hey friends, if you don't want to see spoilers for the new murderbot book you can block the tag "murderbot spoilers." I'll use that for anything I reblog about Platform Decay :)
d e v o n
Keni
PUT YOUR BEARD IN MY MOUTH
we're not kids anymore.

#extradirty

shark vs the universe

bliss lane
Xuebing Du

oozey mess
KIROKAZE
Stranger Things
The Stonewall Inn

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Claire Keane
noise dept.
NASA
2025 on Tumblr: Trends That Defined the Year
No title available
EXPECTATIONS
Lint Roller? I Barely Know Her

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@inappropriations
hey friends, if you don't want to see spoilers for the new murderbot book you can block the tag "murderbot spoilers." I'll use that for anything I reblog about Platform Decay :)
being an adult is always like i have to go to the store i have to go to the store i have to go to the store
Engineering teams around the world have been attempting to develop new methods of seawater desalination.
Scientists in China have developed a more efficient form of solar desalination that uses 47.4% less energy than alternatives. After the first year of testing, the scientists believe that at scale it would be able to desalinate water more cheaply than producing bottled water.
The goal is now to scale the technology for use in coastal areas and islands experiencing water insecurity.
since we're on the bad faith interpretations and doomerism website let me preface this by saying i myself have also been a victim of the usamerican healthcare system and understand how crazy awful and expensive it is to get good care, or any sort of treatment at all
but there is a sort of medical doomerism that exists because of these difficulties that i think actively dissuades people from getting the care they deserve, and this issue compounds on the other issues and really needs to be addressed. despite how doctors may act to you, you are the expert on your symptoms. not necessarily what is wrong with you, but what you are experiencing, and you are allowed to say no to your doctor. you are allowed to get a second/third/fourth opinion and shop around until you find a doctor who believes you. in fact in my shopping around i have found a lot of doctors love it when you throw other doctors under the bus, if worded strategically. it's very similar to that strategy of "well my friend thinks it's this," it puts you and the doctor on the same side of trying to rule out or confirm an issue against an unrelated third party.
again, i understand the barriers. it is expensive and time consuming. not everyone can do it. yes. i understand. but it is possible to get a doctor who believes you and actually get treatment for your problems, and that is something you deserve, and it also something you need to believe going in or you're going to give up before you get the chance. it is exhausting and demoralizing to wade through the bullshit, yes, but there are good doctors trapped on the other side of this system who can get to you if you keep trying as best you can. it's not easy. it's not accessible for everyone, which is a huge part of the problem. but it is possible.
more people really need to be taught about how to feel a sense of agency as a patient. the fact no one teaches or explains this to us is a huge issue. but one of the first things I learned after my hEDS diagnosis (that other people! including doctors!) told me was I am the captain of my own care. Every doctor I see is part of a team of people I consult with regarding my symptoms and care. If they're not a good teammate, you can get another one. Shifting this worldview has dramatically changed my relationship with healthcare and the efficiency of my own doctors' appointments, which radically improved my care.
i dont know. like, guys. i have a complicated relationship with this. on top of hEDS, i was born with a rare condition that's about 1 in 10,000 births that would have left me blind had doctors not intervened quick and early before I was even a toddler. I grew up seeing a doctor every four months who meticulously tracked my extremely rare and specific issue that could take a nosedive at any time. i saw him every six months up until is 30-year retirement. at the same time wading through all the bullshit that was the rest of the system. i have a hesitancy to write off doctors and the healthcare system as a whole because the work of doctors shaped my entire life and quite literally how i see.
it is possible, and you do deserve the care, and you cannot let the hopelessness talk you down from getting something you deserve, or even imagining that you can.
And like. I don’t disagree. I need to have more agency. I need to advocate for myself more (I shouldn’t need to, but that’s a separate problem; we’re addressing the world I actually live in, today). But I don’t know how. As you say, nobody teaches us, and I don’t know where to find help, and so I can know that I need to do those things, and still be unable to do them.
So if anyone has tips, or scripts, or resources, or anything else that will help me pick up an entire new skill set when I don’t have any spoons to spare…
please. Please drop them here
Absolutely. I really feel your pain on not having the spoons. It's part of why it took me so long to get help, I had to take extended breaks just to rest and recuperate. My post was just kind of brain vomit, but dropping resources here is great for anyone who has them.
