HEW YUH

Hey guys! My name is Jackie and it’s wonderful to meet you. This blog is dedicated to my fitness and health journey as long as I live. I’m not a health guru by any means but if I can learn and grow to take better care of myself then I’ll be very happy. Enjoy the pic of my adorable doggo

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Oh yeah, we also yeeted Fycompa out of my life so I’m going to be officially Fycompa free in a week

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You guys

Sooooo yesterday, we got a little closer to finding out what was wrong with me. My neurologist said that I have a general seizure disorder and that she knew which medications to put me on because of the activity picked up in my EEG. Wellll fast forward to today and now I have taken double the dose of my Keppra because of a miscommunication between me and my neurologist. I feel fine for the most part, but I would be lying if I said I wasn’t worried about a breakthrough seizure

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Christ man...

Well the symptoms of Fycompa have taken a serious turn. I don’t know how to feel, you know? This medicine clearly isn’t working but I also don’t want my doctor to think that I’m not giving my medication a chance to help. I’m stuck between a rock and a hard place...

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Alright Alright Alright

I officially started going to the gym 4 days ago and I’ve already lost 6 lbs. I know it’s only water weight but ya girl is only 14 lbs away from her first small goal. I’m so excited!!!!

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Well...

I’m having another issue with my medicine. Apparently Fycompa causes panic attacks and that’s one of the symptoms that can cause you to get off the medication. I’m going to talk to my doctor on Monday and see what she says. I don’t know. I really wanted this to work and I wanted to see that I was getting better. Maybe I’ll go get a psychological evaluation before getting off, just to make sure it’s the medicine.

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Also can we talk about how I’ve lost a few pounds! Baby steps but every little bit counts and every little bit is mine!

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Boring as Hell!!!

So I had my neuro appointment today and it was fucking boring muh dudes! No new allergic reactions, no new abnormal signs, no new medicine! Even better my petite mal seizures have decreased! Ahhhh now all I have to wait for are the results from my EEG. Hopefully they find something abnormal on there to explain why this is happening.

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Ayy?

Well I was unhooked from my EEG, and there’s no doubting I’m allergic to the glue. I took some Benadryl and luckily the rash is going down, soooo hopefully that’ll go away in a few days. On the bright side though I’ll get my results in a week!

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I feel really sorry for anyone who ever has to get a multiple day EEG

Seriously, they’re horrible. It doesn’t help that I’m allergic to the glue they use to put the electrodes on.

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I’m not allergic to the glue, but it’s still shitty. I’ve got one more day to go

Edit: Jk I woke up with a rash on my ear from the glue :’) now I really feel this post

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Guys. I’m so tired. I can’t sleep. My head is super itchy and I keep tossing and turning. I don’t know why but I feel so anxious and sick to my stomach. Maybe it has to do with my current set up being uncomfortable, or maybe I’m just getting anxious because it’ll be over soon. I just want to sleep

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Ayyyyy

Today was the last day I take Lamictal!!! This medicine (though it curbed my petite mal and grand mal seizures) sent me to the hospital with the possibility of septic meningitis. It sucks that something that was working turned out to be dangerous for my body, but I still have hope with Keppra and Fycompa. Needless to say I’m happy I’ll be finally Lamictal free starting tomorrow!

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I think I’m going to start taking steps to train my dog to be my service dog. She looks like a goofball, but honestly she’s so smart and sweet and I know given the proper training she would be able to help me. I can’t really be left alone and I know that my loved ones in my life would be able to breath a little better if I had a watchful, trained eye with me at all times. Now it’s just where to begin

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Day 1 of getting better. I started my at home EEG today, and I’m hoping that at my next doctor visit we can find anything that can explain why I have seizures. I’m keeping my fingers crossed!

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Heyyyy

Sooo I’ve never done anything like this before, but here we go. So I’m currently 170 lbs at 4’ 11. I’ve known that that’s unhealthy but often haven’t felt the health consequences related to that. It wasn’t until I began to see how my epilepsy was already wearing down on my body that I thought to take action. I have issues with my disability, but that doesn’t mean I can’t better myself and learn to care for myself in every other aspect in my life. My body fights every day for me, so the least I could do is help it out. I hope to lose 60 lbs, and reach 110 lbs within the next year. Though that number can definitely fluctuate, I know that that is a healthy goal for me without going over board. I hope that within the next year I can celebrate my future successes here.