Hello Internet Friends.
Rather a serious post for my goofy blog. I know I don’t have to justify my absence to anyone, but I want to put this out there. My husband, who appears in the bio of my blog, in my icon, and in many of my most popular posts, is currently in the hospital.
We have spent about sixteen scary hours between two hospitals today, and his doctors have concluded he has a lemon-sized tumor in his brain and are planning to operate this Friday. We will not have more information until then but are trying to remain optimistic.
My queue is still full and you may see sporadic posting from me in the next few days, but expect a halt on message replies and asks for the time being.
Much love to my internetters.
Hey guys, that was August 7th. A few weeks later we found out it’s cancer.
It’s October 11th. I have not posted about it until now. There are still people in our real life who we have to tell.
We’re cheerful. We’re in love. We’re also very scared, but his care team has been beyond excellent and we are now in contact with professionals at a university medical center a couple cities away.
This is my husband who so many people have loved just via my silly posts about him, and I promise if you could meet him in person you’d love him even more.
Just continue to keep us in your thoughts and prayers. My queue is still full and I still have things to say sometimes.
It’s November 27th. Husband is in radiation and chemotherapy until Christmas Eve. He’s having some fatigue and hair loss but otherwise trucking along. I will update again after the holiday season.
I continue to be so grateful for everybody thinking of us and also happy that I’ve had the chance to share a tiny bit of knowledge about brain cancers, which are relatively rare and therefore aren’t usually privy to the awareness campaigns that find research for more common cancers, like Breast Cancer.
It’s December 23rd. Today is husband’s LAST DAY of radiation! He continues oral medication and monitoring into the new year, but his most recent MRI looks GOOD and a more specialized MRI next month will give us more info. Thank you all again for your support and curiosity 💖
It’s January 20th. Husband starts a new round of chemotherapy soon but he had another MRI today and there has been no new growth during or after his radiation. He’s not looking forward to the side effects of his new medication but it’s better than more surgery. Love you guys!
Hey guys. It’s August again.
Today my family and friends are throwing a “cranniversary” to celebrate the anniversary of my husband’s (first) craniotomy and a year of battling cancer. I hope to add some pictures later today.
I’ve had so many kind people in my inbox asking for an update and while I don’t always have the bandwidth to reply I want you all to know he’s out here fighting the good fight! He’s experienced complications of infection, regrowth, and blood clots that unfortunately are risks of cancer and its treatment, but he is currently in “good” health minus the side effects of chemotherapy.
His tumor is unique and his case has been shared with the NIH as well as many of the top brain oncologists in the US, but so far his three surgeries, six hospital stays, chemotherapy, and radiation have kept the cancer at bay and he has a chance to be declared in remission in the next six months. His treatment team is considered one of the best in the nation.
I have also had the opportunity to meet a lot of people whose lives and families have been impacted by brain cancer, including people who have passed, people who are still fighting alongside my husband, and people who have been in remission for years or decades. I’ve also learned a lot about cancer, medicine, disability, and the brain from my own experiences and their shared ones.
Thank you for your kindness, internetters, here’s to another year fighting!
August 2024 — August 2025
Hello my lovely friends. Welcome to 2026. Thank you for coming so far.
My husband has been off chemotherapy and other cancer treatments for two months, and there is currently no sign of his tumor returning (significant because between surgeries and without treatment, the tumor returned the its original size in two months).
He is still recovering from a long period of treatment which leaves the body fatigued, and from the damage to his brain, which luckily is minor and only resulted in minor effect to memory and some small isolated tremors.
We are continuing to follow up with his oncologist — his brain will be heavily monitored for the rest of his life, and he will remain on anti-seizure and anti-clot medication long-term as well, as those were risks that surfaced during treatment. But he is mostly back to his normal life, working full-time and GMing TTRPGs.
Thank you to everyone who chose kindness a hundred times over the past year. Here’s a picture of us imitating penguins.
