indefinitely, possibly in perpetuity. because im lazy and indecisive and keep jumping between my interests and making sideblogs for 'em.
ABOUT:
k. she/they. ~30.
australia (acst), living on unceded meru land.
white. cis woman. bi. peer-diagnosed autistic.
personal, plants, funnies, tv & movies, art
idk, just a good ol' mixed bag
SIDEBLOGS:
@starletown - coral island
@pelicantownie - stardew valley
@mytimeintown - my time at portia & sandrock (& theoretically evershine but pathea's on thin ice there)
pedestrians don't seem to realize how exhausting using a wheelchair is, both manual and powered. i had to wheel around a hospital today with several ramps i had to go up and down multiple times, and even with my smoov i ended up with shoulder and chest pain and deep exhaustion.
people look at wheelchair users and think "well you're sitting down all the time that doesn't take effort" no actually it does. pushing a manual chair takes a lot of fucking effort, especially without a power assist. repetitive stress injuries are a huge problem manual chair users encounter all the time. going up hills and ramps is so deeply fatiguing.
this doesn't just apply to manual chair users btw. power chair usage can also be really exhausting, especially for people with complex seating needs. going over bumps and cracks can trigger many symptoms such as spasticity, pressure sores are common, even just sitting upright can be exhausting for many people.
basically don't assume using a wheelchair takes 0 effort, it really really does. getting to "sit down all the time" doesn't mean it's easy.
im gonna need you able bodied motherfuckers to stop comparing the extreme pain and exhaustion that comes with using a manual chair to being in a car for 8 hours. not even remotely the same thing.
“It just means you have to work double as hard as most people!”
Well maybe I don’t WANT to work double as hard as abled people!! Maybe I deserve a BREAK!! Maybe I’ve been working MORE THAN double as hard for MY WHOLE LIFE and it’s led me to immense burnout & caused me to develop several MORE disabilities!! Maybe I should be ACCOMMODATED so I don’t have to KILL MY BODY AND BRAIN over trying to do what abled people can do!! Maybe I DON’T have to work double as hard!! Maybe if there’s the option to let me NOT work double as hard, I should have it, because I’m already working double as hard JUST TO SURVIVE!!
Why do you think disabled people deserve less rest than mentally & physically abled people?
going into sims mode for a while. if anyone has a simblr or wants to see me have ideas i don't follow through on, and get glimpses of cas makeovers and creations, i'll be over @llamallagoon more often than this account (and sideblogs) xx
fucked up that a business can just. wait until the last day of the working week to tell you whether or not they're keeping you on for the next week of work. bc then you cannot plan properly for either outcome. and also the work week is 7days so if you find out it's another week then that starts The Next Day and if you find out it's Not then that's The Next day of work at another site that you have to miss bc you didn't have the time to prepare and pack up stuff in advance.
does anyone have experience taking combined drospirenone & ethinyl estradiol contraceptive pill? i know what im experiencing on them cannot be normal, but im curious to know if it's at all common.
i started on it back in february (2026) in an attempt to better manage pmdd symptoms. previously, i had been on a ethinyl estradiol & levonorgestrel pill for...years. like, just shy of a decade, i believe. now, i know myself well enough to expect my body will take quite a while to adjust to a change or new medication, and that i am sensitive to hormonal changes, so i was prepared for it to take a while to settle in my system.
initially, the frequency of my (non-aura) migraines did increase, but pain levels were mid-range and there were no other new symptoms, so i knew that was okay. i was advised and instructed to skip the sugar pills and just totally skip my menstrual bleed, which i attempted during the first month... and proceeded to experience ~6weeks of PMD/PMDD physical and emotional symptoms, until the next week of sugar pills came around (which i waited for because i didn't know it was going to last that entire time, and thought it might have stopped sooner). had my next period. in addition to standard PMDD emotions continuing, i experiencd tender breasts before, during, and a couple days after for the first time in about 10years.
this seems to continue each month and each cycle. the PMDD symptoms are sort of...mildly improved overall? but it's hard to tell when it's inconsistent across cycles, and when im still getting migraines in line with when my body seems to THINK i should be having a bleed, and the return of tender breasts, worse cramps etc has persisted til this 6month mark.
also, i started spotting back in...may, i think? and it was just spotting, to begin with. and it continued. and contnued. and continued. and i decided to take the sugar pills and have a bleed to see if that would get it under control. it didn't. i have been bleeding light-to-medium flow levels nearly daily. in the past 2-3days it has become HEAVY and ive started losing clots again, for the first time (consistently - had the odd one here and there, and without associated pain) in over 18months. i have low-level cramps all the time. i tried taking 2 pills per day for the past month in case it's a low dosage issue, made no difference. it's like my body has just decided to completely ignore the drugs im putting into it and the effects these hormones are supposed to have.
things ive read seem to indicate that any spotting or 'breakthrough bleeding' tends to happen earlier, when starting out on he medication, so it seems particularly weird that mine started well into the new regime.
edit to add: have also been on tranexamic acid a couple times but im unsure what if any difference that has made on this new BC. it was certainly helpful previously, but doctors were reluctant to prescribe it again after i got it the first time? so switching to the drosperinone/ee pill is only the 2nd time ive been able to get it and there's been so much else going on with my body ad mind and cycles that even though i DID take it and it PROBABLY was helpful, i cannot say for sure.
My most diagnosable take is that honestly. As much as people in social justicey spaces talk about exercising your empathy ... there's also value in being able to turn it off so you're not extremely susceptible to emotional manipulation. Sometimes you have to be able to recognize "oh, this is bullshit propaganda trying to tug at my heartstrings" and stop giving a fuck about like. Colonizer feelings or whatever. Vibes can't override your principles
Like idk being niceys is a good start but your politics can't begin and end with 🌈 kindness 🌈 or you're gonna get taken advantage of. The worst people on earth will be like "but what if........ I have a sob story about it 🥺" & you Need to be able to tell them to Fuck Completely Off
There's a certain strain of ... Everyone Is Valid 🌸 style pseudo leftism that ime invariably caters to whoever throws the biggest tantrum. And this is a Problem interpersonally & it's especially bad if you let these people dictate your opinions. Not everyone is valid some of you are racist
tbf I think my thoughts on genAI fall more into the fact that it exists as the culmination of multiple different preexisting systems/beliefs within global culture (capitalism, exploitation of the environment for profit, belief that it's easier to market something to someone enough that they buy it rather than creating a product that is actually needed) but it's a lot easier for people to manifest their feelings and thoughts towards these systems as blaming individuals for personal choices, rather than admitting that what we're seeing is the manifestation of a world where individual consumer choices simply do not matter in the long run as long as investment companies and stocks traders still believe a product can be viable, independent of actual use or profit. the ableism aspect imo is another manifestation of that, it's easier to see your "enemy" as "weak willed" and "stupid" (which wouldn't you know, tends to end up as prejudice against disabled people after a point) than admitting that the systems themselves that we live in have created an environment for genAI to thrive – one that relies on people to dedicate their entire lives to a philosophy of working as fast as possible to create something that can be sold, irrespective of it's actual enjoyment or usefulness.
Yes!!! I'm all for criticizing AI as an aspect of criticizing capitalism and other larger trends within our society, my problem is the amount of anti AI people who aren't doing that and are instead focusing their anger on how lazy and morally inferior people who use AI are
To those who escaped abusive homes and are now the "evil child who refuses to see reason" because they are no contact with family, you deserve freedom. You deserve a life your family doesn't have access to. You aren't evil. You deserve love, peace, joy, and comfort. I am so proud of you.
here we go again @grccndale - Tumblr Blog | Tumgag
