Good morning guys! Few days back there's another good friend who's so worried with my lupus that she asked me to check this "Doctor" ( actually this is the 5th time I got this referal from different friends and also from different places, internationally).
This Doctor seems really popular, so I decided to watch her on youtube.
After watching few of her videos, I wrote a comment, which I intentionally address to other lupies, so that they'll be careful of what they choose to believe.
Sharing my comment to that Doctor:
#### As having APS for 17 years and Lupus for over 4 years now, garlic and ginger which are supposed to be an anti inflammatory foods are causing most of my flares. So I avoid only those two since there are many other else out there which are just as good for inflamation.
Not my intention to correct or criticize our good doctor here when she said that it is not true that Lupus is incurable. She based this from her patients who came back with negative result of lupus. Anyway, let me explain this... the lab results can give you positive and negative result depending on your health condition at the drawing of blood only. It means that if you have flare at the moment, your ANA result will be very high and if you're feeling good at the moment of lab test, your result will be negative that even the doctor may wonder if you really got the Lupus. You see for lupus to be diagnosed there are series of expensive tests they need to base it from before they can say it's LUPUS. Means there is not only one test to detect Lupus unlike highblood, diabetes, cancer and many others. So one test result is not enough also to tell you that you are already out from lupus.
lupus is lupus, sorry but once you have it you'll have it forever bec Up to this time it's still incurable but good thing that it's manageable.
It is also a complicated disease, not every lupus is the same, what works with one may not work with another. It's actually baffling the medical world until now but they're somehow coming up with something new constantly to help us little by little and I'm sure that they'll find a cure soon.
Anyway she was right when she said "stay away from all the trigger factors". Lupies, you are your own advocate, record your daily activities and the foods you eat to find out what's good and not good for you. Try everything you wanna try but be wise enough to know what to avoid and not to avoid to lenghten your life.
Generally there are four things to avoid that Lupies MUST know:
1. Avoid the sun, stay covered when you go out, sunblock may help but it's safer to just cover Wear long sleeves and caps/hats.
2. Avoid stress. Any kind of stress. Physical, mental social and emotional stress. This may mean also staying away from your stressors. Keep a quiet and worry free life. Stay calm and cool.
3. Avoid the foods that can trigger flare ups. And with this, lupies, find it out yourself because we have different reactions with foods. So journaling is really important.
4. Avoid sleep deprivation. Lack of sleep will worsen Lupus. One of the ugly flares is sleepiness. Just don't fight it, give what your body demands. Sleep when you are sleepy to avoid joint, nerve and head aches.
I suggest that MEDITATION helps a lot. Have a quiet time daily...pray and meditate. That is actually the easiest path to healing. When we cannot heal our body...at least heal our soul. :) ####
I salute the people whose advocate is to really help. I trust all my doctors especially my Rheuma because she herself is a Lupie. "Sometimes" we get the best advice from the people who experienced what we're going through. :)
One final note for all of us: lupies or not.
Guys life is short. Just love life. Rich or poor we all have worries of our own. Sick or well, young or old.. . just love people. No matter how bad people sometimes are, you can be angry but make it quick, then go back to who you really are. We are all created good but bad things sometimes make us bad but always go back to what and how you were made. You are good because God is good. And He created us all good. These diseases are nothing. Most of us get sick but all of us die. We'll go through the same door someday so for now ...let's learn from our life and help others... we give what we have... resources or service. Do not boast because we were equally created, sometimes we're given more so just we have to share. Those who have none were none so that we have someone to share with. 😊 We really need to shift our thinking in a lovely way. Afterall this life is about God and God is love and so it's about LOVE. Jesus came to tell us about it. JUST Love. Even if all else fails? Dream, career, business, relationship, health and many more. Yes, even if all fails Just LOVE!!❤️
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