pixel skylines
Peter Solarz
NASA
No title available
Discoholic 🪩
Cosimo Galluzzi
EXPECTATIONS
#extradirty
PUT YOUR BEARD IN MY MOUTH
TVSTRANGERTHINGS
ellievsbear
Lint Roller? I Barely Know Her
Stranger Things
blake kathryn
𓃗
Kaledo Art
🪼
Andulka
2025 on Tumblr: Trends That Defined the Year
JVL
seen from Türkiye
seen from United States
seen from Canada
seen from Saudi Arabia
seen from United States
seen from T1
seen from Ireland
seen from Italy
seen from United States
seen from Germany
seen from Libya
seen from Malaysia
seen from United States
seen from United States
seen from United Kingdom
seen from Indonesia
seen from United States
seen from Malaysia
seen from Italy
seen from Türkiye
@feckingme
Painful Debate
I sat today listening to the debate on Myalgic Encephalomyelitis (ME) in the UK House of Commons and realised how widespread this struggle is. I also realised that I have been lucky in my interactions with my GPS and consultants. I have never had to convince my doctors that I am ill. It’s always the other way around. I didn’t have to fight for a diagnosis or treatment. It has been mostly plain…
View On WordPress
Freedom From Disability
OK. I am now officially angry. It’s going to take work but I am going to try to be as calm and logical as possible. I realise that sometimes the brains of some of the able-bodied are much too busy being “productive” in order to regulate their feelings about the less-abled who happen to share this planet with them. I understand that your empathy (note I said empathy and not sympathy) is unable to…
View On WordPress
Growing Old Disgracefully
I love growing older. Not just because I love birthday parties (which I do) but I really revel in being older. As a child I would always tell people I am as old as I think I could possibly get away with. It was also a challenge for me to try to match my fake age to my appearance. (more…)
View On WordPress
Love is Caring
This week being National Carers’ Week has brought the task of caring to the forefront of my mind. Not that I hadn’t previously thought about it but rather it has forced me to explore a little more deeply the sacrifices my own carer has had to make. My husband, Mr. B., has been my main carer, to varying degrees, for many years now. However, if you asked him he would say it’s only in the last four…
View On WordPress
'Too Tired to Celebrate' Celebration
‘Too Tired to Celebrate’ Celebration
On the second anniversary of this blog, I thought I should talk about the one constant over those years. I am still TIRED. I am so fatigued right now, I believed its ran laps around me a pretty few times. My brain has refused to even acknowledge me. Its either blanking me or left without telling me bye. Either way I am hurt. I sat here for over half a hour trying to figure out whose blog this…
View On WordPress
Closing the Curtains
I was once told that I need to focus on something other than my illness. It was a statement that cut me to the core. I felt misunderstood and misrepresented. I comforted myself that a statement like that could only be made by someone who does not suffer from a chronic illness. We in the know, know that being ill is our life. There is no respite or days off. Each day is spent either figuring out…
View On WordPress
Hello World!
I am no Sleeping Beauty I am not entirely my usually ditsy self today. I woke up with an overwhelming sense of intelligence and a feeling that today I have something to say, which is more than I can say for my usual state of being. Mr. B figures this is due to how much sleep I had last night, let’s just say this morning. Today, boys and girls, I had all of 7 glorious hours sleep. Why, you may…
View On WordPress
About
I was told who you are is defined by where you are from; what you do; who you do it with and what matters most to you. Therefore I am Natalie B, a mother of two beautiful girls and a rather handsome young man. I live in the gorgeous Middle England, (a secret Lord of the Rings fan) with the ever lovely Mr B and our girls. I like music, travelling, designing, art, craft, food, books, gardening and…
View On WordPress
Spoontastic
There are days I am feeling a little like myself but is quite wary about doing too much and regretting it the next day. On days like this, when the craft bug bites, my bed turns out masterpieces (or so I believe). Since I believe that the best art or craft are those made from recycled or upcycled materials, there is always raw material at a ready. Recently I had a had the inkling to make a spoon…
View On WordPress
Beauty Out of Pain
Beauty Out of Pain
I have often been asked about how I felt about becoming wheelchair dependent and had to deal with people’s disbelief when I say I am ok with it. How do you explain to someone that their worst case scenario is, for me, the least of the symptoms these illnesses have cast my way. How do you explain without seeming vain, that has an English teacher, Linguist and someone who generally has a lot to say…
View On WordPress
"You don't look ill"
“You don’t look ill”
I have lived with an invisible chronic illness of some kind for over 24 years. I was first diagnosed with Rheumatic Fever, then Lupus(SLE), then Cluster Headaches, then Myalgic Encephalomyelitis (ME) and then most recently Fibromyalgia. I have spent most of my adult life battling chronic illnesses without any outward scars to show for it. In my teenage years I was most concerned with not letting…
View On WordPress
Self Care and Self Management - The process of creating a more sustainable and healthy life for the chronically ill.
Self Care and Self Management – The process of creating a more sustainable and healthy life for the chronically ill.
I get up every day and before I even open my curtains there is always one reoccurring thought. I wonder what will my capabilities look like and how much I will be able to get done today without appearing useless. I have found this daily worry could subsequently put a damper on the day before it has even began. It is for this reason I have taken to applying principles of self care and self…
View On WordPress
Sex and the Spoonie
Sex and the Spoonie
Since my disability became visible, I have found that people now ask me more about my sex life. Most of time the questions come in the form of presumptions of its nonexistent state. So at the risk of being indelicate I sometimes have to explain that sex first happens in the brain and mine is still intact and have the capacity for great imaginations. Secondly all of my organs for having sexy are…
View On WordPress
A Shedding of the Moan
A Shedding of the Moan
As the end of the summer draws near and the days cool to a tolerable level. I have found out a few key things about myself. I have found myself to be finicky and perhaps ungrateful. I realise when the days are bright and sunny enough to tempt me out and about, the rise in temperature vexes me greatly. However, on the days when the weather sweats me not, so that enjoying my day should be a thing…
View On WordPress
Parenting with Chronic Illnesses
Parenting with Chronic Illnesses
As Mothers’ Day approaches I have been thinking a lot about what it means to be a chronically ill parent. The knowledge of my first child came to me on the eve of being diagnosed with Systemic Lupus Erythematosus (SLE). By the time she was born I had slowly climbed down from the superhuman halo of being a teenager into trying to be supermom. I couldn’t stop long enough to worry about being ill…
View On WordPress
And The Dish Ran Away With The Spoon..
As a Spoonie that sometimes worry about my husband, who is my main carer, I have being trying to find out what’s out there for carers. Apparently, there is a National Carers Week. However, for me and many others it went wholly unrecognised but that’s the life of a carer. They seem to be expected to carry out their duties without herald or fanfare. After all, a good person should take care of the…
View On WordPress
