alexis

moderately/severely disabled girl

[nessmagic]

like and follow from @ponygirlalexis

🦄

before you follow:

i borrow words a lot because words are very hard for my brain to make.

my writing on the internet isn’t indicative of my real life communication.

complex concepts confuse me; this includes my interests. please use plain/simple language with me.

i can’t use neopronouns; i can only use she/he/they and i struggle with it (i still try).

i don’t know how to use tone tags. i don’t care if you use them with me.

long posts are hard for me to read; i might miss things because of that. sometimes my boyfriend helps me understand them. my definition of long post might be different than yours.

i don’t word everything perfectly because my disability. i’m social, but interacting with people irl and online is hard.

sometimes i struggle to respond to asks/dms, but i read everything.

conditions

please don’t use me as a self diagnosis source or ask me about your own disability/labels. i write about my own experiences. i am in the middle of medium and high support needs.

i have mid/low functioning autism, mild NS intellectual disability, adhd, physical disabilities, brain damage. i have aphasia and apraxia. i don’t want to share the full extent of my disability online.

i am semispeaking and an aac user. i use proloquo2go on my ipad and phone. i experience losing words.

tags

i try to use a tag system but i forget to use it sometimes

#nessposting for my posts

#long post for posts are long in my definition; this isn’t me trying to be mean

#borrowing words for posts i can relate to. i can remove my reblog if requested

#angry bitter thoughts for my angry feelings

[nessmagic]

insurance denied CT scan even though my symptoms keep getting worse. alexis; in such a unique and bad situation. just feel worthless all the time. heart is broken in a way .

don’t think i have illness that lead to death. but am so desperately worried for my future. alexis doesn’t know how it’s going to go. because symptoms are getting worse and and. i’m scared what it means for the future.

alexis; bang her head on the wall a lot a lot. black out. try to kill self honestly. multiple times throughout life. and pretty much always had a concussion as a kid because abuse. never see doctor never look at brain.

and now alexis is scared because things keep getting more confusing. feeling like she can’t keep it together. just want to be told it will be okay. alexis is so scared

[nessmagic]

dunno how to live

[eptck]

you have to be kinder to people with memory issues.

you have to be kinder to people who are slow processors.

you have to be kinder to people who don't understand your jokes.

you have to be kinder to people who forget important dates.

you have to be kinder to people with cognitive decline.

you have to be kinder to people who were always this way, too.

you have to be kind. you have to be kind.

[nessmagic]

feels terrifying and heavy. living with disability and not being able to get help. alexis doesnt have any way of making money. she cant get all the help she needs. just another statistic screwed over by the system

[five-thousand-loaves-of-bread]

uhhhm not to poke hornet nest but like. (scratches head) ok gentlest way possible

there many disabilities (n other experiences n identities in general) only one system member have/be when you aka the whole system aka “body” no have [edit: ? idk what this mess of paragraph be but mean to say there many disabilities (n other experiences n identities in general) that only the whole system aka “body” can have n not only individual system members n not others]

your system member can’t be autistic unless whole system body brain everyone be autistic - symptom may present different for various system member but entire system be autistic

would even go on say again yes different system member can have different experiences n needs… it rly uncomfortable as higher support need person talk to someone who call self HSN n later find out they mean they as system member in system that… not HSN

same with nonverbal - yes can have system members who do not speak but it rly uncomfortable as nonverbal person talk to someone who call self nonverbal too n only later find out they mean they as system member in a verbal system

esp there are high support need systems there are nonverbal systems

your system member not intellectually disabled / have intellectual disability unless whole system be it have it

your system member not “have” facial difference or limb difference unless you bodily have facial or limb difference… having it in headspace not same as living w it external

n to echo my Deaf friends, your system member not be Deaf unless whole system Deaf - can absolutely have system member who not able hear but Deaf be very specific meaning

(in similar vein your system member not “Asian” “Black” etc unless you actually be Asian or Black or etc aka whole system “bodily” etc however wanna call it)

like idk how better way say it (or not want hornet nest explode onto face) but like. some things need be Bodily. there whole meaning n specific experiences n reasons n basis n often culture behind words

well aware some system / members see self as fully separate whole peoples within system n may even complete amnesia every time but still following that logic n term n perspective it be very different from i guess living full time in body minds with that specific thing or systems who live in body minds w that specific thing.

not open to any more “syscourse” convo this not be invitation

[nessmagic]

if you talk about intellectual disability, it’s important to make your post accessible to those with intellectual disability.

