Jennifer Jensen @jennleeanne-blog - Tumblr Blog

tag yourself as a Macbeth quote part 2 im worm: little serpent,

#omg i can't pick i want to be all of them no wait i'm exit ghost

#Hospitalglam is anything but easy.

We know this, but I’m telling you anyway.

In this room I held tight and told the nurse,whose needle cleared my vein despite warning, that I needed a different person to finish the test. She was harsh and dismissive, which would have been especially unhelpful in a test that records her observations.

The timer on the phone’s shutter had been counting down with the nurse kept just out of frame. I stuck to my needs through her clumsy needling. She told me the test would take longer, it would be worse with someone else, I was making it harder; I still asked for another nurse. When she left the room, I wept openly and sat up, my right arm leaking blood where her mis gauge went through my veins. That is the moment you see above. It does not look hard. Photos lie this way, showing only a splintered second of the experience.

The second nurse was great and I went through the test without further injury. In hospitals, we often risk further injury. It takes a lot of unseen work to get through. I do this work to survive. For every bit you see, there are a thousand hours you don’t. I won’t stop, because the work is integral to survival. We must live.

Every person who participates in the project is doing their own work. When I see others participating in the project by taking up space, both in their medical environments and social media streams, I recognize the unseen work that goes into it. It is brave to open yourself. The decision to be open and represent your life as it is, helps remove the fear for so many others who aren’t there yet. I am rooting for you. I love seeing people stop tagging when they’re not in for awhile. The full texture of your lives are beautiful. I have so much respect for all of you. Thank you and keep going.

xochronicallyyours-deactivated2

I feel a little less bad for crying after like every appointment I’ve had in the last two weeks now.

hospitalglam

It’s really hard!

I see you. There is a giant community here going through their own versions of this. We have your back.

maternalcube

fave garnet moments, in no particular order:

“oh! steven! theres one more thing i have to mention!” “what is it?” “i love you. bye.”

that giggle at the beginning of the answer

“hello, this is mom universe”

literally all of jail break

all of the answer, too, while im at it

“we look awesome”

you know what? all of chille tid too

“i see so many things that can hurt you. i should never have let one of them be me”

when steven asks if she brought him anything and she hands him a rock

“im percy and pierre”

“my power means nothing to an infant”

autisticthassarian

“tiny hands! my only weakness.”

asdanders-deactivated20160906

the time she jumped out a van because she didn;t like greg’s music

it makes me feel…important

explorersofsky

how could you forget the most iconic garnet moment

shikai-the-storyteller

Let’s no forget these gems

“All comedy is derived from fear”

(In ’Tiger Millionaire’ when Steven says “Can’t we just wrestle?”) “No” *everyone gasps* “Because we are the… Notorious O-order of… Wrestling… Haters"

“Only I can swim through lava”

“The hard part was getting the shark to pose"

“No dinner for 1,000 years"

(In ‘Future Vision’ when Steven says “Well, danger is my middle name”) “That’s a lie. Your middle name is cutie pie"

“Howdy! Bang”

“We can’t keep fighting these things forever. Well, we can, but I don’t want to”

(In ‘Jail Break’ after Steven says “Well, did I make a good impression?”) “Oh, Steven, we already loved you”

“Garnet, master of comedy”

And also: (x)

hospitalglam

#Hospitalglam is anything but easy.

We know this, but I’m telling you anyway.

In this room I held tight and told the nurse,whose needle cleared my vein despite warning, that I needed a different person to finish the test. She was harsh and dismissive, which would have been especially unhelpful in a test that records her observations.

The timer on the phone’s shutter had been counting down with the nurse kept just out of frame. I stuck to my needs through her clumsy needling. She told me the test would take longer, it would be worse with someone else, I was making it harder; I still asked for another nurse. When she left the room, I wept openly and sat up, my right arm leaking blood where her mis gauge went through my veins. That is the moment you see above. It does not look hard. Photos lie this way, showing only a splintered second of the experience.

The second nurse was great and I went through the test without further injury. In hospitals, we often risk further injury. It takes a lot of unseen work to get through. I do this work to survive. For every bit you see, there are a thousand hours you don’t. I won’t stop, because the work is integral to survival. We must live.

Every person who participates in the project is doing their own work. When I see others participating in the project by taking up space, both in their medical environments and social media streams, I recognize the unseen work that goes into it. It is brave to open yourself. The decision to be open and represent your life as it is, helps remove the fear for so many others who aren’t there yet. I am rooting for you. I love seeing people stop tagging when they’re not in for awhile. The full texture of your lives are beautiful. I have so much respect for all of you. Thank you and keep going.

it’s like

i’m feeling so much BETTER why am i doing the EXACT SAME THINGS I WAS DOING WHEN I WAS FEELING SHITTY

but i dont know what else to do

Having a bit of a crisis...

I don’t even know where to begin

So a couple weeks ago I went to the ER because I was coughing up blood.

They did their usual ER thing. but. this time... the usual ER thing... did a lot more than usual. And there’s been this new treatment... and there’s a new doctor... and long story short, I feel better health-wise than I have since before I got sick. Possibly since before then,

This is after ONE treatment of this new drug.

The new doctor is a specialist in my particular autoimmune disease. He seems confident that he can put (and keep) my disease in remission.

I will always be on dialysis... but that seems so minor now compared to how it felt even a month ago.

I feel like ME for the first time since my diagnosis.

Still, though... it’s only been a few weeks. What if it’s a false alarm. What if something goes wrong again. What if this is just a small temporary upswing.

How long do I wait before it’s safe to be excited? If this turns out to be a long-term thing, how can I use my newfound health to help my fellow spoonies? If I’m feeling so much better do I even get to call myself a spoonie anymore? Am I kicked out of the community? I feel like I owe it to every single chronically ill person to take full advantage of every second of good health that I get.

I also feel like I need to do ALL THE THINGS now that I’m feeling better. To prove that I really was sick before. Like, see, I said I couldn’t do those things because I wasn’t feeling well and you all said I looked fine. Well now they’ve made me feel better finally and LOOK AT EVERYTHING I CAN DO NOW. I TOLD YOU SO. I TOLD YOU I WAS SICK. THIS IS THE PROOF.

but the other side of that coin is that if i DON’T take full advantage of every single second, then it feels like maybe I wasn’t trying my very hardest to not be sick before.

i don’t even know guys this is amazing news and i feel so great but my head is all fucked up. help

#spoonie #chronic illness #guilt #personal #i fail at tags ok

Blue Diamond’s Pearl

some porls

blue

sceneofsimplegifts-deactivated2

I hope she appears again ⌒.⌒

gumtooth

anon suggested opal w/ a braid & i rly wanted to make it happen…there she is

odu4

If life gives you lemons… eat them!!! xD

dajo42

i had a dream that mentions of magic were banned so harry potter had to be reprinted with “wizard” replaced with “cool guy” and any mention of a magic spell replaced with “sweet trick”

sniffytugboat

The Ministry of Sweet Tricks

annalikesthings

#yer a cool guy harry

kuwata-kun

Every time I read this I start laughing bc I keep thinking about Harry’s utter disbelief that he could ever be a cool guy “I think you must have made a mistake. I don’t think I can be a cool guy”