Fibromyalgia Sucks.

Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Diagnosed 2008 fibro/cfs/RA. Follow my personal accounts here and on IG @bluerazzblowpop

[snorlax-and-co]

Chronic illness: the whack-a-mole game you never win. As soon as one symptom improves another one pops up.

[thoughtportal]

5 simple exercises to awaken dormant muscles

{source}

[onemillionwordsofcrap]

I appreciate this video a lot--people don't realize how important it is to start slow if you're trying to come back from a completely sedentary lifestyle, and they get really hurt as a result. Straining your muscles too much, too suddenly can land you in the E.R. and the wrong joint injury can permanently affect your mobility, so please start with absolute basics and easy stretches!

[curiousitycollective]

Since this just happened to us again:

You cannot tell if someone has mobility issues just by looking at them

and

Not everyone with mobility issues uses aids. This doesnt mean they won't need to use seating or the accessible washrooms

[bluerazzblowpop]

[unclefather]

You may be eligible to participate!

If you have more than 5 of these symptoms or problems:

trouble breathing

diarrhea

muscle tension

abdominal hurt

head ache

fatigue

armpit cramp

butt muscle

Have you, in the last year, been to Australia or any surrounding continents or planets?

Have you in the last 30 days been to a super market or walmart?

Do you own a hot glue gun? Because I want to superglue my sisters ears to her head

[thefibrodiaries]

to anyone who thinks those of us with invisible disabilities have “passing privilege”:

being denied access to resources you need is not a privilege.

being refused disability benefits at first glance because you look “healthy” is not a privilege.

getting dirty looks and having insults thrown at you for parking in a disabled space, using a disabled toilet or sitting in disabled seating is not a privilege.

getting accused of faking or exaggerating because “you look fine” is not a privilege.

being made to feel like you shouldn’t sometimes use mobility aids/wheelchairs because you “seem fine without them” is not a privilege.

having doctors not believe you’re sick and even refuse to give you any tests or diagnosis is not a privilege.

being denied treatment and medication because doctors don’t believe you really need it is not a privilege.

constantly being told that “you don't look sick” when you tell someone about your disability is not a privilege. 

being forced to do things that you really struggle to do because “you seem fine” and “you CAN technically do them” is not a privilege.

constantly worrying about how you look and if you should wear certain clothes, make up or do your hair because you’re afraid it might give people another reason to deny your conditions is not a privilege.

being afraid to even tell people about your conditions because you’re worried about how they’ll react and if they’ll believe you is not a privilege.

having your own loved ones question you is not a privilege.

questioning yourself and wondering if it is all in your head is not a privilege.

looking healthy does not mean you get the privilege that comes with a healthy body and mind. having an invisible disability is NOT a privilege and never will be.

[doodlemancy]

I drew this a few months ago when I was hopeless and waiting to see a new doctor, sat on it when I thought it was actually gonna be ok this time… and now the cycle has repeated YET AGAIN :)

[amydentata]

fucking DOCTORS man

[runcibility]

@ashbet

[fibromyalgiasucks]

y'all: ur illness doesnt define you!

me, leaning in so my lips touch the mic: i literally am catagorized by a disorder that hinders my ability to function like a regular person

[crpsjournal]

I don't know where my brain is at today...

[huntydraws]

Friends

[fibromyalgiasucks]

me: *doesnt sleep, is tired*

me: *sleeps a bit, is tired*

me: *sleeps average amount, is tired*

me: *sleeps a lot, is tired*

me: *is tired*

[neurowonderful]

People use wheelchairs for a lot of different reasons. Some people use wheelchairs because they are paralyzed and completely unable to walk. That is not the only reason people use wheelchairs, and...

People use wheelchairs for a lot of different reasons.

Some people use wheelchairs because they are paralyzed and completely unable to walk. That is not the only reason people use wheelchairs, and many wheelchair users have some ability to walk.

