So, I thought my first post should be a bit of an introduction, so you know a smidgen about me, my life and what delights you can expect if you decide to stick around! Here we go.....so, I'm Hannah Rose, you can call me Hannah, pleasure to meet you, I'm 39 (I'm clinging on to these last few months of being in my 30s for dear life right now) I live on the south coast of England with my hubster Jack , my 14 year old daughter, 6 year old son and two doggos MJ a 2 year old cavalier king Charles spaniel, and Nova a 13 year old Romanian shepherd, yes I am a crazy dog mama, my pooches are very much family.
My life is different and probably if you were a fly on one of my walls could seem a little strange to you, why? I'm happy you asked, I'm a 'Spoonie' for those who have no idea what I mean, I'm someone who lives with chronic illness, and in my case not just one, I happen to be greedy; I have 6 yes I said SIX diagnosis, which are, in no particular order, Crohns disease, arthritis, fibromyalgia, ankylosing spondylitis, mast cell activation disorder and psoriasis I will go into detail about each of these in later posts, I'm differently abled and use a powerchair, I have a feeding tube for nutrition and a portacath for IV medications, in short I'm in a bit of a pickle 🥴 and my day to day consists of large amounts of medications, pain, trying anything to ease the pain, hospital appointments, hospital admissions, weird symptoms from each illness, fatigue, more medications, not knowing how I'll be feeling one hour to the next and more medications, all while attempting to live some kind of 'normal' life with my family. The funny thing about these illnesses is on a rare good day, if you saw me without my wheelchair or feed connected, I probably wouldn't look sick to you, and sometimes I quite like that, other times not so much, more on that in future posts, the point is, you can never tell just from looking at someone what they have going on. What else...... Well my hubster is my carer and I literally don't know what I would do without him, again there will be a post all about that, and it WILL be mushy just to let you know, he is my twin flame without a doubt and my life changed so much when I met him, he brought ME back. I'm an artist, I love painting and mixed media but a lot of times I'll use my iPad and procreate, as painting in bed on bad pain days can be a little errrrrrr messy (whoops) and lessons have been learned. I also make items with resin, and create South American style beaded jewellery (my heritage is South American) which I CAN do from bed HOORAY! I was making so much that I decided to open a little Etsy shop called Salem Rose Design and share my creations, it's still new but I love it, feel free to check it out....or not, whatevs tickles your fancy. Another facet to me is I'm an eclectic witch and empath, I don't strictly follow one specific 'craft' or ' path' I do what feels right to me, which can be a pick n mix mash up of different traditional and more modern crafts, and that's how I like it. I'm quite a spiritual soul, I love crystals and do tarot and numerology, I'm also currently doing a reiki course in my own time and at my own pace which I will follow with my reiki masters diploma.
So yeah, these are basic snippets of my roller coaster life which can seem like a tragic comedy sketch at times, it's hard going, but can also be wonderful, in going through what I have, I don't take life for granted and I try to be as positive as I can be, whilst also being open and honest about my experiences. And that is what this is all about, honesty and AWARENESS even if one other person reads this or any of my future posts and thinks,ok this is similar to what I feel or go through, and then doesn't feel so alone, then I'm happy. On that note, I'll finish rambling for now, if anyone has any questions or wants a general chat, I'm here and look forward to meeting you!
Stay safe and big love.
Hannah Rose. 💜💜