[tumblr]

Reblogs in a chain now get their own notes

The reblog chain is one of the things that makes Tumblr unlike anywhere else. All the notes on reblogs are attributed to the original post, no matter which branch people actually liked or reblogged. We want to keep encouraging conversations, and give contributors the recognition they deserve. 

Soon, you'll be able to like, reblog, or reply to any part of a reblog chain, and that note will go to that reblog's author. Each reblog will have its own counts, instead of one aggregated number from every version of the post. And yes, you’ll be able to like multiple posts in one chain.

If a reblog doesn't add anything, the love flows up to the last person in the chain who did. Your post doesn't lose notes just because people spread it quietly.

Past notes will stay on the original post — we're only changing what happens from here on out. Retroactively re-attributing all of them would be... a lot.

This is just the beginning. More changes are coming as we keep building this out – stay tuned!

[headspace-hotel]

This is horrible I can't see the number of notes on my posts at all without adding up everything in the chain

Cursed cursed cursed evil evil evil

[jv]

This is a terrible idea. Horrible.

EXTREMELY BAD HOLY FUCK.

This would kill the entire point of the reblog chain. Staff, please, don't do this. It will transform the reblog chain in just plain twitter quotes.

[jv]

Seriously, this is a tumblr-killer feature. This breaks the most fundamental way tumblr is different from any other social network. This makes tumblr just another blueskytwitterthreads. Or worse: An unfederated mastodon clone.

Please, stop this. Please, don't roll this out.

[jv]

Please, mutuals, post about this, comment and reblog the original post (while you still can without making it your own quote-post). I don't know if staff is looking or if the feedback would matter, but seriously, this is a terrible change that would kill tumblr as we know it. Please, don't roll it out.

[jv]

look, I can endure any kind of UI changes that are supposed to help tumblr-rookies to understand how this works. They may be a nuisance, but that's ok, we have x-kit or we can get used to buttons being here or there.

But this. This changes the data architecture. This changes the SINGLE THING that makes tumblr the "... yes and" website. This KILLS THE COLLABORATIVE POSTING THAT MAKES THIS SITE DIFFERENT FROM ALL THE OTHER MEDIA PLATFORMS.

Please, don't do this. Please, don't ship this.

[dakt37]

Tumblr has explicitly said in the past that they do not look at comments on their updates posts. You have to PUT IN A SUPPORT TICKET AND SELECT FEEDBACK FROM THE DROPDOWN

Tumblr Help Center

Find support resources and documentation for Tumblr

[kawaiiunii]

reminder that learning difficulty or learning disabillity ( talking about dyslexia dysgraphia ectect adjacent . i know in uk intellectual disabillity can be call learning disabillity! still seen SEPERATE to dyslexia and other adjacent conditions or unspecified difficulties ) is NOT in any way same or similar to intellectual disabillity which is pretty significant disabillity no matter which severity have, diagnosed based on very specific iq test and functioning test, and generally affect someone in many areas of life functioning abillity learn ect to varying severity.

please dont say relate to me or get struggle have just cus you have learning difficulty/disabillity or similar. is not same. and am not trying be mean but u dont get experience got and no you dont relate is different roots and really different presentation of struggle. is more uncomfortable than anything else for me honestly and annoying. am no against people who actually relate but more often than not its not case at all and tbh just end up upset my side cus am like oh yay someone get but then i ask question what they mean/experience and like . their stuff supa supa unrelated.

