Untitled

[rosiehuff]

Happy Birthday to my cute niece Elise! She turned 9 years old today and it was so fun! We had a family party today and she got a ton of fun things and we ate her favorite things and played games! I got her a Ukulele and as you can tell she was so excited about it. When I got mine a few weeks ago, Elise wanted to play it every time she was here! I think it was love at first sight! She sings super well so that will be fun too! I love that she loves music the way I love music! I just love her so much and I am so thankful for her. She is a really really bright spot in my life and that is super helpful when things can get dark with my pain and health. Even on bad days when I have to stay in bed. Elise is amazing and I am so happy to watch you grow up and that I am a part of it! You're so smart, beautiful, kind and hilarious! I love you so much and wish I could see you every day all day! 💜💜💜 (at Murray, Utah)

[rosiehuff]

Congratulations to my brother Joel and his bran spankin’ new wife Nicole! I am so so so excited to have a new sister! She is amazing and I am so happy that Joel put a ring on it when he did! She already feels like family and has to me for a long time. I feel like we might have been friends if I met her before Joel even did. That’s how much I like her! They are a perfect match! Haha! That’s funny because it’s true and because they met on Match.com! They are one of the lucky ones! Nicole is Greek and so it was a Big Fat Greek Wedding for sure! Greek dancing and everything! They are amazing! I want to learn all those dances! But Mitz and I of coarse had to make a wedding worm suit for Joel so he could do the worm at his wedding and not get his fancy clothes all gross! It was a fun surprise! But seriously I loved meeting all the fun people from Nicole’s life through all the many showers and the wedding. Her parents and siblings especially! They are incredible people. They are all so great and made me feel so welcome and cared about! I hope we see each other again soon! I have never been to a more amazing wedding! I loved it so much! I had so much fun with everyone! No offense but Mormon weddings are lame, ending at what 8pm, this went on all night and I loved every minute! Even the parts that hurt a lot! When I get married I’m doing it that way with a huge party after! But seriously Joel I’m so glad you moved back to Utah so you can be a bigger part of my life and vice versa! I love you both so much and I’m so grateful to have been a part of your wedding and also to have been asked to walk down the aisle and then be able to do it on the day! Congrats you two! You both looked amazing! Have fun on your honeymoon and start working on getting us some of those little Greek babies everyone keeps taking about!😉#HUFFANAKIS #wedding #bestweddingever #newsisterinlaw #morelikejustsister #favoritebrother #bigfatgreekwedding #greekbabies #weddingwormsuit (at The Falls Event Center)

[rosiehuff]

P!NK CONCERT BABY! I was going to go to her concert right when I got sick in 2012 and couldn’t because of how sick I was! I’m not feeling awesome today! I probably wouldn’t have left my house today but...PINK! But the fact that I was able fo just reminds me how much better I am. Still not where I want to be but I’m getting there! Yay! Ps like my blue wig? Thought this would be a good time! #pink #beautifultraumatour #bluehairdontcare #RA #wheelchairseatsrock (at Vivint Smart Home Arena)

[rosiehuff]

New wig folks! I bought like 6 new wigs, both colorful and normal looking, and here is the first one I’m starting to show off! Who know it was so fun to have your hair fall out? I can change my hair like I can change my clothes! It’s the best! I may never go back! Lol now I just need to feel better and better so I can wear them out and about! #baldlife #wiglife #wigs #newwig #longandblonde #chemo #fun #moretocome #RA#ilovewigs (at Murray, Utah)

[rosiehuff]

I know it’s been a long time since my birthday, but I’m gonna do a birthday post anyway! We celebrated like a week late but I also just haven’t felt good and I have been super busy when I do feel good. But we went to a pirate themed escape room and dinner! It was so great to get out! I’m so grateful to everyone who came and celebrated with me! My actual birthday was pretty rough and a huge reminder that I am not in control and I’m not doing as well as I would like to be doing. But you all made this night so fun! Love you! I don’t know if I could do this without this support system! Plus my nieces and nephew always make my day brighter! I love them so much! I wish @emettpartyof5 lived closer! Thank you! #supportsystem #family #escaperoom #26 #birthdaygirl #party #RA #wig #wheelchair #love #grateful #lucky

[rosiehuff]

This trip to St. George for the marathon and then a trip for my mom and I to Vegas to see Celine Dion had to happen! I gave my mom tickets to see Celine Dion like 2 plus years ago for her birthday or Christmas or something and because of me being sick and scheduling crap we never made it happen. Then we got tickets before the bad flair hit hard and I thought it wasn't gonna happen again...but things started looking up a couple days ago and we got er done! I am just so glad I was able to get out of the house and wear normal clothes and see a great show with my amazing mama! The drive was ROUGH, but shove 8-10 pillows around me in the car to make the ride less painful and git er done! I know things have been super hard the past couple weeks for you too Mitz and I'm glad we were able to make it happen. It was so fun to have a bonding night! Great show, amazing talent, she's a little annoying 😜, but I'm so glad we made it work! She even dedicated the show to the victims.💜 I'm so lucky to have a mom who will take me places and help me so much. Love you! I don't know what I would do without you! Hope you loved your very BELATED present and had a good time! Love love love you! Things are looking up! Things are going to get better very soon! I just know it! We just gotta hang in there! I'm the luckiest daughter ever. #celinedion #vegas #crappypics #belatedpresent #bestmomever #bonding #RA #musiclovers #hope #luckiestgirl #family #hope #flair #upandup (at Caesars Palace)

