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Xuebing Du
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official daine visual archive

@theartofmadeline
will byers stan first human second

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tannertan36
Game of Thrones Daily
occasionally subtle
Fai_Ryy

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Stranger Things

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@rice-krispie-kin
you got this, bb
Shop, Patreon, Books, Mailing List *•. ✧˖°`
me speaking softly to my clackety skeleton: Can’t You Just Calm Down A Bit
haha yeah, i pump IRON. around my bloodstream. very badly. i think i might be anemic actually, ,
valid response
beep beep sometimes when you have been in survival mode for a long time the parts of you dedicated to Wanting Things atrophy and you forget how to envision a future that feels rewarding because you are busy with the business of staying alive, and it can seem like your life must be pointless because you can’t imagine any long term goals. sometimes even when you leave survival mode you can’t remember how to Want Things. that doesn’t mean you need to give up on having a good and fulfilling life, it just means that Wanting Things is a muscle you need to gradually strengthen. the part of you that has dreams and aspirations is still there, it just fell asleep, but if you wiggle it enough it can and will regain feeling. it’s okay to start small
"I'm sorry, but the joint you are attempting to connect to is currently unavailable. Please hang up, and try again later."
Me: "Oww! Fuck! My wrist!"
Then: "Oh no, what did you do?"
Me: "???"
Then: "How did you hurt it? You're just sitting there."
Me: "I'm sorry I don't understand the question. Do? I'm supposed to DO things to get pain???"
you know you have HEDS when you dislocate ur thumb by just pulling ur duvet covers xD
It’s not often that you get to explain to people that you dislocated your finger by squeezing something too hard.
Unless you have EDS, in which case it’s a Tuesday.
DIAGNOSIS
On the 8th of April, after 15 years of being symptomatic; of being constantly turned away by doctors not believing the extent of my problems, I got a diagnosis.
After doctors telling me I was "sensitive," "just a bit hypermobile," or god forbid "looking for attention." I got a diagnosis.
I have Hypermobile Ehlers Danlos Syndrome.
Thank you for coming to my Ted Talk.
On the twelfth day of Christmas, my chronic illness gave to me,
twelve confused doctors,
eleven subluxed joints,
ten unhealthy neck clicks,
nine food intolerances,
eight new medications,
seven dizzy moments,
six sudden bruises,
FIVE MIIIIIIGRAINES!
four brand new symtoms,
three popping fingers,
two cracking elbows,
and a funky dislocating left kneeeeeeeee!
Your definition of a flare-up doesn’t have to be the same as someone else
You might flare every day for a month and then have a month of a break
That doesn’t make your illness less valid
We’re all just trying to get through each day, don’t waste time comparing yourself to others.
oh? this seductive dance of mine? i call it “my joints are in terrible pain please oh god someone help me”.
shout out to anyone having a flareup right now. i’m sorry you’re hurting. you’re stronger than you feel right now. go easy on yourself today. you deserve it.
Stop using “it has been worse before” to invalidate your struggles. If you are struggling with a particular symptom more than usual it is okay to find it difficult to bear. There are many other variables affecting how your brain and body feel. It can still suck, even if it was worse before.