Sky

Talkin' bout chronic illness | You're worth it 💗

[neurosky]

! I will not allow homophobia, transphobia, racism, ableism, or any other discriminatory behavior here !

! I use any pronouns !

[neurosky]

Hello guys!!! It's been a while and I've been pretty quiet on this blog, so I wanted to give an update on what's been going on.

PANS and Lyme disease haven't been bothering me too much these past few months! Which is AMAZING. I'm back on immunotherapy after insurance/money issues, so that's helped a lot. Getting my wheelchair was also a massive help in saving my knees and getting around without massive pain, so thank you all so much again <3

Unfortunately I can't say the same for my mental health. I've been navigating a CPTSD diagnosis for almost 2 years now, but I'm still learning about it every day and it's still very up and down. A lot of the time, I frankly don't have the mental energy to keep up with this blog. BUT!!! I've been seeing a new therapist that specializes in CPTSD and it's been helping a TON, so don't worry!! I feel like I'm getting back on track to being somewhat mentally stable lol.

I'm also still focusing more on political activism than chronic illness advocacy (though they do overlap quite a lot), so I've been using more energy there. That won't change until whatever the fuck is happening in the U.S. changes. Politics probably will be mentioned here often!

Anyway, long paragraphs aside, I'm still kicking :)

[lifeafterpsychiatry]

It's always "stop harming yourself or we'll have to lock you up!!!" and never "what do you need to change to want to harm yourself less and how can we help you make some of these changes?" and that's why we're not getting anywhere

[quinnbites]

Posting a mutual aid request. I am severely disabled (suspected pots, maybe me/cfs or long covid, among other probabilities that need to be tested for/ruled out) and facing threats of homelessness. It is specifically because I am disabled/unable to work unfortunately, because my girlfriend has tried her best to cover our rent in it's entirety despite me being so sick. Shares/likes/comments heavily appreciated. I also have art commissions open if you'd prefer to do that (check pinned post). Please ignore my deadname, sigh.

Donate to Help Aubrey Find a Safe Home and Medical Support, organized by Aubrey Allen

My name is Aubrey Allen. I am 22 years old and the past two years I have… Aubrey Allen needs your support for Help Aubrey Find a Safe Home a

[gentleaffirmations]

Even if you were a difficult child, you didn't deserve to be hurt.

[gentleaffirmations]

I hope this message reaches all the neurodiverse and disabled people who were made to feel like their abuse was justified because they had "behaviors".

While this message is true for every child, you are who I had in mind when I wrote it.

[neurosky]

Anyone have any tips for dealing with nausea? I may have asked this question before, but I can't find it 😭

As a chronically ill emetophobic, I am NOT having a fun time

[neurosky]

I have a tic that makes me scrape my heel against the floor when I walk, and sometimes it trips me up so I have to do a little hop to avoid tripping. I'm straight up galloping around my college campus rn </3

[neurosky]

Intrusive thoughts don't bother me much anymore because I've named them XxDarkLord666xX so I can make fun of them

[neurosky]

Rewarding myself for trying a new food by making a safe food I've eaten every day for the past year. #AutismLife

[neurosky]

pros of being able to audio record lectures: better studying! better memory! more notes!

cons of being able to audio record lectures: choked on my water and now it's immortalized in audio

[neurosky]

I can't believe I forgot to give this update, life's been chaotic...

I GOT MY WHEELCHAIR!!!!

Thank you SO SO SO much to everyone who shared or donated to my fundraiser, I wish I could express how grateful I am <3 <3

(I was in my PJs and hadn't brushed my hair (thanks chronic illness), but I was too excited to not take a photo)

[huskbateman]

Something that really effs me up is how a large amount of society's "undesirable" adjectives are traits you can acquire due to disability.

Unemployed. Lives with their parents. Provides little to no economic value. Physically weak. NEET. Social outcast. Burden on others. Useless. Out of shape. Needs special care and attention. Over-sensitive. Medication-reliant.

[pinkantihistamine]

YOUR body might be a temple, MINE is a saw trap.

[feldfrog]

[tic-loud-tic-proud]

[image: a twitter exchange between NPC Shaheem @/marquisecut_ and Benny Feldman @/Feldfrog.

Feldfrog's original post reads:

Yo, Tourette's can be context dependent. You can yell certain slurs by seeing certain people, but it's not a release of inhibitions like alcohol, it's more like taboo word association. Like you can see a couple and go "He's cheating on you." It's not a true belief.

A response from NPC Shaheem reads:

how does one gain context to link black people to the slur? Quickly !

Feldfrog replies:

It's just by having the connection mentally. I have had the N word as a Tourette's tic. And I do not mean it and would not say it otherwise.

NPC Shaheem replies:

... why would you have that connection mentally? where did you gain the knowledge or know how to make that connection in your mind? where and how did you gain access to a linguistic tool of oppression...?

Feldfrog replies:

Are you trying to imply that I willed myself to learn the N word out of sheer racism

/end description]

[neurosky]

Guess who's gotten sick THREE TIMES since the beginning of 2026!

[sandersstudies]

“They’re just looking for attention.”

Oh, a human being is seeking a social response? Human being, the social animal wired to make and track social connection? A human desires the vital blood that permitted their species to survive for millennia? The human being who was born completely helpless and primed in every way by nature to seek attention and help from their community?

Wow that’s crazy. How embarrassing. Humiliating even. Should we isolate them from community? Should we call Wire Mother?

[littlepaperhugs]

i am very proud of you for waking up today. you are very brave. existing can be hard sometimes and that is okay. i am proud of you even if all you did today was exist. i am proud of you for existing.