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Cosimo Galluzzi
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will byers stan first human second
🩵 avery cochrane 🩵
he wasn't even looking at me and he found me
@theartofmadeline
taylor price
PR's Tumblrdome
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Keni
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TVSTRANGERTHINGS
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$LAYYYTER
Game of Thrones Daily
izzy's playlists!
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@fibromyass
Hi, I started this fundraiser, Help Me Recover from Medical Emergency, on GoFundMe and it would mean a lot to me if you’d be able to share or donate to it. https://www.gofundme.com/f/help-me-recover-from-medical-emergency-ce4kq?utm_campaign=man_sharesheet_dash&utm_content=amp17_control&utm_medium=customer&utm_source=native_options&lang=en_US&attribution_id=sl%3A0fd01e70-fd8b-4bb8-b706-c14de2eb2564&ts=1775664519
Well,
I'm back! Though don't expect any consistency from me cause thats not my game.
Anywho turns out i was wrong, I actually have both fibro and RA. Lucky me right? Treatment has sort of stalled for the RA but fibro treatment is picking back up.
However, shit hit the fan the last few weeks and I've found out I have a dvt in my leg, then got hospitalized for bilateral pulmonary embolism (I'm okay, they're small clots), and then yesterday fell and broke my toe.
Y'all it's been 3 weeks.
I've had to come off a couple medications and got put on some more. Nobody can figure out why I even got any blood clots to begin with (her name is Clotia btw) so they're sending me to hematology and the geneticist to figure it out.
I've finally reach my dream of being a medical mystery. It sucks.
So yeah, thats my uodate for now. I'll see ya when I see ya.
Later taters.
Life update
Howdy folks, long time no post. Just wanted to update ya'll on shit that's happened.
First of all, I don't actually have fibromyalgia, I got diagnosed with Rheumatoid Arthritis last year. It fucking sucks, but treatment is finally moving in the right direction.
Secondly, I am no longer in house keeping, but am now a Board Certified Clinical Pharmacy Technician. Possibly thinking about pharmacy school.
I probably won't be back to posting but thought I'd say hello anyway.
Peace out kids,
LeAnna.
Updates.
So I know I've been completely absent from here again, but this time my excuse is less sad and more I do not know the word right now other than good. I got a job. This coming Friday will mark 8 full weeks (minus one day i was sick because my lungs were trying to destroy me and I had to go on steroids) of working housekeeping at the local hospital. I work 4pm to 12:30 Monday through Friday and my nights consist of hauling trash and laundry, wiping surfaces, and mopping floors. This is by no means an easy job and it is definitely trying to kick my ass. I'm in a lot more pain these days but I'm pushing through it. I've learned that my limits are farther than I thought and I am capable of more. My body is getting stronger (of course hauling 17 laundry bags and 70 trash bags every night will do that). I walk an average of 11k steps a night as well. My once snug work pants are now fairly baggy.
Now I'm not here to give you that 'exercise will cure your fibro' speech cause that's total bull shit. I absolutely still deal with fibro issues on a daily basis, I've just realized I can still function at my job with them. But that's my own personal experience. I just wanted to share with y'all that I am doing well considering everything that has happened recently and let y'all know that I think about y'all everyday and hope that your lives are going as well as mine.
Calvin and Hobbes still relevant 25 years later.
Louder for the people in the back
things my boyfriend has done
- urgently marched into A&E and said ‘we’re having knee pain!!’ to the confused receptionist. i had to explain that it was only my knee and that he was just worried
- when asked to tag me in a meme of ‘what water are you?’, said ‘you are the ocean: home to all friends’
- loved ‘filthy gorgeous’ and, rather than learning the words, learned ‘all three parts in the song where they ring a triangle’
- after we had an argument about him not ‘getting’ my ADHD, i caught him halfway through a three hour playlist of lectures on ADHD, with a pen in hand, taking notes
- he suffered a TBI last summer and he did not like the orienting questions they ask (’what year is it? what day is it?’ etc). when asked ‘do you know where you are?’, he cracked one eye open and angrily said ‘in bed!’
