This charm conjures a magical guardian

GIRL|22Y| YOUTUBE| SERIES| MOVIES| WELCOME

[trevorknappjones]

The narcolepsy medication that keeps me going. 

[softshirringsound]

Counting with brain fog

“1…2…3…5…12… wait, why am I counting?? Oh yeah, okay, 8…9…13…15…”

[disabilityuserboxes]

This user has narcolepsy

[newhologram]

If someone tells you they have an illness that requires them to rest a lot because they have very limited energy reserves and will suffer hugely and become very sick if they push themselves and what comes out of your mouth is, “I wish I could stay in bed all day!!! You’re so lucky!” then you… just… what?

Why would you want to be stuck in bed most of the day in horrible unending pain that causes vomiting, insomnia, depression, fatigue, weakness, and many other complications???? Does that sound fun to you?

Also you are probably quite lazy if that’s what you want. Look, I know the value of some good chillaxing downtime. I am all about taking breaks, decompressing, destressing. I think every once in awhile everyone, spoonie or not, needs “do nothing” days. Everyone has to chill sometime.

But I don’t want to be in bed all day. I have things to do and I am a very hard-working and driven person who grabs life by the horns. If you wish you were sick so you could have an “excuse” to not do anything all day, then Idunno what, dude. I bet my left tit you would fall apart after enduring one day of what I’m stuck with for the rest of my life.

Don’t say dumb stuff like that, please. You may have meant well but I’m not “lucky” to be so sick and have to work multiple jobs for tiny min. wage paychecks that mostly go straight to medical expenses. Why would that ever be considered a pleasant thing?

I make the most of it because I have no choice but to keep moving forward and because I am ambitious and mostly crazy, just absolutely bananas, and sometimes I push myself too hard. Probably harder than you ever have in your life. My body is my friend that takes me where I need to go in life and I must take care of it. It’s hard work, especially emotionally, to be alive every day feeling this way.

Spoonies are strong people. Badasses. Tougher than you. We are not lucky to get to be “lazy” in bed. We are just doing our very best.

[extramadness]

Sometimes I’m terrified of my heart; of it’s constant hunger for whatever it is it wants. The way it stops and starts.

Edgar Allan Poe (via extramadness)

[ijustdonfuckincareaboutyou]

[skinsukdaily]

[blogsnotvlogs-blog]

CFS/ME

It’s like a phone, you want it to charge at night. But when you look in the morning you only have 10% battery. And with the 10% you have to survive the day, so you’ll shut down some apps that is what it feels like, you have to live with 10% so you’ll shut down ‘apps’ like talking, brightness, listening, .. just to stay awake at least a few hours

[nihilistbees]

♡ ugh- they’re adorable ♡

[patronuscharmagainstdemento-blog]

Brendon being funny

[extramadness]

More quotes here

[niagara-flaws]

I hope your stomach drops when you remember me. I hope whenever someone calls you by your full name, that only I ever called you, you shut your eyes trying to get my face out of your head. I hope when you drive past our favorite spot at night you can’t help but hear my laugh. I hope you wish it was me when you find yourself sleeping with some random girl. I hope you think of me often, and it stings every time.

The sting of missing me. (via niagara-flaws)

[wilted-scenes]

[peppermintsdicks]

*sees one non-green leaf on the ground*

[hippyelfchick]

The toughest thing to explain to people is that weird place where chronic fatigue and brain fog intersect; where you’re so far gone that physical and mental energy are both being drawn from the same well, and the well is dry. When you’ve been on your feet and your muscles are screaming they can’t do anymore, and someone asks you a question and it’s more than you can muster to even open your mouth and make a sound. When critical thinking is the same as running a marathon and you can’t remember what you’re doing so you walk into a wall. It all just blends together until your brain and your body both feel like useless mush.

[shayalonnie-deactivated20210610]

When you want to do things but fatigue hits hard out of nowhere.

[patronuscharmagainstdemento-blog]

After being up for two hours

Me: Well, that's it for the day. Goodnight.