[rosiehuff]

Ok so here's a #healthupdate! I was doing really well until a few weeks ago & then I went into a crazy #RA flair & they think the change in the weather was a huge part in that too. My legs haven't been this bad in years & it was freaking me out. I have been in crazy amounts of pain & not been able to do anything on my own like walk or even move my legs some days. But the good news is I am starting to see some improvement again. My whole body has been bad, but I did steroid injections deep into my knee joints (hence the iodine knees) and I think that really helped the inflammation in them so I'm super excited about that. Im doing new meds for pain management that I think are starting to finally help too & I'm at a place in the RA treatment where some of the meds still need about 2 months to start working to see if they will work on me & then we will know where to go from there with how I respond. So for the time being I just have to hang in there and manage my pain as best as possible. Unfortunately it's taken over my moms life too since I can't move without her or someone else. But because I have some great doctors on board & finally a diagnosis, things seem to be just a little easier than before. Having doctors who will help you & understand what's going on with you & reassure you that this is normal & there's a cause & things actually will get better & they will help me really has made such a difference. So much better than when they would throw their hands up and say I don't know...it'll probably get better with time? Hopefully? But because of these awesome docs & my fam, I was able to make the drive to St. George for the marathon this weekend. (My crazy dad & bro😊) I didn't actually make it to the race, but I'm out of the house & that is HUGE progress for me this month. The drive was ROUGH but I'm so glad I decided to come last minute! I'm finally seeing improvement again over the last few days & Im so excited about that & so grateful! I hope I just keep doing better & better & we won't ever have to be back in this place again. #flair #ice #orangeknees #iodine #procedure #steroidinjections #upandup #pain #tendonitis #sick #sicknotweak #family #hope (at Murray, Utah)

[rosiehuff]

Went to the Lady Antebellum Concert last night! Brett young and Kelsea Ballerini opened and it was so good! I felt super crappy and didn't think I would make it at all, but I did. Unfortunately we had to leave early cause I was in so much pain! So glad I got to go though! We had such good seats in wheelchair seating! It was awesome! Thanks for taking me mama and shell!#ladyantebellum #kelseaballerini #brettyoung #usana #youlookgoodtour #family #concert #RA #country #wheelchair #grateful (at USANA Amphitheatre)

[rosiehuff]

In a lot of pain from going to the Gaga concert and all the travel I had to do to get there! That means some r&r for me today and some amazing acupuncture! If you have pain and you haven't done this. You're missing out! Love it! #pain #r&r #acupuncture #ear #needles #recover #amazing #bestiveeverlately #recommended (at Downtown Salt Lake City)

[rosiehuff]

Paws up! I'm so happy I was able to go! This is probably the concert I felt the worse pain wise at, so I wished I felt better, but nothing can ruin a gaga concert! Not possible. Thanks for everything you did to make this night happen for me mom and dad! #joanneworldtour #perfectillusionjacket #pawsup #vegas #jacket #joanne #ladygaga #pain #grateful #gagajacket (at T-Mobile Arena)

[rosiehuff]

#joanneworldtour #vegas (at T-Mobile Arena)

[rosiehuff]

Going to the Lady Gaga concert in Vegas today and I decided to make this jacket for the concert, also these silver shorts (but not as short as hers lol), and I made them out of these DI beauties! I love a good DI project! Oh and I'm also wearing boots like that! Can't wait to start getting ready! Thanks again Mitz for helping me so much and indulging my crazy need to make fun gaga outfits! Best mom ever #ladygaga #joanneworldtour #vegas #joannetouroutfit #costume #perfectillusionjacket #perfectillusion #bestmomever #DIproject (at Las Vegas, Nevada)

[rosiehuff]

I was actually able to get ready for my cousins wedding reception! 😜#weddinglook #familyfun #vacay #selfie #igotreadyforonce #sicknotweak (at Baldwin, Wisconsin)

[rosiehuff]

Mississippi River! So pretty and so fun with these cute people! It was a quick but super fun trip! #mississippiriver #minnesota #familyfun #vacay #lovethem #almostsister #gorgeous #famdamily #bridge #view (at Mill Ruins Park)

[rosiehuff]

Mall of America!!! With some of the family here for my cousins wedding reception later tonight! #mallofamerica #familyfun #rollercoaster #wheelchairday #lovewedding (at Mall of America)

[rosiehuff]

One of my favorite places ever! I'm always sad to leave! Such a fun relaxing holiday weekend!💜💜💜#huffhideaway #cabin #mountains #family #nature #happyplace #gorgeous (at Oakley, Utah)

[rosiehuff]

Back at the cabin for the holiday weekend for a little R&R! This is the most amazing place! 💜💜💜#mountains #huffhideaway #nature #family #happy24th #iloveithere (at Oakley, Utah)