Can we discuss this for a second
Ok, so underrepresentation in the media is a problem for a lot of different groups and minorities, but there's one particular thing that bugs me more that anything.
So I have an ultra rare genetic disorder, what does that mean you might ask, well my friend, that means that less than one person in even 50,000 people has been diagnosed with it.
Now this might seem like the minority of all minorities, but you know what?
THERES SO MANY DIFFERENT ULTRA RARE DISSORDERS THAT ONE IN EVEN TEN PEOPLE HAS AN ULTRA RARE GENETIC DISORDER
Now at this point you're probably thinking
"Sarah, that can't be true, I don't know a single person with a genetic disorder"
Well guess what bitch, you're wrong and you don't even know it, because most ultra rare genetic disorders are invisible illnesses, which means they're not something you can see from the outside that has a lot of outward symptoms, it's a problem that takes place almost exclusively inside the body with almost no outward symptoms, especially when they're not having any sort of outbreak, or relapse. So chances are you know quite a few and you don't even know it because
And now you're probably thinking, "oh well then that would be impossible to portray in the media-"
Have one of your side characters get an infusion while the main is at their house, have your main taking pills and their friend isn't sure what they're for so they explain, have them get excited for national rare disease day (last day of February every year), have them advocate for awareness, there's so much you could do with it.
With the rise in awareness for LGBT+ and different races and different genders it's time we stopped ignoring such a large part of our society.
Just because our disorders are invisible doesn't mean we have to be
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