashley Nicole. This is a personal account of my life with Endometriosis. You all have read the story that led me to being diagnosed with Endometriosis. This is the aftermath of living with Endo.

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2014 Endo the Pain photo contest

Very excited to see who will win this years photo contest. I am blown away by all the friends and families that were involved this year. We have reached over 40,000 people in the past week! I always make sure to tell people that we have a voice and it will be heard. I will never stop spreading awareness, this disease has taken way to much away from me and so many of my Endo sisters. So tonight is the end of a very successful contest, which is a little bittersweet for me. I never want the contest to end because it has brought so many people to ask the question "What is Endometriosis?"  And that's what Endo the Pain is all about, reaching those who have no clue what we all go through on a regular basis. I will do everything in my power to see to it, that no 15-16 year old girl gets pushed aside and ignored by doctor after doctor. We will NOT be silent, we WILL be heard! :) 

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"Alone we are strong... Together we are stronger."

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A study from Northwestern Medicine has led to a new theory regarding the development and cause of endometriosis. The chronically painful disease, which affects 1 in 10 women, has been linked to two previously unstudied genes.

This is incredible!!

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Interesting! And so awesome if they can soon test for it instead of surgery!

But…

as birth control pills don’t work for everyone now, I don’t think the solution offered here is much different from what is on offer now. Hopefully building on the knowledge will lead to a cure but the last bit - I do not see how giving birth control to everyone who has this endo indicator will ‘prevent the disease’ as they call it.

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Nicole Malachi has had lymphoma and endometriosis. The latter, she says, has caused her far more pain.

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Endo The Pain

Endo the pain was designed to raise awareness for endometriosis and to reach out to those who...

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Everyday

There is this pain inside me that feels like stabbing knives 

“I wish someone would believe me” I have said a thousand times 

  There is something really wrong here, someone help me please 

I am feeling so alone and trying to put my mind to ease 

  Been to several Doctors, it is always the same 

What you’re going through is normal, they would always claim 

  So I try to walk through life with my pain meds by my side

 Trying to be as normal as possible, I must go along for the ride 

  Ten years later with so much pain and still no clue 

Then I met a doctor that gave me my break through 

  She knew something was wrong because I couldn’t conceive 

She performed a laparoscopic surgery and found something I couldn’t believe 

  For the past 10 years I was not crazy, it was not all in my head

There was a disease inside me and for ten years it was able to spread 

  I wondered what it was that so many doctors had dismissed

 A disease I called the devil, was also called Endometriosis 

  This disease has tried to destroy my life and it’s not over yet

 Because its about to pose its biggest threat 

  There is no cure for this disease, so I just will have to cope

 But it took something else from me that I never expected… my hope 

  Hope to have a family with the man of my dreams

Little did I know that there were other plans made by my disease 

  I would find out that I could never conceive

 I then felt the world collapse down on me 

  I will never know what it’s like to feel my baby kick inside

When I heard this news, well, inside I died 

  Because no doctor would believe me and it took so long

Because no one would listen and told me I was wrong 

  I now will never have a family because of their mistake

This is something I will have to live with, every day that I awake 

 ~Ashley Nicole~ 

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Endo The Pain Campaign Video 2014  

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Word cloud of words women used to describe Endometriosis.

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"You never know how strong you are, until being strong is the only choice you have."

-Unknown