Fund the Lungs

Helping to raise funds for lung transplant candidates Twitter: Fundthe Lungs Instagram: fundthelungs

[fundthelungs]

GROUP PHOTO! Thank you everyone for coming!!!! Party is still going! #fundthelungs #fundraiser #CF #cysticfibrosis

[fundthelungs]

The guest of honor @kcarlson90 and her husband @james_lvc #CF #cysticfibrosis #cfmom #fundraiser #fundthelungs

[fundthelungs]

our masquerade cocktail party is in full swing!!!!! Happy Halloween everyone!!!!! #CF #cysticfibrosis #halloween #fundthelungs #fundraiser

[hey-yea]

Ride for Life Orlando 2015 with The Hub Cycling out of Port Orange, FL. Check them out!

[heysarahsaurus]

Inspirational Cystic Fibrosis Photo Series Gives Hope, Raises Awareness

The groundbreaking book reveals the reality of living with cystic fibrosis.

OMG GUYS, THIS IS A BIG DEAL We’ve been getting a lot of media lately and that’s HUGE for Cystic Fibrosis awareness. (And my picture is in this one!!!)

[heysarahsaurus]

May is Cystic Fibrosis Awareness month! Cystic Fibrosis is a life-threatening genetic disease that affects primarily the lungs and digestive system, however it is affects many other aspects. CF causes a build up of thick mucus in the lungs which makes it difficult to breathe and prevents the cilia in our lungs from getting rid of bacteria.  Because of this, CFers experience many lung infections that require IV medications and hospitalizations.  To help prevent infections CFers are on many medications including anitbiotics, steriods, multiple breathing treatments, inhalers, nasal sprays, and require lung physio to help clear mucus out of the lungs.  On the digestive side of things, mucus production prevents enzymes from being released from the pancreas.  This causes improper absorption of nutrients and CFers combat this by taking several oral enzymes every time they eat (I took four).  These enzymes last about an hour, so you can imagine how many pills that alone can add up to.  Also, most CFers take vitamins since their body has trouble absorbing those as well. Keep in mind, this just touches bases of how CF affects those that have it, there are many more aspects.  Cystic Fibrosis is the second most common inherited disorder in children, behind Sickle Cell Anemia. Cystic Fibrosis is the MOST COMMON hereditary cause of death in America. The only way to help find more treatment options and a cure is awareness. Most people are unfamiliar with CF and that is one of the main reasons it is extremely underfunded.

I’m incredibly excited that I was able to be a part of the Salty Girls Project and that we’re getting INTERNATIONAL attention! And all as we enter May! We’re hoping to make it to Ellen which would allow us to spread even more Cystic Fibrosis awareness and body positivity!

[aspoonie-fullofsugar]

[wendycaroline91]

Journey to the Port

A month ago I made the decision to get a port. It was a long and difficult decision for myself to make for several reasons. There were so many pros and cons in my head, but mostly it had to do with...

[heysarahsaurus]

Ann Arbor CF Cycle for Life 2015: Sarah Wood - Cystic Fibrosis Foundation

I am fundraising for the Cystic Fibrosis Cycle for Life, please consider donating even a small amount, visiting my personal fundraising page, and sharing! Thank you!!

[cameronschuyler]

65 ROSES #cysticfibrosis #cysticfibrosisawareness #curecf #breatheeasy

[cystic5roses]

Did you order your copy of the new Salty Girls book yet?! Get on it!! http://www.ianpettigrew.com/salty-girls.html #saltygirls #thesaltygirlsproject #cysticfibrosis #cysticfibrosisawareness #saltygirlstastebetter

[fundthelungs]

If you don't know about Ian's work, you should!

[rockcf]

Jerry & Em completed their 500 Mile Bike to Breathe journey on September 24 in New York City!

The twosome crossed the finish line at New York Presbyterian Hospital to a crowd of supporters, doctors and friends. Jerry, Em and their crew departed Bar Harbor, ME on September 14 and biked down the east coast meeting fellow CF patients, families, friends and locals, spreading hope and inspiration with every mile. 

CBS New York was on site when they rolled into the city and below is a link to their coverage: http://newyork.cbslocal.com/2015/09/24/cystic-fibrosis-bike-to-breathe/#.VgVqN2dulLk.facebook

Thanks to everyone for their constant support for Rock CF, and all of our friends who are fighting the same fight!

[celebs-time]

RTÉ News: Cystic Fibrosis discovery may help sufferers

Gene therapy attacks the basic flaw of cystic fibrosis and owns the potential to reduce the classic and low-in-performance routine of medication for sufferers. For those who don’t know: cystic fibrosis is an inherited health disorder caused by a faulty gene. However, doctors are wary of…

[projectomegakitt]

Click here to support Carla's Cystics Fibrosis Journey by Adriana Blasini Hill

We are trying to make life easier for Carla . Carla was diagnosed with Cystic Fibrosis, a genetic disorder that particularly affects the lungs and digestive system. Kids who have it are more vulnerable to repeated lung infections. CF is a life-shortening disease. But thanks to research that has...

hey, i need your help. i do not know any of you, but imy young cousin needs help. she has Cystics Fribrosis. it is a fatal disease that is genetic and there is no cure yet and she needs money for treatments, she lives in venesuala and if you did not know there is alot of political and actual discourse in the country. More of the information of why the money is needed on the gofundme page linked on this post. even if you cant donate, sharing this post will allow more people to see it and to possibly donate.

[ambermichelle616]

Click here to support The Cizek Family by Keshia Cizek

I'm a single mom of 2 beautiful babies. My 7 year old daughter has cystic fibrosis and has been going through some really hard times over the last several months. Due to alot of medical bills, trips to the doctors and prescrptions, it has caused me to get behind on several of our bills. With only...

[sxewasted]

Doodling

[fundthelungs]

a photo of Karen. #cf #cysticfibrosis #cfmom #fundthelungs