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@mindfogandsleep
I'm not sure I've addressed this on here before but this blog is a safe place for spoonie regardless of sexuality, gender, race, religion or anything else.
This blog is NOT a place for terfs, for gatekeepers, for aphobes, biphobes, transphobes, racists, islamophobics, antisemites or any other sort of bigots.
I will instantly block anyone I notice reblogging or interacting who expresses any of these harmful views.
some of y'all abled "allies" take back your support as soon as the person is "gross".
you still need to support disabled people if they use a catheter, diapers, IVs, food bags, and waste bags.
you still need to support disabled people if they cant shower, brush their teeth, put on deodorant, or shave regularly.
you still need to support disabled people if they bedrot, eat messily, and breathe noisily.
i am so tired of y'all treating disabled folks like trash.
This Post Is About Physical Disability. Do Not Derail.
Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
The thing about chronic pain is once you’ve had it for long enough you can’t remember what not being in pain felt like. You only recognize it as ‘not as debilitating as usual’ or ‘very much more fucking debilitating than usual’ so you have no grasp anymore of what it’s like to do things without factoring your pain levels in. People who aren’t in constant pain think that if you’re having a ‘good pain day’ it means you’re not in pain and should be able do to things. But having a good pain day doesn’t mean you’re not in pain, it means you’re in less than excruciating pain. Maybe your pain is low enough that you can ignore it. But people who don’t live in pain don’t understand that ignoring it takes energy, and even if it’s low enough that we can ignore it doesn’t mean it’s gone and it doesn’t mean we want to go out and do a bunch of things that will make it so bad it cannot be ignored.
Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.
And knowing can mean treatment options. Knowing means understanding more about what can hurt and what can help.
one major thing ive had to learn about my pain and fatigue is that overexertion does NOT result in more sleep. a healthy person might have a busy, physically active day and then have a really good sleep as a result. When I do this, I can’t fall asleep at all, and i’m often in terrible pain. So I end up being miserable twice, first when I pushed myself past my limits, and second from the resulting pain and insomnia. So here’s my message to you, chronically fatigued person: don’t push yourself when you don’t have to.
the thing about disability is it really does sometimes boil down to "wow i wish i could do that" and then you can't. and it sucks.
accomodations are important but i think they miss the point of this post. sometimes you can't do it. at all. someone needs to do it for you or it will never happen.
"disability only exists because the world isnt accessible" idk how to tell you this but chronic pain still hurts
i like the sentiment and i think its true in many ways, but people with mobility issues will still have mobility issues in an accommodating world, people with sensory disabilities will still have those disabilities in an accommodating world. and thats not including neurodiversity where two people with the exact same disorder will have very different experiences with them. like there's not a world where someone with agoraphobia wont be scared to leave the house just cause outside is more accessible
i dont think it accounts for the wide range of disability experience and caters more to low-support needs people. i think life would be so much easier if being disabled was less stigmatized, but disability wont just go away once it is
you can't autism proof a bright summer day, but you can normalize stimming and using sensory aids in public
choosing to allocate spoons to hanging out and having a good time at the cost of perfectly completing all your work is not a failing it is in fact an act of survival. “too sick to work = too sick to play” is in fact ableist bullshit that you don’t have to buy into. and the fact that leisure time is treated like a privilege is a fucking travesty
cannot relate to people who don't feel trapped in their own brain we are simply too different. "your brain is you" ummm no it's not? my brain is a warden enforcing my punishment for a crime i never committed and it keeps slamming its baton against the bars of my enclosure to rattle me
don't get me started on the people who say shit like "your body is you" GIRL THAT'S THE PRISON !!!!!! AND THE LIVING CONDITIONS HERE ARE INHUMANE
Your friends and family with chronic pain aren't doing well.
Yes, even the ones that say they are.
Yes, especially the ones that are complaining and lashing out already.
Chances are high that however bad they will admit things are it's actually worse. By a lot.
We're conditioned to be "okay". If we're breaking down at non scheduled times we aren't coping well. I promise.
Your sibling/partner/bestie/parent who is breaking down without preamble on a Tuesday is suffering. Be kind. We're sorry.
im just not convinced humans were ever meant to be this busy
every day i am surrounded by people who need more naptime, and more playtime, and more storytime, and more playdates and parties and sleepovers. when it comes to worktime, however
"quick meal for when you're low on spoons!" *involves chopping vegetables* *uses a stove* *includes condiments* *involves letting something set/rest/simmer* *requires multiple kitchen items that will need to be washed* *estimated prep time: 30–45 minutes*
im tired of disabled people being sacrificed on the altar of "eco friendliness"
