SOLEIL · 25 · IT/HE · ♡ ⛧・・☆・・⛧ Disability & chronic illness centered sideblog, maintained by a multiply disabled slug. Also functions as a general comfort blog. ask · main ⛧・・☆・・⛧
☆ 25 years old. it & he pronouns only.
☆ xenogender effeminate T4T gay thing.
☆ white, norwegian, bilingual.
☆ physically disabled, neurodivergent, and autistic.
— ☆ welcome to my disability-focused sideblog, made by your local hypermobile rivethead latex-slugthing!
activity may be very on-and-off. I'm going through a lot of therapy, and may process or express my trauma through artwork from time to time. you can find this tagged under #mine.
I'm an ambulatory wheelchair user. I am on full disability benefit, and have been since I turned 18. I have undergone three major surgeries as of 2026.
due to the nature of this blog, I'm comfortable sharing certain health issues, since I'll occasionally talk about them & it recontextualizes my posts in a way I feel is important. yes, these are all either professionally diagnosed or acknowledged, though I am pro informed self-dx.
— hypermobile ehlers-danlos syndrome.
— severe bilateral nasal valve collapse with a deviated septum, inferior turbinate hypertrophy, and chronic rhinitis with chronic sinus headaches. my first surgery for this was May 2025.
as for other major surgeries important to me, I had a problematic femur osteochondroma removed in 2017. I also had an inguinal hernia repair done in around 2007-2008.
i love you paper plates i love you plastic silverware i love you ziploc bags i love you precut sheets of tin foil i love you disposable items that make my life as a disabled person more livable
I'm also really sorry I didn't really post much of that surgery journal irt. my nasal surgery. it was really rough like I pretty much did not sleep or eat for the first 4 days following because of the combination of antibiotics and steroids. maybe I'll talk about it more in the future
I've had braces since like what. May 2025 and they've just sucked the whole time man. there's always either been a wire slipping out, adjustments in my bite so big i can't eat without biting myself bloody, tight sore pain in my teeth, constant sores from my cheek getting caught in the wires, etc, etc, etc... I wish I knew how long I had to wear these because This Sux Lol
I really do want to make more art focused around medical trauma and life growing up disabled + autistic . . . especially as I come to terms with more aspects of mental illness and living life after trauma. I just need to figure out to create the things I want to create and say the things I want to say but it's so much easier said than done y'know?
“The axe forgets, but the tree remembers” is typically a very true statement. Unless, of course, you have moral ocd, in which case the axe has been haunted for weeks and the tree does not remember or care. In fact, many sources report that the axe, which is actually a plastic butter knife, has never been anywhere near a forest. And also there is no tree.
Hey did y'all ever think about that if doctors blame all fat people's medical issues on them being too fat without proper investigation and then feel justified in neglecting their medical concerns, then statistically more fat people WILL develop and potentially die from serious health issues and it might not actually be because of the fat when everything comes down to it
happy disability pride month and once again, FUCK lazy subtitles. fuck the [speaks foreign language] instead of actually transcribing the words, fuck shortening sentences and changing whats been said for no reason, fuck censoring swearing in captions but not in audio and fuck anyone who says youre being 'too sensitive' for being upset about a lack of accessibility
I forgot to update here, but my surgery yesterday went just as we expected!!! I've been dealing with a wicked headache as well as burning pain in my nose, BUT according to the surgeon I should start feeling a lot better by day four ^_^
I've had 2 major surgeries before ( osteochondroma removal, inguinal hernia repair ) but I've never had surgery like. in my face. I don't wanna delve into another rant about my nose and how severely affected I've been by medical neglect right now so I'm just gonna leave it at Oggghhh muy complicated emotions.
so far dental braces have been really easy to adjust to ! they haven't felt tight or made my mouth sore at all , it's just extremely annoying to get food stuck in the wires.
I also had a follow-up appointment at neurology! another neurologist agrees my spasm attacks suggest FND / FMD, but wants me to undergo more imaging before settling on a diagnosis so 💃
