Ro and Co @ro-and-co - Tumblr Blog

A little Intro!

My name is Ro and I'm the host of our system. In addition to DID we also have a bunch of chronic illnesses. We deal with Fibromyalgia, Gastroparesis, POTS, Post Concussion Syndrome, Tourettes, ME/CFS, and suspected EDS. It's definitely a lot to handle but we do our best!

Our special interest is frogs and we have a few pet frogs of different kinds. We have passion for politics and we are going to school for social work (class of '28?). I personally don't do much for fun but I'm always a big fan of YouTube documentaries and Critical Role. Some other interests I have are Wicca, The Locked Tomb series, and sewing! Tag along with us and our chaos!

Also if you know us in real life no you don't lol

Making an advanced directive and end of live plans at 20 years old hurts so bad. I'm fighting so hard to get proper treatment but I'm always one that wants to be prepared. I hope I won't have to use anything in it for a long time but I can feel my body failing me. I'm just so scared

#chronic illness #disability #dysmotility #spoonie #me/cfs

First outpatient LR infusion to hopefully help keep me out of the hospital! The combo of POTS and Gastroparesis is hell on earth. I feel like shit afterwards but hopefully it does it's job! I'll be getting them once a week and as needed so long as my veins cooperate.

#chronic illness #gastroparesis #invisible illness #pots #dysmotility #infusion #I hate IVs #wheelchair users

Living with progressive medical malnitrition is so scary. I know there's nothing I can do except keep trying meds and doing my best to eat what I can. I'm just hoping something works before permanent issues take effect. I'm tired of the ER and waiting.

#chronic illness #gastroparesis #malnutrition #disability #dysmotility #spoonie #invisible illness #delayed gastric emptying

The good news is we're no long bradycardic, huzza!

The bad news is we're tachycardic...

(and vice versa, again...)

#chronic illness #gastroparesis #pots #disability #me/cfs #spoonie #invisible illness

yrfemmehusband

If you're reading about a medical condition and it says "predominantly affects white (women/men/children) I need you to know that's simply because black people/people of color with said condition are underdiagnosed, misdiagnosed, not listened to, or die before accessing diagnosis and treatment due to medical racism

Praise be to our Lord and Savior Zofran 🙏

#gastroparesis #zofran #pots #chronic illness

chronically-izzzzle

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Ro and Co