My life, My pain

Just me going through the ups and downs of chronic pain.

[mychroniclesofchronicpain]

They say the proofs in the pudding.....

[mychroniclesofchronicpain]

Vacation from appointments

I decided to take a vacation from what seems like my never ending stream of medical appointments. I don’t have any trips planned, I am not planning on going anywhere or even really leaving my house if I can help it. The people i have told this mostly all seem surprised, why do i need a “vacation” its not like i am working they are just doctor appointment. I am years into my illness and I still face people who don’t under that take care of my health is my job and unfortunately its 24 hours a day, 7 days a week and sometimes I need a “vacation” from the multiple doctor appointments every week and if my health is stable enough to take it i have more than earned it.

[mychroniclesofchronicpain]

My primary doctor had to leave the country to go take care of her parents whom are sick, I totally understand this but the fill in doctor I had to see this week was terrible and I have had extreme anxiety from it. Just when I start to feel comfortable with my medical plans and situation a wretch gets thrown into the works!

[mychroniclesofchronicpain]

[mychroniclesofchronicpain]

It's only 10 am and I have already been up for 6+ hour. I'm trying to spend as little energy as possible so I can enjoy an after outing the struggle is to real.

[mychroniclesofchronicpain]

Not mine.... Some people don't realize how hurtful they can be by simply repeating what has been burned into their brains without them even knowing. Let's be understanding and accepting of everyone regardless of their place in life.

[mychroniclesofchronicpain]

If my energy levels matched my ambitions I’d be unstoppable

[fabwithfibro]

YAS!

[mysteryninja46]

that’s why you find your passion to fuel you.

[mychroniclesofchronicpain]

Passions unfortunately don’t out perform chronic fatigue or illnesses

[mysteryninja46]

Even if life is a constant struggle, there is always going to be a better tomorrow, even if day by day life may seem otherwise.Having the passion within you will never hurt that walk towards tomorrow

[autistiqueer-deactivated2018121]

Imagine having a passion for something a chronic illness prevents you from doing. Where engaging in the activity causes you incredible physical pain, and leaves you bedridden the next day. That passion can become soul crushing.

Your comments are ableist. Not all of us have a better tomorrow. Some of us have debilitating pain that will never resolve, some of us have chronic illnesses that are progressive and will make us continually sicker, and some of us have terminal illnesses. Keeping a good outlook is not always as simple as hoping for a “better tomorrow”, often, it means researching how your illness will affect you in the future, and preparing for the problems it will cause.

[mysteryninja46]

alright so allow to set the record straight while doing so peacefully.I have worked with many individuals suffering from both chronic and terminal illnesses on hospitals in which I learned a great deal of strength from human beings far stronger than myself.While I do understand that there are circumstances in life that bring strife.A good friend of mine who passed away from terminal cancer once told me “This pain is unbearable believe me, but I would feel an even greater pain were the world not able to realize my talents.” My own mother who suffers from a chronic pain has shown me ten times over that even throughout her pain she pushes through knowing that while she struggles to move, the tenacious woman has told me countless times that not pushing forward to tomorrow would cause her to feel a pain far greater than she feels now.I assure you that I definitely do NOT believe the only disability is a bad attitude.As it is, I’ve been fighting for years to tackle greedy companies who make it difficult to afford medication for many of the PTSD clients I’ve worked with.My biggest point is that we are all here for a reason, and for that very selling point we must discover why and show the world our greatness.

[mychroniclesofchronicpain]

While I can respect your opinion on how you have view your life and as an observer of some individuals with chronic illnesses I still disagree that every person with a chronic illness ( of the millions of different types of illnesses) needs or benefits from having the outlook you are trying to force upon them.

All to often my energy and ability to move outweighs any activity, event, or enjoyment I may want to do or have.

I enjoy knitting that doesn’t change my limitations. If my joints are swollen I’m not knitting no matter how much I wish I could.

[mysteryninja46]

I’m not at any point trying to force anything on anyone, I’m only trying to make the point that I’ve been inspired by those much stronger than myself and have pushed me to drive that passion.

[mychroniclesofchronicpain]

…..On to other people fighting battles you know nothing about

[personallyyoursrobyn]

The last time I followed my passion I ended up in hospital, I pushed myself too far because I believed I could push past my illness. It severely irritates me that people can be so ignorant & be told they’re being ignorant by the very people they’re being ignorant about & they just don’t accept it. Take it as a lesson & move forward.