Even though they are EDS focused, the Ehlers-Danlos Society really has their shit together and their resources and advice help way more than just people with EDS. I think because EDS is such a chronic, full bodied, systemic, and under-diagnosed, invisible issue, any resources that apply to folks with EDS are also really good for just chronic illness in general.
They have an hour long video on their youtube channel about having more effective doctor's appointments:
Other articles/pdfs I found from a cursory search that kind of dive into the same information:
How to Get the Most Out of Doctor's Visits
Mastering Appointments Successfully With EDS
Again, it's not about the label of the illness. These tips will apply to anyone in any situation.
Biggest things I started doing immediately that helped:
Daily tracking of symptoms. Whether this is through an app like Bearable (which I highly recommend) or an old fashioned way like a journal. Not only does this give you a better understanding and documentation of what's going on, but a doctor is way likely to give credence to a specific statement like "I have had a migraine that lasted at least 4 hours roughly 3 times a week for the past 4 months." That is a measurable thing that helps them, like scientists, address in a concrete way.
Bringing a notebook to every doctor's appointment. I have a full on medical journal now. I prepare questions for my doctor and write down everything they say. I start the appointment by saying "Do you mind if I take some notes while we go along?" This not only helps hold them accountable (and gives you control so it's not just them writing the narrative in your clinical notes), it also can give the doctor peace of mind that you're a patient who is listening and may take their recommendations seriously.
Always review your post visit summary and clinical notes. They are required to make this available in some way. If there's something inaccurate or missing, call and tell them. You have a right to your medical history.
Along that line, I printed out my entire medical history and keep it in a binder divided in sections by specialist. When I'm having a suspicion of an issue, I go through that history myself and take note of things in the history that may be relevant, and point them out to the doctor during the appointment. It's important that you frame this in an inquisitive, not an accusatory way: "it took me about a year to heal from an injury as simple as jamming my finger in a door back in 2023, and my xray came back normal. If it's not a bone issue, do we think this is related to my hEDS?"
When it comes to note taking and communicating with my doctors, I've found it's useful to think of myself as a little science experiment. I am a scientist taking notes on myself. How would a scientist document this? This really helps your doctor have something to aim at. It also really helps you articulate exactly what's wrong and even remember all the things wrong with you if you have brain fog or an overwhelming number of symptoms.
It's unfortunate that it's on people who are ill to do this kind of work themselves, but that's part of what's wrong with the healthcare system to begin with. Doctors usually have like 30 minutes to address a single issue per appointment. Even though in an ideal world, a doctor would be able to carefully comb through your history and specific circumstance, the reality is just not there. It unfortunately falls to the ill to advocate for themselves. If that's very overwhelming (it is), remember that you're allowed to bring a friend or loved one to an appointment and have them help you. I brought my mom to my hEDS appointment and I think it's a big reason of why I got diagnosed so quickly.
I am truly truly wishing everyone well on their health journey. You deserve good care.
[ ArtFight 2026 ] [5] Chimeric Deity
for woofee66
all babies are baby gender. you dress them stupid, in pumpkins and teddy bear suits
One year ago today I posted this practically shot Iron Giant photo I created using real figures, lighting, miniature sets & my trusty old tin foil for water technique & cotton wool for the splashes.
You and your spouse have been married almost a decade. Your spouse has several bank account, credit cards, and small investments that they haven't shared with you. your finances are separate, save for a groceries account they mete out specific amounts into. You didn't agree to this arrangement, you just didn't really get a say. You've had chronic illness for a while so work has been patchy. You're struggling to cover your cell bill and bus fare in slow months. Your spouse wants to solve this by giving you an allowance ($65/mo). This kind of financial arrangement in a marriage is:
Totally normal, I see no problem with it.
Unusual but not my business.
Questionable.
Worrying.
Secret option (put in the tags)
Wow. I was not expecting the massive response this post got, but thank you to everyone who's been filling out this poll and/or commenting on it! I feel like maybe I should give some clarification or context?
