My Lyme Journey

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[mylyme-blog]

So Lyme is my "Mount Everest".

[mylyme-blog]

[thicketofthorns]

[mylyme-blog]

Oh Yeah! I'll beat this shit!

[inspirationsforlife-blog]

[mylyme-blog]

Of course they are! Hope for that is the only thing that keeps me strong and makes me wanna fight this shit!

[mylyme-blog]

I'll try but it won't be easy. I am overwhelmed by all that's happening and what's going to happen.

[mylyme-blog]

source

[mylyme-blog]

The diagnosis

My story begins probably 7-8 yrs ago when first symptoms occured - joint pains and headaches. But it all changed on November 2011 when I noticed that there's something wrong with my left side of the body and I experienced couple other, new, symptoms: muscle twitches, tic, dizzines, blurred vision. I went to neurologist. She said that it looks serious and I have to immediately go to the hospital to rule out MS. I had lumbar punction. I sufferd from massive headache and back pain after that for over a week, no drugs helped me. They tested my CSF for MS and Lyme. The test for MS came back negative. The result for Lyme came back after month I left the hospital. Before my doctor got it she kept telling me it's all in my head, I'm to nervous, I'm hypochondriac. I was very angry at her because I knew that there is something wrong with me and it keeps getting worse.

And there I was on 24th of December, taking my dog for a walk. Before I got into my apartment I looked into my mailbox. There was an envelope from laboratory.

My heart started beating very fast.

I opened it.

And there it was.

My result.

Positive for Lyme!

I started crying.

It was the best Christmas present I ever got!

I contacted other doctor, who treats Lyme patients with ILADS protocol. She ordered tests for co-infections. And again, waiting for the results. They came back after three weeks. I got FOUR positive results: Bartonella, Yersinia, Mycoplasma pneumoniae, Chlamydia pneumoniae.

No wonder I feel so crappy all the time.

Went back to Lyme-doctor with all the results. She said that there is a long way ahead of me, it'll be hard and painfull. But I'll feel better. She also said, that she's sorry, she can't take back all the pain that I felt before. What a great woman...

[mylyme-blog]

My symptoms

It's a very long list but maybe it'll help someone:

night sweats

HEMIPARESIS

FATIGUE

insomnia

sore throat

joint and musle pain

muscle twitches

HEADACHES

stomachaches

chestpain

parasthesia

blurred vision

ringing in ears

dizzines

COGNITIVE IMPARIMENT (memory loss, lack of concentration, spelling problems, missing words, difficulties in understanding text and long dialogues)

depression, panic attacks

tics

these are only some of my symptoms

[mylyme-blog]

Promise Yourself To be so strong that nothing can disturb your peace of mind. To talk health, happiness, and prosperity to every person you meet. To make all your friends feel that there is something in them To look at the sunny side of everything and make your optimism come true. To think only the best, to work only for the best, and to expect only the best. To be just as enthusiastic about the success of others as you are about your own. To forget the mistakes of the past and press on to the greater achievements of the future. To wear a cheerful countenance at all times and give every living creature you meet a smile. To give so much time to the improvement of yourself that you have no time to criticize others. To be too large for worry, too noble for anger, too strong for fear, and too happy to permit the presence of trouble. To think well of yourself and to proclaim this fact to the world, not in loud words but great deeds. To live in faith that the whole world is on your side so long as you are true to the best that is in you.

Christian D. Larson

[mylyme-blog]

The beginning...

Hello everyone!

I decided for this ... "journal" as a part of my treatment which starts in 2 weeks (around 25th of June). It will "serve" as my psychoteraphy :)

It took me some time to find out whats going on with me, a lot of doctors, many times I've heard that "it's all in my head". But I guess I don't have to tell you that. All Lymies have to go through that process. I wish it was different...

I will have ILADS treatment. It will last 2-3 years because I am probably infected for 7-8 yrs.

That's all for now.

All Best for All of You!

<3

Aleksandra