[mychroniclesofchronicpain]

I’m so sorry that happened to you. I hope you were able to safely recover from that episode. Sometimes the hardest lesson are learning our limitations and it’s not helpful to have someone telling us we are wrong and don’t know our bodies.

This is the exact reason I pushed so hard against someone saying to just push through and have a passion. Too many people fail to realize our health is to fragile to just suck it up and push on. There are people with illnesses that have that option there are many others that do not.

We each need to live our illnesses our way there isn’t a right or wrong way to do this but someone who isn’t fighting our battles doesn’t understand all the struggles that may not be visible.

[listentoyourintuition-deactivat]

From experience I can tell you that chronic fatigue can stem from pushing yourself too hard already.

So it’s like you’re telling me to push myself hard on top of pushing myself hard.

[mychroniclesofchronicpain]

As sad as the ableist talk is in this post I am so happy it is able to reach so many people and they have openly shared their experiences. It’s great to not feel alone

[avilociraptor-deactivated202106]

So there was this one time I was pursuing my dreams and it made me so sick I ended up in the hospital and coded.

I’m back to working on my dream, but only after a year of very hard recovery, a lot of meds, and going on oxygen therapy.

Lots of people would point to me and say I’m a really inspiring sick person but the truth is:

IF FOLLOWING YOUR DREAM IS EFFECTING YOUR HEALTH YOU ARE ALLOWED TO GIVE UP THAT DREAM AND FIND ANOTHER ONE

We are so dedicated to this idea of pursuing your dream that many people see it as acceptable for that pursuit to make you sick or dead, and to keep on pursuing something even if it’s impractical, illogical, or downright dangerous.

I had to significantly modify my dream as it is, and if I’m keeping it really real, a person should not have to code blue to get permission from society to change their dream.

If you have an illness you are allowed to modify your path just like any other person. Changing your dreams does not make you weak. It can be a very necessary form of adaptation and changing your dream does not make you lesser, weak, a loser, or a quitter.

[mychroniclesofchronicpain]

Such an empowering story and so true. Only we know our limitations and with something as fragile as our health and life we are allowed to life within those limitations

[mychroniclesofchronicpain]

If my energy levels matched my ambitions I’d be unstoppable

[fabwithfibro]

YAS!

[mysteryninja46]

that’s why you find your passion to fuel you.

[mychroniclesofchronicpain]

Passions unfortunately don’t out perform chronic fatigue or illnesses

[mysteryninja46]

Even if life is a constant struggle, there is always going to be a better tomorrow, even if day by day life may seem otherwise.Having the passion within you will never hurt that walk towards tomorrow

[autistiqueer-deactivated2018121]

Imagine having a passion for something a chronic illness prevents you from doing. Where engaging in the activity causes you incredible physical pain, and leaves you bedridden the next day. That passion can become soul crushing.

Your comments are ableist. Not all of us have a better tomorrow. Some of us have debilitating pain that will never resolve, some of us have chronic illnesses that are progressive and will make us continually sicker, and some of us have terminal illnesses. Keeping a good outlook is not always as simple as hoping for a “better tomorrow”, often, it means researching how your illness will affect you in the future, and preparing for the problems it will cause.

[mysteryninja46]

alright so allow to set the record straight while doing so peacefully.I have worked with many individuals suffering from both chronic and terminal illnesses on hospitals in which I learned a great deal of strength from human beings far stronger than myself.While I do understand that there are circumstances in life that bring strife.A good friend of mine who passed away from terminal cancer once told me “This pain is unbearable believe me, but I would feel an even greater pain were the world not able to realize my talents.” My own mother who suffers from a chronic pain has shown me ten times over that even throughout her pain she pushes through knowing that while she struggles to move, the tenacious woman has told me countless times that not pushing forward to tomorrow would cause her to feel a pain far greater than she feels now.I assure you that I definitely do NOT believe the only disability is a bad attitude.As it is, I’ve been fighting for years to tackle greedy companies who make it difficult to afford medication for many of the PTSD clients I’ve worked with.My biggest point is that we are all here for a reason, and for that very selling point we must discover why and show the world our greatness.

[mychroniclesofchronicpain]

While I can respect your opinion on how you have view your life and as an observer of some individuals with chronic illnesses I still disagree that every person with a chronic illness ( of the millions of different types of illnesses) needs or benefits from having the outlook you are trying to force upon them.

