Up Next on Sick Sad World @katiecalledcat - Tumblr Blog

Hi! I'm Katie and everyone calls me Cat bc I like cats and its short for Katie.

I have a baby who I call Duckie and she's still very very little so I get lots of help from her gramma and grampa which is my mama and my papa to take care of her.

I really like Daria and I watch that all the time. I'm a nonspeaker and I use something called a talker to make words except when I type which I'm doing now duh.

I'm 24 years old and I'm from the USA.

Diagnosed ataxic cerebral palsy autistic disorder and moderate ID

#about me #intro #nonspeaking #disabled parent #actually disabled #actually nonspeaking

I’ve never seen Daria and wanna give it a shot. Is there a specific episode you’d recommend starting with? No pressure to answer! Hope you have a nice day :}

Either you should start at the very first episode of the first season or you should watch Daria! The Musical for fun first and then go back to the beginning.

Daria! The Musical is either Episode 1 or Episode 7 of the 3rd season if you wanna watch that one first and then you can go back to S1E1.

24TH BIRTHDAY TO ME!

Tomorrow is my birthday!

Im 24 next month! Sorry I'm not on much, Duckie baby is doing home PT and we're working on lots of stuff with her. She's babbling! Which is awesome. It doesn't even sound weird or anything like I was worried. And she's gonna get a baby wheelchair in a month ish when she turns 6 months. We're doing the frog and the go-bro because that's what our insurance will help with and it's important to learn to crawl for babies as little as her.

#disabled parent #actually disabled

diabloindigo

From my experience, high school sucks.

MTV’s Daria.

il0vekiki

Daria art I made for the 10 Daria fans out there, somebody has to keep this fandom alive am I right??

Duckie's results came in today. She tested positive for the denobo version of HSP and her doctor said she specifically has "early onset complex HSP" which is a lot. They sent us the website for this foundation that studies a similar mutation that's lots rarer with a slightly different gene mutation than Duckie's because hers is sorta similar but they said hers is less involved

#disabled parent #actually disabled #hsp #hereditary spastic paraplegia #physically disabled

Very bad shakes week. Cerebral palsy is hard.

#actually disabled #physically disabled #cerebral palsy #ataxic cerebral palsy

shimmering-piratequirk

We're heading back home this weekend. So far every test has been negative for Duckie baby except one for spasticity which was positive and the fact that she has a mild sinus infection right now which I already knew because I'm the one using the baby bulb on her nose when she's snotty.

Now it's just time to wait for the genetic test to come back. The doctors said they were sending a referral for PT and OT and for a specialist to come see us at our regular hospital if the tests come back positive for HSP

#disabled parent #actually disabled #physically disabled #hsp #hereditary spastic paraplegia

#actually disabled #nonspeaking #actually nonspeaking #td snap #aac #cerebral palsy #ataxic cerebral palsy #daria

Wow. Tomorrow is my first mother's day as a mom

#mothers day #disabled parent

Duckie's genetic test will come back in 4 to 6 weeks they said and her MRI and blood tests are negative for the first round of screening they did. Tomorrow she needs a different MRI (this one was of her spine not her brain) and some more blood panels for metabolic stuff instead of infections

Duckie is getting genetic testing and a MRI and a blood test. All the tests today and then more depending on what the results say

The doctors had to wait to do the MRI bc she won't eat at all except at specific times and she gets really fussy if I try to feed her at a time she doesn't like

They said if she has HSP then it's something called de novo because I already had genetic testing as a kid to see if my cerebral palsy was actual cerebral palsy because ataxic type is so rare and I don't have the gene for HSP and you need both parents to have the gene for the symptoms she's having

Apparently she's smaller (longwise) then she's supposed to be and I didn't notice so I feel really bad about that

#disabled parent #actually disabled #physically disabled #hsp #hereditary spastic paraplegia

Mama and papa are packing up the car now for the drive. Its gonna take 4 hours to get there in the car but me and Duckie can't do planes

Duckie's first appointment is tomorrow and our checkin for the hotel is tonight and the baby doctor said we're probably gonna be there for at least 3 days

#disabled parent #actually disabled #physically disabled #hereditary spastic paraplegia #hsp

i see your posts from time to time and i'm always rooting for you and duckie. it seems like everything is going pretty smoothly even with the regular hurdles that come with having a new baby. i hope the year treats you both well!

Thank you 😁

Trending Blogs

Recently Viewed Blogs

Up Next on Sick Sad World