I don’t want to survive off the generosity of strangers for the rest of my life I want a functioning social safety net for disabled people

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@painfordays
I don’t want to survive off the generosity of strangers for the rest of my life I want a functioning social safety net for disabled people
when you treat being disabled primarily as an identity over being a class then you get this sort of misunderstanding that happens when disabled people disagree with each other. because the disabled identity is supposed to give credence to their opinions; how "true" their opinion is becomes irrevocably linked to how legitimate their experiences are as a disabled person, and thus their validity as a disabled individual. so dismissing their viewpoint on a disability issue - maybe because they have only based it on their own experiences, or are talking about a disability they don't experience, or for any other reason - is seen as if you are saying that "you're not a real disabled person actually." so you get people angrily replying by listing out every difficulty and grievance they have ever faced in a bid to prove that their experiences are legitimate enough to qualify them as being disabled. this unfortunately misses the point - you can be disabled and still be wrong about disability or other disabled people - and instead comes across as some sort of suffering contest. which, in of itself, is gauche, but which also created the unspoken expectation that every disabled person who doesn't detail their struggles in intimate detail are somehow lying or not experiencing any such troubles. which is simply not true. disabled people on the whole are already fighting to keep their privacy intact from invasive questions and rude, entitled strangers and it doesn't do anything good to contribute to eroding that privacy
this pride month, keep the disabled queer people in mind who can't celebrate pride the 'regular way' aka by going to parades and lots of events. keep the homebound, bedbound, and other disabled queers who can't go in mind. those people who see everyone else party and are unable to attend. text them, wish them a happy pride, visit them and celebrate in a way that works for them. it's already hard not to be able to go to all of these events, it's even harder to be left behind because of it.
There is so much casual ableism towards people with intellectual-cognitive disabilities. I was listening to a podcast I listen to religiously (and is a very very leftist podcast) and they hit me with the "you'll understand this unless you are Three Years Old." And it was something I didn't understand. And this podcast (that I love!) does this quite frequently. The hosts would never purposely make fun of someone for their disability- but they say things like "no one is that stupid" or similar quite frequently. And as someone who is that stupid- it kinda fucking sucks.
out of all kinds of people, even among disabled people , we are among some of the most vulnerable largely because the idea of us existing in and participating in society like a person is completely unfathomable to almost EVERYONE . like u said , even people who are leftist strongly in every single other way .
if you need full time care i love you. if you need part time care i love you. if it’s not safe for you to be unsupervised i love you. if it’s not safe for you to cook i love you. if you can’t dress yourself i love you. if you can’t toilet without help i love you. if you have uncontrollable behaviours unless someone is looking after you i love you. if someone else has to maintain your medical devices i love you. if you rely on informal or unpaid care from family or friends i love you. if you rely on formal care from professionals i love you. if you live in a group home, institution, or supported living i love you. if you’re embarrassed to admit you have carers i love you. if you talk about your carers with pride i love you.
if you need care i love you.
trying to get disability benefits is less like applying for aid and more like being put on trial for a crime you didn't commit
they are not reviewing your case to understand how you are disabled. they are investigating you to prove or disprove the assumption that you are lying about being disabled. you are guilty until proven innocent.
If you ever have an issue that you want to complain about or seek help for on the internet you will be "helpfully" bombarded with random pieces of US legislation no matter how explicitly and clearly you state which country you live in.
Hey u/croatianwholivesincroatia, I'm pretty sure what they're doing is illegal under the Americans with Disabilities Act??
i don't post my art often but i'd like to change that so,, here's a collage i made about my on going experience with chronic pain
supermarkets should have benches
everywhere should have benches
btw abled people hanging out with severely and/or visibly physically disabled people is not charity or sacrifice or impressive or anything like that. its normal fucking friendship dude. its normal to be friends with people who are different than you !! like i would fucking hope your circle isnt all people exactly like you.
it's not 'awh soooo inspirational and kind' to hang out with disabled people. in fact, some of you ableds are lucky if any crip decides to hang out with *you*
mad about being chronically ill so I baked a cake about it
happy holidays to all the bedbound people, whether it’s your first year spending the holidays in bed or your tenth, whether you’re in pain or having an easier day, whether people come to visit you in bed or not, whether you’re feeling up or down, or angry or alienated. there are people out there just like you and people who understand.
i hate it when people say things that exclude the disabled and then say "i wasnt talking about disabled people" like yeah you never are that's the issue. you never think about disabled people
hey fun fact, disabled people with bad relationships with their parents often don't get to leave those relationships.
when you are reliant on your parents for care, the amount you can do to stop them from treating you like shit, yelling at you for asking them for help etc. is very minimal.
even if you have never had a good relationship with them, if they are extremely abusive, in this world where disabled people are left to fend for themselves in fucked situations, we often don't get to leave the relationships that harm us and many of the community die because of that.
we don't get to leave our abusers because we rely on them for care and they hold that above us.
chronic fatigue will have u thinking things like i miss washing and chopping vegetables
Kinda annoying how it's always called "disability benefits" when it's at best the bare minimum