I posted this poll because my spouse thinks the above arrangement is reasonable and their prerogative. They feel that what is theirs is theirs, and they don't have to share it with their spouse, and wouldn't expect me to share what's mine with them if the tables were turned. I deliberately avoided using language in the poll that made any of the responses leading, because I didn't want to influence the results. When my spouse and I have arguments about how few of my basic needs they meet, and how vulnerable I feel, they tend to dig their heels in and insist that defining what a partnership looks like is up to the individuals and it's ok to deviate from the norm (which I agree with in principle, but only if both parties agree to the arrangements and can do so freely, not through coercion), and sometimes I genuinely feel like I'm crazy for thinking that there's a basic standard we get to expect from each other mutually, not in this one-sided way, and that my partner is being being both neglectful and controlling at the same time. I posted this poll because even when my spouse makes me feel like I'm being unreasonable, I know in my gut I'm not (not least of all because we very much did talk about our expectations of each other in both the best and worst potential situations, and what they promised me is not what I'm living now).
To see how many people have responded by straightforwardly calling this financial abuse, and to see how few people see this as normal, is validating to say the least. I've begun the process of building myself a life raft out of this situation, and I think I needed to see this feedback - so many strangers responding to what I hope is as neutral a summary of the situation as I intended it to be, and still calling it like I see it.
What I didn't put in the above poll is the even crazier stuff: A few years ago I ended contact with my abusive family, and my spouse promised to take care of me. Not long after they stopped giving me emotional support and asked me to seek it from my friends instead of them. When my computer, my main work tool, suddenly stopped working, they would only help me pay for a new one if I paid them back for it (they put me on a payment plan, but it was better than a bank loan because there was no interest and they let late payments slide). I also contracted a serious chronic illness because my partner was careless and ignored my existing health issues which made me vulnerable, and they failed to take care of me to the point I wasn't even eating properly while in bed with a fever, and for months after. Any support they gave was won at the cost of arguments I didn't have energy for, and reluctantly, but to friends and family my partner presented themselves as a caretaker.
I've struggled to work steadily and most of my limited income went to repaying the cost of my computer, so I depleted any savings I had left after the pandemic. As a result I sometimes couldn't even afford basics like toiletries or even clothes (I once showed up half an hour late to a doctor's appointment because the zipper on my only jeans broke and I had to wear a skirt in the freezing cold), and my partner, while expressing sympathy verbally, didn't take any action to offer tangible support, ie. buying me a new pair of jeans. I didn't have my family to rely on for safety and support. Anything I want or need, whether it's a necessity or something like a trip to visit family or friends who all live far away, I have to meet my partner's parameters since they're the one footing the bill. It took many arguments and detailed explanations of my difficulties and expectations before they would give me basic support like a one-off clothing purchase, and even more negotiation for it to be given in a way that allowed me autonomy in decision making (ie. they handed me a limited budget instead of going shopping with me or asking me to run purchases by them first).
I've given my partner a lot of leeway because they're struggling with several simultaneous neurodiversities and they tend to be passive observers in most situations, rather than active participants. I can see the ways in which they struggle to understand my experience because of their NDs. It has also been several years now since their diagnosis, and they use their ND as an excuse, but won't seek support for it. I have to do the emotional heavy lifting for us both, and if my expectations of them feel reasonable to me, it doesn't matter because if it's outside of their comfort zone, even the simplest things become contentious and they get the final say, since they're the only one in the relationship who have financial independence right now. I have no access to, nor do I get updated on, any of their bank accounts or savings (worrying in case of an emergency), except for a debit card which has a set amount on it at any given time and is only for groceries and recurring bills.
My spouse will give me information on their financial standing occasionally if I ask, but they are very hesitant and reluctant. I have a bank account of my own, and my spouse has asked to see my monthly earnings for the purpose of understanding my needs, but I'm hesitant to show them because of how much of my trust they've compromised, and how private they've always been about their financials (not to mention that it indicates they don't trust me to state my needs reasonably and reliably). I believe that everyone in a marriage should have at least one personal bank account, but our finances aren't shared at all, save for the one shared groceries/bills account. That account does, however, include medical costs, and as long as my spouse approves the spending, I can use it for things like amenities.
I don't know if I will show my partner this poll, but it's really good to have in case I would like to. It shows what I've been saying to them for a very long time, which is that my expectations are based in widely socially accepted ones that most people are aware of, and while I want to respect that my partner's ND may preclude them from having understood this, I also feel it's reasonable to ask that they accept that I'm not unreasonable in having these expectations (especially since they had justified this with commitments they made when we got married and have since broken).
