anyway, my older sister was adopted when she was almost 16 (kinda on accident too), and because of that she got away from an abusive household, went from barely passing classes to being an honour student, and launching into a career where sheās happy and healthy and paying her own way. just two years of parenting where she had 3 meals a day, a bedtime, and parents to help and protect her changed her life radically. Plus, i got an older sister
people who say things like āoh you only have a few years with themā need to remember that these are human beings not a used car. every human being deserves a support system, a jumping off block, a safe place to return
Does that give the employee the right to post a photo of the girlās full name online in order to mock it ok? Absolutely not.
Apparently the employee had a habit of taking photos of people at work and making fun of them, and the mom only contacted the airline when she found that out. That is perfectly reasonable. The employee should absolutely be fired.
But also, donāt give your kids names like Abcde.
The only innocent in this tale is the poor kid who canāt help the fact her parents think naming their kid Ab City and spelling it Abcde is Acceptable
This is my daughter, Dessie. She is eight years old. In May of 2016, she was diagnosed with Chronic Kidney Disease, Stage Four.Her kidney f
This is the October 2018 edition of this post, and hopefully the final version.
Dessie is now ten years old. Yay!! For the last two years, sheās held steady at 22% total kidney function, in Stage Four Chronic Kidney Disease. At her last nephrologist visit, her creatinine has gone up. She says sheās tired all the time.
We think sheās tipping over to Stage 5 CKD/End Stage Renal Disease. Her next visit to the nephrologist is in December, and Iām expecting to get the diagnosis then. If not, great! But Iām not hopeful.
I think weāll need to make another trip to Seattle Chikdrenās Hospital then, so they can run their own labs and make her active on the deceased donor transplant list. Normally, Iāve been told by them, once a child is active on the last, they typically receive a donor kidney within six months to a year. So I think 2019 will be her year of the transplant. Possibly dialysis before then ā I know her local nephrologist wants to avoid it if we can.
The transplant itself requires we stay in Seattle for three to four months, with frequent follow ups afterwards. (First every month, then every two months, then every three months.). Each trip by car takes 6.5-8 hours each way, and usually two tanks of gas. Special Mobilty Services can help with gas, and lodging, if we can give them two weeks notice.
The transplant will be a journey in every sense of the word. I would love it if this could be fully funded before then.
If you have a spare kidney and want to try to be her living donor, hereās the Donors need to between 21-45, in reasonably good health, and O+ blood type. No smoking or drinking alcohol, not even occasionally. If this is something youāre interested, please contact the University of Washingtonās living donor program at 206-598-3627, and mention youāre interested in donating to Dessie McAdams. That begins the process.
Iām a single mom, with three kids. To deal with my hideous finances which have put us in the negative regularly since May of 2017, to get us back on our feet, we are moving in with my mother for at least the next year. Perhaps longer; she hasnāt put a deadline on it. I think Iām going to have to declare bankruptcy to get our from under, which will tank my already bad credit score. So Iām not sure of our prospects afterwards; if I could, Iād rather buy a place than rent, but even renting will be hard, with bad credit and high rents.
In the most immediate future, we need about $300-500 through October to either rent a dumpster or hire a junk hauling service to clear out the backyard, garage, and basement. Thereās a lot of heavy stuff my mom and I canāt handle.
This move to my momās also gets us away from my ex and his family, and Imbin the process of getting the parenting agreement modified to supervised visitation. He molested Dessie, by her account, sometime while we were married, around when she was 4-5. (I reported it to CPS and the police as soon as I learned of this, but as it was some years after it occurred, there was no evidence and they did nothing).
Heās also verbally and emotionally abused all of us.
His family may decide to bring in a lawyer for him with the requested change in parenting plan; I donāt know.
I guess what Iām saying is, once we move weāll be doing better than we have in a long while. But help is still needed. A miracle, even, if it could be so, to get us through her transplant and from there to a safe place to live independently. Please get this fully funded (or more) as soon as possible, if it can be done.
If you donāt want to use the GoFundMe, thatās fine. We also have
If using these, please let me know who you are and if youād like to be publicly thanked. Not all the apps are conducive to interactions, Iāve noticed.
We are incredibly grateful for all the help weāve received through tumblr so far. You guys have literally helped keep us alive.
If you canāt donate, donāt worry about it. If you donāt want to, donāt bother me about it. Boosts and reblogs still help, though!
Here, have a cute pic of Dessie with a plush kidney a mutual sent her!
Ā½/19 update: again, sheās now consistently below 19% total kidney function, so low officially in CKD Stage 5/End Stage Renal Disease.
Her doctor and I have contacted her transplant team at Seattle Childrenās Hospital to get her on active status on theyāre deceased donor list. They are supposed to get back to me on Monday. Once sheās active, we could get the kidney call any time.
Japanese child actress Mana AshidaĀ (little Mako) was embarrassed that she couldnāt pronounce Guillermo Del Toroās name so he gave her special permission to call him āTotoro-sanā instead.
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