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[istayhighoffyourmemory]

My dude is 15 months post liver transplant today. Every month, every day still a miracle. ☝️🏼 . . . # livertransplant #organtransplant #posttransplant #donatelife #beanorgandonor #alpha1antitrypsindeficiency #a1ad #awareness

[maureen-doolittle]

anyone out there with a lung disability got any tips to avoid going fucking stir-crazy while avoiding being outside? this extended bad air quality is jumping on my last extremely frayed nerve.

[istayhighoffyourmemory]

A cake for @ackley.kiowa 2 year transplant anniversary. Didn't turn out too bad considering I haven't done a from scratch cake in years and I've never done 4 layers😄 . . . #transplantanniversary #livertransplantwife #livertransplant #organtransplant #liverdisease #awareness #a1ad #alpha1antitrypsindeficiency #donatelife #givelife

[federicomazzoliarchitetto]

2015_A1AD_MarcellaDiGiorgio_FedericoMazzoli_SilvioVinella

store concept nuovi negozi NIYO&CO

[istayhighoffyourmemory]

Today is a day where I feel like a failure at being anyone's support, let alone my husband's, who has just gone thru a liver transplant, and wish I had someone here to support me. But then again I am also over stimulated and exhausted so the thought of anybody walking into this room and demanding my attention makes me want to blast off into outer space. Nothing is wrong, just normal post surgery stuff with pain and swelling getting in the way of completing PT clearance and getting out of here. I wish they wouldn't have given us so much false hope that it would be this weekend bc I really doubt it. And then I realize it's stupid to even be upset and let down bc the average stay is 2 weeks and today is only 1 week. I'm so tired tho today I could cry. I could cry anyway. See husband in pain? Wanna cry. See something emotional? Wanna cry. Get frustrated? Wanna cry. Hungry? Cry. Annoyed? Cry. I'm not sad. I'm just overwhelmed. It's all very weird, to be so happy and so everything else. And all the pain and trauma from the past few months just don't get erased overnight. This is just an experience I can't explain right now. We've been sitting here talking to each other trying to sort some of it out and we're both just like....cry. Ha.

[istayhighoffyourmemory]

If you have followed my blog for a while you probably have heard me talk about my husband's medical condition and the fact that was recently listed for a liver transplant. Last Saturday at 3am he received his second chance at life. He's been doing fantastic and hopefully he gets discharged at the beginning of this coming week (he's totally being an overachiever hehe). We could not be more thrilled and have literally received the best Christmas gift anyone could ever ask for. That said there are a few financial concerns we have with transportation and lodging after he is discharged. The link explains in detail but long story short, there are lots of doctor visits post transplant and we are not local to the area of our transplant hospital. Any donations go directly to relieving that burden of those costs post transplant. If you can help out, even a dollar, that would be awesome. And if not its cool because I don't expect you too but feel free to reblog and share. All my love, Raychel

[gphi516]

Perfectly content this morning. And our LIFESAVER for the wedding!! #a1ad

[federicomazzoliarchitetto]

..prime realizzazioni..uffici Filippetti Falconara ieri e oggi_A1AD