Over a year and so much has gone on in that year.
Had spinal surgery to remove a tumor in my spinal canal last July (when I last posted).
We got all the tumor, it was benign (thank God) and I woke up (always a fear when they put me out).
I picked a renowned Boston hospital for this surgery. Neurosurgery warranted it in my mind. I felt more comfortable in a Boston hospital as opposed to my local hospital for this one.
This was a big surgery and there was a lot at stake.
The tumor was pretty big. It took up 85% of my spinal canal and was compressing my spinal cord before the surgery. They had to move the cord out of the way to get at all the tumor and something tweaked in the process.
My worst fears slapped me right in the face when I woke up.
I couldn’t feel my right leg. It was there when I went to sleep, I swear.
The hospital stay was a freaking nightmare. My inscision opened up not once, but twice. They re-stitches me up in the bed. Two different days. 17 stitches. Loads of fun.
My two to three day stay turned in to a week and they did not want me to go home. They wanted me to go to a rehab.
I’m a stubborn bitch though and I win that battle.
I had to learn to walk all over again. I used a walker for about 3 months after the surgery. I’ve been in physical therapy, twice a week, since then.
I ended up with drop foot out of the whole thing. Some of the feeling has come back in my legs (yeah, both of them but the left one is minor) and some of it hasn’t.
My son and daughter in law had to pick me up and bring me to and from work for months. I couldn’t drive. It’s tough putting your foot on the brake pedal and not being able to tell how much of your foot is on the pedal. The muscles that keep your ankle stable were so weak that my foot felt like it would slide right off the pedal. They brought me to work, to appointments and in any errands I needed to do. My daughter and her husband picked me up and took me to doctor appointments and physical therapy appointments.
It’s been a wild ride for sure.
I’ve refused to stand still through all of this. Refused to have to wear a brace and I’ve refused to accept that this is as good as it’s going to get.
I’m walking without a walker. I’m getting closer and closer to walking normal. I’m still a ways away but at least I’m not walking like Frankenstein any more. I’m able to pull my foot up past neutral now and my toe rarely catches on anything any more. I’m driving myself everywhere on my own and I am back to taking care of all my errands myself. I’m also back to working out in the gym with my trainers.
I’ve fought for every single inch that I’ve gained back and I’m not done fighting yet.
I’m not sure I’ll ever get that foot to a normal 12 - 15 degrees positive but I’m at a positive 2 now and started at negative 40. I’m certainly not going to stop trying to get further until progression stops.
I sat at a water park little over a year ago watching my granddaughters play. We knew the tumor was there. We didn’t know if it was malignant or benign. I watched them with tears rolling down my face. I wanted more time. I wanted to see them grow up, graduate, get married...live their lives. I wanted to continue to love them and spend time with them.
I got my chance for more time. It’ll not go to waste.