I think what non-spoonies tend to forget is that chronically ill people do not just get ill more often than other people, but are ill all the time. When we miss school or cancel appointments, it isĀ not because we āfelt a bit peaky againā and decided to not go - we feel bad most of the time, but still do things anyway. A lot of us feel ill, in pain etc. all the time, and we cancel plans/take time off when we physically or emotionally cannot cope with the day or the things required of us. Our āgoodā or āokayā is a healthyĀ personās āawfulā. We are consistently making more effort than ānormal peopleā in order to live and make a living, and we often make that effort at the expense of our health. And it is soĀ hurtful and offensive when people we know/ friends/ family/ teachers etc. get frustrated and annoyed because they think we are not trying hard enough. We are always trying. We are always fighting. Sometimes itās too much.
This canāt be said enough.