- he played knack 2 and hated it. when i asked why he was still playing it, he said ‘so i never have to play it again’. he got every achievement and as soon as he got the last one he stood up, ejected the disc and returned it to the store
- lately he’s given up on making lunch so he just drinks huel which is a meal replacement shake, except huel is kind of boring so he sometimes puts nesquick strawberry powder in there
- my favourite drink is pepsi max. when asked about his dreams for the future, they often involve ‘being rich enough to find a way to pump pepsi max directly into our house’
- one time in our first year of dating i hadn’t seen him in weeks, whereas we normally saw each other all day every day, so i was gonna go stay with him for a couple days. he had a temporary job (i’m talking 2 weeks total) at the time and i was bummed that i was gonna be alone at his for a bit, but w/e. he was texting me like ‘work is going okay, in the line for the canteen right now’ while i got on the bus. i found the key where he said it was, i found a note on the table like ‘hi love! the wifi code is [password], I’ll be back at 5!’, and then I went into the lounge and he was there. he was lying on a fold-out bed with Marvin Gaye playing. the TV was on a powerpoint slide that said ‘Welcome, Jess. I quit my job.’ he was entirely naked except for a cushion with the letter ‘D’ over his crotch. im 95% sure there were candles
- we play the game Rimworld, where you micromanage a colony of people on an alien planet. he uses it entirely to simulate a peaceful colony, mostly of women, who have a large number of animals they care for and train. one time he got this random event where all the women in the colony got a psychic mood boost and he was like ‘honestly that’s my life goal’
- when he was in hospital and his cognitive functions were slowly coming back, he looked up from twitter with horror and said ‘jess… is the american president a racist?’
- we were playing Articulate, which is a game where you have to describe a word without saying the word itself. His partner said ‘when you’re beginning sex, you are…’. he, without a second of hesitation, yelled ‘FOREPLAY’. the answer was actually ‘initiating’, but my ego grew like fourteen times
- one time he asked me what guacamole was, and i told him, and he said ‘if it’s made up of things that already have names why does it have a different name?’ i have not let him live this down yet
- i used to have an eating disorder, and whilst i’m good 99.9% of the time now i occasionally do have wobbles. one time i’d eaten some mini-donuts and i told him ‘i kind of want to check the calories on those…’, so he immediately pulled the label off and ate it
- i lost him for like twenty minutes at a uni event, and when i found him he presented me with a pepsi max badge and said ‘i rode this mechanical bull to try and win you a year’s supply but i fell off pretty quickly. sorry.’
- we won the ‘best couple’ award in our year at uni, but neither of us were there to collect it because i was ill and he left halfway through to come home and take care of me
- one time he wasn’t paying attention while making lunch and he cracked an egg directly into the bin. the look of confusion on his face was priceless.
- on the rare occasions when i wake up before him, when i kiss him/ touch him he makes these little like… activation sounds? you know like when you touch a cat? it’s like those
This is the cutest thing I have read with my own eyes
When he ate the donut label, I fell in love with him myself.
New concept: Stop trying to pass for an ablebodied person.
It’s perfectly okay if you Can pass, of course.
No Shame in Having an Invisible Disability, But:
If you’re worried that you’re not passing,
If you spend your thoughts and your energy trying to pass,
If you blame yourself when you fail to pass,
If you don’t speak up when something is bothering you, because you’re afraid of looking weak, or pitiful,
If trying to pass hurts,
Stop Trying to Pass for an ablebodied person.
This is one of my early posts. I figure I don’t say it enough.
(Originally posted 26 March, 2016)
Haha *Sweats*
REBLOG if you think bisexuals (even ones in het relationships) are still part of the community and should be welcome at Pride
I’m that type of person who has a lot of fanfiction ideas for my OTPS but I don’t write them. Is anyone else like this or is it just me?
me writing dialogue: “what is man but a vessel through which a higher entity may see? what is his purpose? must he find a purpose? we are but stardust; the universe comprehending itself.”
me writing action: they ran real fast from the bad men aand legs hurty
If you call pedophilia a kink please unfollow me and never talk to me again
Isn’t it disgusting that 23 people just unfollowed me
Unfollow me too
this goes double if you call paedophilia a disability. unfollow me twice
and if you call pedophilia an “orientation” or in any way compare it to being LGBP+ you can unfollow, delete your blog, and set yourself on fire.
Why I disappeared.
So y'all have probably noticed that about 2-3 years ago my activity on this blog quickly dropped off. Well there’s been a fuckton of shir going on in my life and it took all my attention and energy just to get through and I had nothing left to run this blog like I was.
Back in 2015 my grandma was diagnosed with colon cancer and in just a few months it spread throughout her body. Family issues really popped up after that with people going behind other people’s backs about major decisions. My sister-in-law was also diagnosed with cancer of the liver. My grandfather had been in the nursing home for a few years with dementia at this point. And then my mom started getting sick and had to be hospitalized for 15 days due to complications of liver failure and congestive heart failure.
Just a few days after my mom got out of the hospital, my grandfather passed away.
A couple months later, my sister-in-law passed away.
About 2 weeks later my grandma passed away.
2 days later my great-uncle passed away.
More family issues popped up. This was still March 2016.