All to often my energy and ability to move outweighs any activity, event, or enjoyment I may want to do or have.

I enjoy knitting that doesn’t change my limitations. If my joints are swollen I’m not knitting no matter how much I wish I could.

[mysteryninja46]

I’m not at any point trying to force anything on anyone, I’m only trying to make the point that I’ve been inspired by those much stronger than myself and have pushed me to drive that passion.

[mychroniclesofchronicpain]

…..On to other people fighting battles you know nothing about

[personallyyoursrobyn]

The last time I followed my passion I ended up in hospital, I pushed myself too far because I believed I could push past my illness. It severely irritates me that people can be so ignorant & be told they’re being ignorant by the very people they’re being ignorant about & they just don’t accept it. Take it as a lesson & move forward.

[mychroniclesofchronicpain]

I’m so sorry that happened to you. I hope you were able to safely recover from that episode. Sometimes the hardest lesson are learning our limitations and it’s not helpful to have someone telling us we are wrong and don’t know our bodies.

This is the exact reason I pushed so hard against someone saying to just push through and have a passion. Too many people fail to realize our health is to fragile to just suck it up and push on. There are people with illnesses that have that option there are many others that do not.

We each need to live our illnesses our way there isn’t a right or wrong way to do this but someone who isn’t fighting our battles doesn’t understand all the struggles that may not be visible.

[listentoyourintuition-deactivat]

From experience I can tell you that chronic fatigue can stem from pushing yourself too hard already.

So it’s like you’re telling me to push myself hard on top of pushing myself hard.

[mychroniclesofchronicpain]

As sad as the ableist talk is in this post I am so happy it is able to reach so many people and they have openly shared their experiences. It's great to not feel alone

[mychroniclesofchronicpain]

If my energy levels matched my ambitions I’d be unstoppable

[fabwithfibro]

YAS!

[mysteryninja46]

that’s why you find your passion to fuel you.

[mychroniclesofchronicpain]

Passions unfortunately don’t out perform chronic fatigue or illnesses

[mysteryninja46]

Even if life is a constant struggle, there is always going to be a better tomorrow, even if day by day life may seem otherwise.Having the passion within you will never hurt that walk towards tomorrow

[autistiqueer-deactivated2018121]

Imagine having a passion for something a chronic illness prevents you from doing. Where engaging in the activity causes you incredible physical pain, and leaves you bedridden the next day. That passion can become soul crushing.

Your comments are ableist. Not all of us have a better tomorrow. Some of us have debilitating pain that will never resolve, some of us have chronic illnesses that are progressive and will make us continually sicker, and some of us have terminal illnesses. Keeping a good outlook is not always as simple as hoping for a “better tomorrow”, often, it means researching how your illness will affect you in the future, and preparing for the problems it will cause.

[mysteryninja46]

alright so allow to set the record straight while doing so peacefully.I have worked with many individuals suffering from both chronic and terminal illnesses on hospitals in which I learned a great deal of strength from human beings far stronger than myself.While I do understand that there are circumstances in life that bring strife.A good friend of mine who passed away from terminal cancer once told me “This pain is unbearable believe me, but I would feel an even greater pain were the world not able to realize my talents.” My own mother who suffers from a chronic pain has shown me ten times over that even throughout her pain she pushes through knowing that while she struggles to move, the tenacious woman has told me countless times that not pushing forward to tomorrow would cause her to feel a pain far greater than she feels now.I assure you that I definitely do NOT believe the only disability is a bad attitude.As it is, I’ve been fighting for years to tackle greedy companies who make it difficult to afford medication for many of the PTSD clients I’ve worked with.My biggest point is that we are all here for a reason, and for that very selling point we must discover why and show the world our greatness.

[mychroniclesofchronicpain]

While I can respect your opinion on how you have view your life and as an observer of some individuals with chronic illnesses I still disagree that every person with a chronic illness ( of the millions of different types of illnesses) needs or benefits from having the outlook you are trying to force upon them.

All to often my energy and ability to move outweighs any activity, event, or enjoyment I may want to do or have.

I enjoy knitting that doesn’t change my limitations. If my joints are swollen I’m not knitting no matter how much I wish I could.

[mysteryninja46]

I’m not at any point trying to force anything on anyone, I’m only trying to make the point that I’ve been inspired by those much stronger than myself and have pushed me to drive that passion.