[intersexcat-tboy]

Getting really tired of seeing all these accs with "brain damage" in the bio or url as someone who's. Literally had brain damage. It's not some haha funny joke brain worms destroyed my train of thought. I wouldn't be bothered by it if it weren't used to mean "I post cringy takes online that people hate me for" but none of these people actually talk about having survived brain damage. It's just used as the punchline for jokes

[shepandem]

By what method did you gain access to your AAC?

Paid for it myself

Friend/family bought it for me

Insurance bought it for me

I created my own low tech boards

Other

Voting ended onMar 15

[batcatyurimoved]

it really does feel like a lot of autistic people on tumblr are looking for any possible opportunity to make fun of other autistic people & especially autistic people worse off than them

[batcatyurimoved]

condescending reading comprehension questions & making fun of people who only read fanfiction and watch cartoons & making fun of picky eaters & "you people can't do anything" & "you can't even ask for ketchup" & "guys gullible is written on the ceiling" and i see these posts reblogged by people i otherwise consider good and kind people and people i consider my friends and it makes it extremely scary to talk about my own experiences for fear of being made fun of by people who should like... understand

[batcatyurimoved]

like yeah you guys respect me and treat me like the adult that i am NOW but will you continue to do so if i say that my parents or girlfriend have to order food for me in restaurants. if i tell you that i have ARFID so severe my safe food list is less than twenty items long (and that i have no interest in exposure therapy to change that). if i ask for clarification when you make a joke you think should be obvious. if i tell you i only read comics & watch tv marketed for children. if i can't cook. if i play pokemon games over & over. if i can't work. if i can't clean. if i can't live alone. how autistic am i allowed to be before my friends start treating me differently. how autistic am i allowed to be before i become the target of ridicule

[batcatyurimoved]

& not to mention that being capable of hiding those things is a privilege not every autistic person has

[wr-y]

Weekend wandering

Our lives before a brain injury, we planned and looked forward to weekend activities. Some of us would plan grilling or barbecuing, going to a concert, going on a weekend getaway, or spending time at the lake. We may also have planned to do yard work, clean the garage, helping a neighbor or friend, or just hanging out at home. All of these events seem natural and are done with ease. We do these things with out hesitation, preplanning, or thinking how we will feel after the event. Now living with the TBI, these options do not happen like flipping a light switch. We have to consider fatigue, ability to handle the task, or the possibility of becoming overwhelmed.

Participating in weekend events requires forming a connection, friendship, or seeking out opportunities for helping neighbors. TBI survivors do not have a recipe book on how to find these individuals and most of us second guess our limitations. The apprehension of engaging is uncomfortable and the ideas of making small talk is difficult. We do not have a step by step guide to manage social situations and we don’t practice the art of connecting with others. We stay stuck, isolated, and withdraw from society.

[this-is-ableism]

Making brain damage jokes. It’s not funny in any way and now when I tell people I have brain damage they think i’m joking.

this is ableism.

[sadiests]

if i see another person comment on how “autism is only a disability because of our current society” im going to start throwing tomatoes bc ASD will always be a disability because it’s disabling

fuck you

ASD is a disability and saying “it’s only because of society” diminishes how disabling it can be

this post was made by a verbal autistic person with low-mid support needs who is fighting the NHS to even be referred for a diagnosis because they keep lying, dismissing, and ignoring me

[autistic-robo-deactivated202605]

Saw really wrong statement so need get out.

Low functioning autistics do exist. High functioning autistics exist too. It an identify, and for some a diagnosis. You might not like term, or want used on self, but to say no one is functioning label is wrong.

Know others who call self low functioning n know some who use high functioning. Know some who use severe autism and special needs. Know some who hate those and only use autism/ support labels. That’s fine! It’s how identify self.

No the world shouldn’t determine worth based off how much can do. But some of us have accepted not able do much for society. Accepted fact can’t function how society wants. That ok.

Please don’t say (low/ high) functioning autistics don’t exist. Because then forget n block out so many of use that do exist

[nessmagic]

autistics with intellectual disability and cognitive disabilities are always going to be apart of the autism community

you can’t kick us out or make us leave. we are here to stay