Here are some reasons some people who can walk use wheelchairs:

They can walk, but it’s very difficult and not an efficient way of getting around

Walking causes them severe pain

Walking is medically inadvisable because of the strain it would put on their heart

They have cognitive problems that make walking more difficult than wheeling

Falling causes them to break bones, and they are unsteady on their feet and fall easily

They can’t stand in place because they need to be moving to stay upright

They can walk some days but not others

If you see someone use a wheelchair sometimes and walk other times, don’t assume they don’t need their chair. If you see a wheelchair user stand up to reach something, don’t assume that they don’t need their chair.

People use wheelchairs for a lot of different reasons, and many people who can walk some absolutely depend on wheelchairs for mobility.

Disability is complicated, and personal. There are a lot of reasons that people use various types of adaptive equipment. (None of which are the business of strangers). Knowing one reason people use something doesn’t mean you know all the reasons, or that you are in a position to assume you know what’s going on with everyone you see using adaptive equipment.

tl;dr: Many wheelchair users can walk some. They still need their wheelchairs. Don’t assume that someone isn’t really disabled just because you see them walk or stand sometimes.

[kenzodiazepine]

[iamthesuckdickforclogsgirl-deac]

this is literally my diet

[astro-vee]

to young disabled people:

when i was younger i used to think i wasn’t allowed to be picky about my relationships. i thought that the only appropriate response to someone showing romantic interest in me was overwhelming gratitude - after all, anyone who wanted to date a sick girl must be a saint, right?

wrong. there are people who will fetishize your disability, and there are people who will use you to show off how “good” they are for deigning to date a disabled person. and (i didn’t figure this out until i met my current partner) there are also people who will love you for who you are, disability and all.

it is not a burden to love you, and there are so many people out there who will do so without reservation. don’t be afraid to look for them.

you are important, and you deserve healthy, happy love.

[astro-vee]

💙

[iwriteforsoreeyes-deactivated20]

I learned the lesson this year after ending a two-year long relationship with extreme lows and mediocre highs. I gave my all to someone who gave me 10% 50% of the time. I have cut out so many toxic people from my life since then and I have really been focusing on me and doing things that I want to do. I’ve left my comfort zone time and time again - I feel so free now and I’m going to stay this way until I’m good & ready - until I meet someone who deserves me.

[spoonie-living]

Gosh, not to mention abusive partners! Don’t let anyone make you feel like you are less for your disability, that their abuse is the best you can hope for. Abusers will absolutely use your illness or disability against you, whether it be direct or more subtle.

Resources on relationship abuse (with a focus on emotional abuse):

Warning Signs and Red Flags —via The National Domestic Violence Hotline

The Cycle of Abuse Theory —via Wikipedia

21 Warning Signs of an Emotionally Abusive Relationship —via PsychCentral

You’re Not Going Crazy: 5 Sure Signs You’re Being Emotionally Abused —via The Huffington Post

Abuser Tricks and Warning Signs of Domestic Abuse —via New Hope For Women

And if you’re a dude or nonbinary, just an affirmation that despite the gendered nature of discourse on relationship abuse, you can be abused and your experience matters just as much.

[babyanimalgifs]

[nuchtchas]

Help Norm

This is being run by a friend of mine, help him, help Norm

This is Norm. Norm lives alone. He is a Korean War veteran. I met Norm 4 years ago and we bonded immediately. Recently Norm’s health has taken a turn. He was diagnosed with dementia. After a brief stay in the hospital the court awarded me guardianship of Norm. I’ve applied for veteran benefits for Norm and looked for a suitable placement for him. The good news is that between his Social Security benefits and new veteran benefits he can receive the care he needs. The bad news is that it will cost $5500 to get him in the door. Norm has no family to take care of him and I am determined to get him the help he needs. I took Norm to see the facility and he is eager to move in. If you can help it would be greatly appreciated. https://www.gofundme.com/help-norm

[chronicchillpill-blog]

I made a small one for chronic fatigue too, cause lmao.i have chronic fatigue as well. wouldve made it bigger but im exhausted.