[mychroniclesofchronicpain]

…..On to other people fighting battles you know nothing about

[personallyyoursrobyn]

The last time I followed my passion I ended up in hospital, I pushed myself too far because I believed I could push past my illness. It severely irritates me that people can be so ignorant & be told they’re being ignorant by the very people they’re being ignorant about & they just don’t accept it. Take it as a lesson & move forward.

[mychroniclesofchronicpain]

I'm so sorry that happened to you. I hope you were able to safely recover from that episode. Sometimes the hardest lesson are learning our limitations and it's not helpful to have someone telling us we are wrong and don't know our bodies.

This is the exact reason I pushed so hard against someone saying to just push through and have a passion. Too many people fail to realize our health is to fragile to just suck it up and push on. There are people with illnesses that have that option there are many others that do not.

We each need to live our illnesses our way there isn't a right or wrong way to do this but someone who isn't fighting our battles doesn't understand all the struggles that may not be visible.

[mychroniclesofchronicpain]

If my energy levels matched my ambitions I’d be unstoppable

[fabwithfibro]

YAS!

[mysteryninja46]

that’s why you find your passion to fuel you.

[mychroniclesofchronicpain]

Passions unfortunately don’t out perform chronic fatigue or illnesses

[mysteryninja46]

Even if life is a constant struggle, there is always going to be a better tomorrow, even if day by day life may seem otherwise.Having the passion within you will never hurt that walk towards tomorrow

[autistiqueer-deactivated2018121]

Imagine having a passion for something a chronic illness prevents you from doing. Where engaging in the activity causes you incredible physical pain, and leaves you bedridden the next day. That passion can become soul crushing.

Your comments are ableist. Not all of us have a better tomorrow. Some of us have debilitating pain that will never resolve, some of us have chronic illnesses that are progressive and will make us continually sicker, and some of us have terminal illnesses. Keeping a good outlook is not always as simple as hoping for a “better tomorrow”, often, it means researching how your illness will affect you in the future, and preparing for the problems it will cause.

[mysteryninja46]

alright so allow to set the record straight while doing so peacefully.I have worked with many individuals suffering from both chronic and terminal illnesses on hospitals in which I learned a great deal of strength from human beings far stronger than myself.While I do understand that there are circumstances in life that bring strife.A good friend of mine who passed away from terminal cancer once told me “This pain is unbearable believe me, but I would feel an even greater pain were the world not able to realize my talents.” My own mother who suffers from a chronic pain has shown me ten times over that even throughout her pain she pushes through knowing that while she struggles to move, the tenacious woman has told me countless times that not pushing forward to tomorrow would cause her to feel a pain far greater than she feels now.I assure you that I definitely do NOT believe the only disability is a bad attitude.As it is, I’ve been fighting for years to tackle greedy companies who make it difficult to afford medication for many of the PTSD clients I’ve worked with.My biggest point is that we are all here for a reason, and for that very selling point we must discover why and show the world our greatness.

[mychroniclesofchronicpain]

While I can respect your opinion on how you have view your life and as an observer of some individuals with chronic illnesses I still disagree that every person with a chronic illness ( of the millions of different types of illnesses) needs or benefits from having the outlook you are trying to force upon them.

All to often my energy and ability to move outweighs any activity, event, or enjoyment I may want to do or have.

I enjoy knitting that doesn’t change my limitations. If my joints are swollen I’m not knitting no matter how much I wish I could.

[mysteryninja46]

I’m not at any point trying to force anything on anyone, I’m only trying to make the point that I’ve been inspired by those much stronger than myself and have pushed me to drive that passion.

[mychroniclesofchronicpain]

.....On to other people fighting battles you know nothing about

[wnq-anonymous]

I forgive people by forgetting about them.

Anonymous  (via wnq-anonymous)

[mychroniclesofchronicpain]

If my energy levels matched my ambitions I’d be unstoppable

[fabwithfibro]

YAS!

[mysteryninja46]

that’s why you find your passion to fuel you.

[mychroniclesofchronicpain]

Passions unfortunately don’t out perform chronic fatigue or illnesses

[mysteryninja46]

Even if life is a constant struggle, there is always going to be a better tomorrow, even if day by day life may seem otherwise.Having the passion within you will never hurt that walk towards tomorrow

[autistiqueer-deactivated2018121]

Imagine having a passion for something a chronic illness prevents you from doing. Where engaging in the activity causes you incredible physical pain, and leaves you bedridden the next day. That passion can become soul crushing.