Over the next few months we would go on to lose a long-time family friend, a great-aunt, and a friend’s baby.
My mom’s illness would slowly progress and she ended up hospitalized 6 more times over the next 2 years. We found out she was a candidate for a liver transplant and would start the process towards that. I offered to be her donor and became her caregiver. Again more family issues sprung up.
While taking care of my mom on my own, i wound up in the ER for a mental break down and only refused being admitted because there was no one else to make sure my mom got her meds on time.
Christmas night my mom fell out of bed and hurt her knee, and after 3 different ER visits, a walk in clinic visit, and a doctor’s visit, we learned that the pain was from an infection in her knee implant that had spread into her bloodstream. She was put on a strong course of antibiotics through iv for 6 weeks and had to be put into a local nursing home while she received those. The infection was completely out of her blood within the first week of the IV and things were looking up. We had an appointment with the transplant team. But the antibiotics made my mom nauseous and killed her appetite so she stopped eating enough. She stopped progressing in physical therapy so her insurance stopped paying for that. On the day she was discharged from the nursing home (because insurance wouldn’t pay any longer, even though the doctor sent in a request to keep her longer to get her stregnth back) mom’s legs wouldn’t hold her and I had to call the ambulance and she was admitted back to the hospital. That was March 6th 2018.
March 11th, my mom passed away surrounded by family.
Our appointment with the transplant team was set for March 20th.
The whole time my mom was hospitalized from January 18th to the day she passed I stayed with her at every facility she went to. During that time her boyfriend broke down the door to my bedroom, cleaned out my stuff, and changef the door knob and locked it to try to keep me out. He also changed the lock on the front door and refused to give us a key until 2 days before my mom wad set to be discharged from the jursing home. So for about 2 months I was essentially homeless.
Mom and I were working on getting into a local disability accessible apartment complex with 24/7 nursing staff if needed so that i could continue taking care of my mom with back up. I started the process of enrolling in online college classes, my mom got approved for Disabilty payments, I was going to get pain to be her caregiver. Things were looking up.
And then literally overnight she went from weak but improving to her kidneys shutting down and her insides bleeding.
My mom fought so hard for so long and cheated death so many times that to watch her fade away over a few hours was heartbreaking.
The last thing she said to me while she was still coherent enough to recognize anyone was that she loved me.
Right now I don’t really have anywhere to live and am currently crashing on my brother’s couch. I don’t really know how to go forward from this point and i don’t have the resources to do so.
I’m not sure when or even if I’ll get back to running this blog again, but i wanted to let you all know what’s been going on.
When people say I'm an inspiration...
How I react to their face:
But inside I’m more like:
Unless it’s my family who says it to tease me then I’m just like:
just a little post for my fellow teenagers/young adults who a) have physical mobility impairments and b) take public transit:
the accessible seats are for you
you don’t have to be a “senior” to use them
they are not reserved for able-bodied children and/or adults to sit in. they’re accessible so that people can maneuver mobility aids in and out of the space and/or not have to walk all the way down the length of a moving bus to be able to sit safely, which is important
unfortunately, social custom dictates that strollers also sometimes take up 3-4 of them at the time. in cases like these it is completely acceptable to ask someone sitting in a non-accessible seat to move
honestly: if at any time the accessible seats are taken up by other disabled passengers and/or senior citizens and/or people with strollers, it is absolutely okay to ask someone sitting in one of the non-accessible seats to move
even if the bus is full
(especially if the bus is full, sometimes—i know i have a much harder time balancing on transit when i can’t lean against one of the walls for support, which is near-impossible when it’s packed ¯\_(ツ)_/¯ )
those seats are there for you. it’s difficult to be assertive in these kinds of situations, especially since some people like to get a case of the ass about teenagers with mobility impairments. fuck those people. you deserve to be able to travel comfortably and safely; your age doesn’t erase your need for accessible seating
i dont see a lot of positivity for physically disabled people so heres some positivity from a fellow physically disabled person!!
if you have days you cant move or get out of bed bc of your disabilities, youre strong and great!! i know it can be hard when you cant do things but it doesnt take away from who you are
if you use mobility aides, youre amazing!! you probably deal w so much shit from able bodied people for using them but tbh their opinions dont matter, youre getting by in the way that is best for you and thats all that matters!
if you have invisible disabilities, youre wonderful!! its hard to deal with people who dont believe you because they cant see your pain and disabilities but youre stronger than they could ever imagine
if youre physically disabled in any way, youre so incredible!! youre stronger than any able bodied person could ever know and im proud of you!!
i would make this longer but im low on spoons sorry!! also able bodied people can rb this
