Prayers for Lennon, January 2024
To our family and friends,
This month is a big one for our family, especially for Lennon. He will be going in for a follow up CT scan tomorrow morning at Beaumont RO. This scan will show us whether his lungs have worsened, healed, or stayed the same. It will be the first time we’re seeing the condition of his lungs since August. The last scan showed an abnormal result — lots of holes and scarring on his lungs. We have been waiting for this scan and praying so hard to see improvement in his lungs. We want our baby to be on his way to healing and to experience life without the need for supplemental oxygen if it’s in God’s will for him. More than that, it’s our hope that this scan will give his pulmonologist and team of doctors new information. Up until now, they’ve been clueless in how to treat Lennon’s lung disease. We are hoping this scan offers new insight that gives his doctors a new angle to consider. We are anxious yet hopeful about his results and would appreciate prayers for strength and peace as we wait.
Following his scan, we’d also like to ask for prayer for Lennon’s upcoming appointment at C.S. Mott Children’s Hospital / UofM on January 9th. We are seeking a second opinion at UofM and we’re praying so hard that there is a doctor on their pulmonology team that has seen or cared for a baby like Lennon before. His lung disease is not a common one which has made it hard to find care for him. We are praying for just ONE doctor who knows how to treat Lennon or at least point us in the right direction.
We are growing weary from all the uncertainties. We don’t know what type of lung disease Lennon has or how severe it is — only that it’s interstitial lung disease (an umbrella term). We don’t know how life threatening the disease is. We don’t know how long we have with our baby. My own research tells us it’s between 3-5 years for babies born with ILD. We don’t know if he’s in pain or if he needs immediate intervention to give him the best chance at a long and healthy life. We need some definite answers to be at peace. We don’t want our baby to suffer more than he has to if there’s something we could be doing to help ease his pain now.
We’re preparing ourselves for changes following Lennon’s pulmonology appointment at UofM. We don’t know what will be required of us once he’s an established patient there. Whether we’ll need to make the commute to Ann Arbor often, or have Lennon readmitted for observation, or even be turned away…we’re just praying that the Lord provides us with what we need for every outcome.
Please pray for these specific things and anything else you feel led to pray for. We are so grateful for each of you and we couldn’t do any of this without your support and love. We will update you as we receive his results and process what it will mean for our family. Thank you so much.
All our love, Gloria and James