It's been well over a year since this post and I wanted to add an update:
I never did show my spouse this poll, but what I did do was go to
A lawyer
A domestic abuse non-profit
A government agency
and had all three confirm that the situation was economic abuse. It took me several months but I scraped together enough to have a consultation with a divorce lawyer and learned what my options were. I wasn't expecting to get much - even though they'd have to either sell our home and give me half of what he got for it, or buy out my half, I didn't think they'd be willing to do the former or have the money for the latter, but I could at least get alimony and I could take care of my needs and my health problems better and get away from the stress of the marriage. So I asked my spouse for a divorce.
The divorce process itself was... illuminating. I found out that my spouse had several massive savings accounts they had conveniently forgotten to tell me about. And what was lucky for me, they didn't seem to understand that in a marriage all things are legally shared. They seemed to think that if something was only under their name, it was theirs exclusively - like putting a label in your clothes for summer camp. So they didn't secure any of their accounts, and most of them consisted of funds accumulated during the marriage. Not long after that came to light, they moved out (their ND includes being severely conflict averse and you can imagine things became... tense). It took a long time until I could start to relax and feel like I could be safe again.
In the end I walked away with enough to have a safety net. I bought an apartment that meets my disability needs, and have enough to live on for a few years while I get back on my feet (though hopefully it won't take that long). Moving, and doing all this on my own was really hard, but luckily I've had wonderful friends who've helped me and been incredibly supportive. I still feel like I'm putting myself back together and finding myself, but am doing worlds better.
Thank you to everyone who commented and reblogged and added tags - that massive and unapologetic naming of this situation as abuse was so so validating and meant the world to me. I was significantly luckier than most people facing a similiar situation and found a way out. I hope you'll consider donating to one of these domestic abuse non-profits if you're able to, to help others who are struggling:
If you want to volunteer with domestic violence nonprofits, make donations, fundraise for them, or gather information, this can be the ultim
Costume appreciation series: The Adventures of Priscilla, Queen of the Desert (1994) dir Stephan Elliott
Costume Design by Tim Chappel and Lizzy Gardiner
MORE ARTFIGHT ATTACKS! Lizard edition! Going crazy drawing nothing but RW lizards because I think they're so lovely!! Same goes for those's OC's I drew <3 OC's belong to (in order) @kelocitta @/CHATTERPIE (on ArtFight) @/Comets_art_stuff (on ArtFight)
Bonus of my OC and her mama:
you’re allowed to be a boy btw. You’re allowed to be a girl. You’re allowed to be both or neither or something else entirely. You’re allowed.
Dyke March London 2026
** TERFs, SWERFs, transmisogynists, & the like who interact with this post will be shamed & blocked 💖 **
Came across this art installation, Liza Lou's Kitchen, at the Whitney Museum of American Art, NYC. It's a kitchen made of tiny glass beads, that artist Liza Lou did, taking 5 yrs. to complete, from 1991 - 1996.
My favorite part is the sink.
imagine a goat with a hat
STOP-
what hat did you give the goat what is the instinctual hat you gave to this goat
(via bsky)
In case anyone hasn't heard, the cyclospora outbreak affecting tons of people in the US right now is coming from Taylor Farms produce. Best to stay away from bagged lettuce and prepared salads completely right now, but especially the ones mentioned in the screenshot:
Taylor Farms Earthbound Farms Little Salad Bar (Aldi) Marketside (Walmart) Kroger House Brand Target private label greens Costco salads and greens etc Trader Joe's chopped salad kits and fresh produce Fast food: McDonalds, Taco Bell, (Yum! Brands), Chipotle, Subway, Pizza Hut, KFC, Olive Garden, Top Golf, Red Lobster, Burger King, etc.
This is not the first time I've heard about a Taylor Farms foodborne illness outbreak. I stopped eating their salads after reading a description of the conditions in their facilities. Doesn't sound like they've improved anything.
We need a fully funded and staffed FDA, and regulations with teeth - and that's exactly what we don't have under Trump. To make things worse, the CDC is no longer tracking these outbreaks. We're on our own.