Lupus Pal Blog

Here are some of my lupus music videos, to advocate awareness & provide lupus info & support to lupies

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My Covid-19 Vax Nightmare

After Pfizer Shot 2

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Gastro Issues Aren't Always What They Seem

Gastro Issues Aren’t Always What They Seem

Personal Update: Good morning autoimmune friends!Sensitive subject here, but as promised.. Here goes!Some of you know I’ve been dealing with multiple skin rash issues. That’s going OK! Getting there.. Biopsy said psoriasis so I was taken off our precious plaquenil (which can make psoriasis worse).I was already on Humira for spondyloarthropathy (recurring sacroillitis, uveitis and plantar…

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Lupus AND Covid-19 Positive

Lupus AND Covid-19 Positive

So here I am almost exactly two weeks after being diagnosed and sent home like a leper with COVID-19 novel coronavirus. And YES, I am better. I made it! This thing is a nightmare. (unless you think BREATHING is overrated)…

It’s different for everyone. I know that bc in my own home my 19yr old son tested positive also, and he had the usual cold-like symptoms you’re used to seeing..snifflin,…

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Is Lupus chipping away at your teeth?

Is Lupus chipping away at your teeth?

It is MINE!  It makes sense, right?  Lupus IS a mixed connective tissue disease, our gums ARE connective tissue, AND the medications we take, like prednisone (steroids) have notorious side effects that cause bone issues, and that includes our TEETH.  The fault isn’t all lupus’s, genetics and self care play a role too.  If you’ve been a diabetic for as many years as I have (over 30 yrs now, and…

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Medical Resources for Lupus Treatments

Medical Resources for Lupus Treatments

  via The Lupus Research Alliance

Prescription Assistance Programs

If you’re having trouble paying for your prescription medications:

Talk with your doctor or pharmacist: There may be generic versions of the medications you are taking or less expensive alternatives.

Contact the pharmaceutical company: The company that makes the drug may have assistance programs to help you pay for the medication…

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How to Choose the Best Rheumatologist 

By Dr Thomas, author of The Lupus Encyclopedia is posting a 15+ series on how 2 choose the best rheumatologist- Dr. Thomas Google Plus Article HERE https://platform.twitter.com/widgets.js

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Lupus Study-Shocking High # of Wrong Dx's

Lupus Study-Shocking High # of Wrong Dx’s

from Lupus Foundation of America:  Original Article Here A Lupus Foundation of America study of over 3,000 adults with lupus found that 46.5 percent report being misdiagnosed with something other than lupus at the start of their journey with this unpredictable and life-altering disease. Additionally, more than half (54.1 percent) were told that there was nothing wrong with them or that their…

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Kool Lupus Stuff! Kool #LUPUS Stuff! Combine ur love for vibrant prints, sporty style & lupus advocacy with a cool drawstring bag! — Lupus Video Channel (@LupusChannel) October 31, 2017

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New Study Confirms That Stress & exercise Both Affect #LUPUS in Opposite Ways

New Study Confirms That Stress & exercise Both Affect #LUPUS in Opposite Ways

New Study Confirms that Stress and Exercise Both Affect #Lupus in Opposite Ways – Anti Aging Newshttps://t.co/TBMhcDz4sb — Lupus Survivors (@lupussurvivors) October 31, 2017  

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#LUPUS Study: "Cardiac Tamponade is Com

#LUPUS Study: “Cardiac Tamponade is Com

#LUPUS Study: “Cardiac Tamponade is Common but Treatable in Lupus Patients” via #LNT #HeartOfLupus https://lupusnewstoday.com/2017/10/31/cardiac-tamponade-a-common-but-treatable-manifestation-of-lupus-study-finds/

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Can Lupus Be Fatal?

Can Lupus Be Fatal?

LUPUS FACT: If left untreated, lupus is potentially fatal.#LupusAwareness #FightingLupus pic.twitter.com/Y8HgqMtaaA — Molly’s Fund (@MollysFund) October 18, 2017  

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No Limits, But Know Limits This is a classic if you're living with chronic illness. ICUMI or need a little inspiration, read it again. (& again) & follow Tala on Periscope at @Tala_NoExcuses

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Got #LUPUS? 1.5 million US & 5 mil world

Got #LUPUS? 1.5 million US & 5 mil world

Got #LUPUS? 1.5 million US & 5 mil worldwide do! SLE is an autoimmune disease where ur body attacks it’s own healthy cells-Share 4 a Cure! http://ow.ly/i/zZfdF

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RT New York Jets It's #Lupus Awareness

RT New York Jets It’s #Lupus Awareness

RT New York Jets It’s #Lupus Awareness Day at @MLStadium! All funds collected @ gates will fund lupus biomedical research

https://twitter.com/nyjets/status/924674360207605760

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RT @ACRSimpleTasks: Feeling down? Here a

RT @ACRSimpleTasks: Feeling down? Here a

RT @ACRSimpleTasks: Feeling down? Here are @CreakyJoints ‘Six Steps to Finding Joy While Living with a Chronic Illness’ → https://t.co/aKfEteqF6o #Rheum https://t.co/W9HFpONHz6 http://ow.ly/i/zVkzG

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