Your comments are ableist. Not all of us have a better tomorrow. Some of us have debilitating pain that will never resolve, some of us have chronic illnesses that are progressive and will make us continually sicker, and some of us have terminal illnesses. Keeping a good outlook is not always as simple as hoping for a “better tomorrow”, often, it means researching how your illness will affect you in the future, and preparing for the problems it will cause.

[mysteryninja46]

alright so allow to set the record straight while doing so peacefully.I have worked with many individuals suffering from both chronic and terminal illnesses on hospitals in which I learned a great deal of strength from human beings far stronger than myself.While I do understand that there are circumstances in life that bring strife.A good friend of mine who passed away from terminal cancer once told me “This pain is unbearable believe me, but I would feel an even greater pain were the world not able to realize my talents.” My own mother who suffers from a chronic pain has shown me ten times over that even throughout her pain she pushes through knowing that while she struggles to move, the tenacious woman has told me countless times that not pushing forward to tomorrow would cause her to feel a pain far greater than she feels now.I assure you that I definitely do NOT believe the only disability is a bad attitude.As it is, I’ve been fighting for years to tackle greedy companies who make it difficult to afford medication for many of the PTSD clients I’ve worked with.My biggest point is that we are all here for a reason, and for that very selling point we must discover why and show the world our greatness.

[mychroniclesofchronicpain]

While I can respect your opinion on how you have view your life and as an observer of some individuals with chronic illnesses I still disagree that every person with a chronic illness ( of the millions of different types of illnesses) needs or benefits from having the outlook you are trying to force upon them.

All to often my energy and ability to move outweighs any activity, event, or enjoyment I may want to do or have.

I enjoy knitting that doesn't change my limitations. If my joints are swollen I'm not knitting no matter how much I wish I could.

[mychroniclesofchronicpain]

The rollercoaster

I was never one to enjoy amusement park rides, they just weren't my thing but none the less here I find myself riding this rollercoaster called chronic illness. This ride it long, hard and scary and for most has no exit. On days like today that started at 430am feeling okay knitting while watching monsters university, then sore and crashed out back in bed way before noon, and now after a three hour nap hugging my pillow just hoping that the pain medicine will work fast and for a while all before lunch, I really wish I knew where the eject button on this rollercoaster was.

[mychroniclesofchronicpain]

If my energy levels matched my ambitions I’d be unstoppable

[fabwithfibro]

YAS!

[mysteryninja46]

that’s why you find your passion to fuel you.

[mychroniclesofchronicpain]

Passions unfortunately don’t out perform chronic fatigue or illnesses

[mysteryninja46]

Even if life is a constant struggle, there is always going to be a better tomorrow, even if day by day life may seem otherwise.Having the passion within you will never hurt that walk towards tomorrow

[autistiqueer-deactivated2018121]

Imagine having a passion for something a chronic illness prevents you from doing. Where engaging in the activity causes you incredible physical pain, and leaves you bedridden the next day. That passion can become soul crushing.

Your comments are ableist. Not all of us have a better tomorrow. Some of us have debilitating pain that will never resolve, some of us have chronic illnesses that are progressive and will make us continually sicker, and some of us have terminal illnesses. Keeping a good outlook is not always as simple as hoping for a “better tomorrow”, often, it means researching how your illness will affect you in the future, and preparing for the problems it will cause.

[mychroniclesofchronicpain]

I couldn't of said it better myself, thank you Autistiqueer!

Not all bodies are created equal not all minds are the same for those of us battling a chronic illness that often becomes our "passion" for lack of a better word.

We all would love to have a passion for something other than keeping our heads above water but for to many chronically ill people that's all they can manage.

Being told we need to just have a passion is a slap to the face when we are already fighting 24/7 and doing our best to survive. I really hope this is never a part of life you have to experience.

[skellydun]

anytime my friends do anything:

[solar-anomaly]

@sydneyporder

[syney-deactivated20170717]

💓💓💓

[mychroniclesofchronicpain]

Always wonderful to be encouraging

[mychroniclesofchronicpain]

If my energy levels matched my ambitions I’d be unstoppable

[fabwithfibro]

YAS!

[mysteryninja46]

that’s why you find your passion to fuel you.

[mychroniclesofchronicpain]

Passions unfortunately don't out perform chronic fatigue or illnesses

[mychroniclesofchronicpain]

Waking up before my alarm

It's not from pain so that's a good thing but I haven't decided if being awake in general before I wanted to be is a good thing :/