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@aspoonie-fullofsugar
Granny meet sunshine! The past couple months of doing online surveys and rewards programs have paid off! I got this gorgeous radiant clicker for the cost of my time. I have been eyeing these tiny instants for a while, and even though I have my great grands Polaroid in to nervous to take that out and about. I can't wait to record some of my own memories with my new little buddy! 📽🎞
Okay I miss Obama too, but this is a bit much. I don't wear my political views on my sleeve much less over my arm. #thanksobama
Well I hope your day is going better than mine. That would be 5 of my 15 mg of prednisone you see sunk at the bottom of that bottle. These things always happy while I'm at work. BUT it was pretty impressive to see the pill fall from my hand and bounce off the table and straight into the bottle. It was one determined pill. #whataday #chronicillness #cysticfibrosisawareness #spoonie #medtime #organdonationsavedmylife #cfirl #cysticfibrosis I didn't want to take you anyway 👅
I hit an incredible mile marker in Pulmonary Rehab this week. I walked my first straight mile. I walked at 2.2 mph and it took about 30 minutes. The time may not be very impressive, but it took so much work to get to this point, and I can't wait until the weather clears up so I can walk outside. After receiving my transplant I had to learn to walk again and the nervous damage in my legs only added to that difficulty. Somehow I knew I would make it through everything, I had one small window of doubt and that was quickly shut out by a magnificent doctor. It's incredible how sometimes you just know you'll be okay. One or another, no matter how it happen you just know everything will be as it should. The decisions I've made in my life have led me to the road I'm on, and I will continue to skip down it picking flowers as I go. I am so lucky and my gratitude extends so far to everyone who's come into my life for helping me come to the place I'm in now. I've completed numerous runs and even then I never felt as strong as I do right now with my glorious 30 minute mile. It won't be long until that's back below 15 I'm sure, rehab therapist pending. . . . . #cysticfibrosis #cfirl #cysticlife #lungdisease #lungs #transplant #spoonie #chronicillness #cysticfibrosisawareness #organdonationsavedmylife #thankstomyorgandonor #organdonation #organdonor #running #fitness #mile #sick #health #run #death #pulmonaryrehab
But is there a better bath? Bath time today has been sponsored by Lush. #lush #fresh #bathtime #bath #relax #thecomforter
Just experienced my first optometry appointment and guess who has better than 20/20 vision in both eyes? It's me! Out of everything I've been through thank goodness one part of me is healthier than healthy! I was so nervous going into my appointment and to get my eyes dilated, but it wasn't bad at all. *Any spelling errors are brought to you courtesy of may dilated eyes.
It's my first day at pulmonary rehab! I'm a little bit excited to get moving and make sure these lungs can handle that half marathon in November! And would you look at this poster! When I was younger CF was never included on informational posters, it's incredible to see how far we've come. Awareness is so important! 💜 #cysticfibrosis #cfawareness #cfirl #lungtransplant #rehab #pulmonaryrehab #chronicillness #spoonie #rehab #exercise #awareness #lungs #cysticfibrosisawareness (at McLaren Internal Medicine Residency Group Practice)
Okay look at who is coming to the University of Michigan Hospital cafeteria! Okay Cat Cora may not be coming herself but her food is! It seems like the less I go to the hospital the better the food gets... and I'm still okay with that, but I'll definitely have to go into the cafeteria on one of my appointments to check this out. Let's hope it's reasonable and affordable. (at University of Michigan Health System)
It took longer than it should have because they lost my first set of labs this morning, but I really can't complain because I'm almost home! Shortest hospital stay EVER I was admitted less than 24 hours! It was weird being admitted without needing antibiotics and all that work up. And I'll admit it was good to see my friends there!
Well I've landed myself back in the University of Michigan, but hopefully only for an overnight observation. My bronchoscopy earlier didn't go as well as they had hoped and I had a bit to much bleeding. All in all I am feeling fine, this is just to be safe. I can't argue with that reasoning, everything has been going so well since my transplant this is hardly what I would call a bump in the road. (at University of Michigan Health System)
All ready to watch Rogue One with a whole CF squad! A huge thank you to @runningfatguy for hosting such an awesome event! With everyone together we can definitely rock CF! Also lovely to see the magnificent @rockcfem (at Emagine Theatres)
Oh just binge watching Elena of Avalor, might be in love with her now no biggie. And yes those are flamingo socks!
More windows going in! We're getting close to moving back in (I think). My mom has always wanted a bay window and now she will have one!!! It's so exciting! #remodelwarriors
Yesterday I was able to make my first appearance in the office I work in. It was my first time going back in several months! My health has kept me out of working condition for quite sometime now. I have been feeling ready to go back to work mentally for a bit but I am still having some memory troubles from the coma I was in, and I seem to have trouble staying away once it hits 3 O'clock. I'm not kidding I got home from dinner in the afternoon and nearly passed out. My mom woke me up at 8:30 pm so I wouldn't miss my evening meds, she even took my blood sugar and measured my insulin up for me. It's safe to say I would be lost without my mom there. After my short time in the office about 2 hours, a small handful of us went out to dinner together! Which I have been looking forward to for weeks! I went out for the first time in nearly 8 months and got all dolled up! I'll write more about it in my blog later! I don't have wifi right now so I'm a little limited! Anyway it was like a Cinderella night, full of laughter and fun and memories! Being together with people who make you laugh and bring out a carefree sense of joy is so important. Those people are invaluable in your life and should be appreciated everyday. I know I haven't appreciated all of those people enough in my life, but I am making an effort to do so more and more each day. I am privileged to call so many of those people my coworkers, they make work a joy and I can think of very few places I could find the same kind of happiness, nowhere I would be around people who make me happier. #gratefulemployee
Can't have breakfast without some meds to go with it. And look I can't even have my cereal without thinking about voting! * * * * * * #doublelungtransplant #transplant #cysticfibrosis #medication #election #voting #frankenberry #cereal #halloween
Just a little breakfast this morning before surprise Physical Therapy! I wish I could go back to sleep though 😴😴😴 #hospitallife #cfirl #aspooniefullofsugar #spoonie #cysticfibrosis #rehab #physicaltherapy #pt #cf #doublelungtransplant #transplant (at University of Michigan Health System)
I am so lucky the staff at my hospital is so kind! One of the discharge planners had her husband pick me up a frosty! I can't believe there are such generous people, it blows my mind really. Now I'll have to find someway to payback the kindness to someone else, it's a little difficult when I'm not allowed out of bed in supervised, maybe y'all could help me repay the kindness and do a kind deed for someone near you? What do you think can you help me out? Just be fun and spontaneous! #payitforward #cysticfibrosis #cff #randomactsofkindness #lungtransplant #bedridden #generosity #love #aspooniefullofsugar #spoonie (at University of Michigan Health System)