#posttransplant

[nephronlove]

Another uti

I had a catheter for my nephrectomy. Pretty sure it gave me a uti, although symptoms didn't start til a week later. Took 3 antibiotics...first one was resistant. 2nd one made my chest tight. 3rd one was a 10 day course of augmentin. The antibiotics have me an infection...so that annoyed the fuck out of me. I've been feeling meh since Friday and guess what. Today I went to urgent care because I'm pretty sure I have another fuckin uti! Same one I'm guessing. Now I'm on bactrim. So now I gotta wait to hear from my team. They're prob gonna wanna wash out my bladder. More anesthesia. Hooray.

[istayhighoffyourmemory]

My dude is 15 months post liver transplant today. Every month, every day still a miracle. ☝️🏼 . . . # livertransplant #organtransplant #posttransplant #donatelife #beanorgandonor #alpha1antitrypsindeficiency #a1ad #awareness

[tiamimi]

Had such a great time @moicinsidescoop with @karen_kelly75 8 years #posttransplant #bilaterallungtransplant (at MUSEUM OF ICE CREAM) https://www.instagram.com/p/CU0zninlBzh/?utm_medium=tumblr

[yeshealthplease]

Scientists launch a pre-emptive strike on deadly post-transplant infection

Scientists launch a pre-emptive strike on deadly post-transplant infection

Cytomegalovirus. Credit: CDC/Dr. Edwin P. Ewing, Jr. (PHIL #958), 1982. A potential new treatment to protect immunosuppressed patients from human cytomegalovirus (HCMV) has been discovered by scientists at the University of Cambridge. Their study shows that certain epigenetic inhibitors expose and help to destroy dormant HCMV infections, which often reactivate to cause serious illness and death…

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[yeshealthplease]

Post-transplant mortality among veterans enrolled in the VA and Medicare

Post-transplant mortality among veterans enrolled in the VA and Medicare

This image shows a cross section of a kidney. Credit: Holly Fischer/Wikipedia In a study of kidney transplant recipients dually enrolled in the Veterans Health Administration (VA) and Medicare, use of the VA for all post-transplant care was linked with a lower risk of death than care provided outside the VA through Medicare or use of both the VA and non-VA care. The study will appear in an…

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[aubs90]

It’s #nationaldoctorsday so I had to give a shout out to my two favorite doctors. • Doc Howard has been my CF doc for over 10 years. He has seen my at my worst and helped me through those times. I’m a big fan of Dan, and from what I hear he’s a big fan of me ☺️💜 • Dr Gray is my transplant doc, as well as my post transplant CF doc. Alice and I hit it off from the very beginning and I knew she had to be MY doctor. We have the same dry sense of humor. She’s seen my best days, and some of the super bad. During transplant recovery, and at clinic, I perk up every time I hear the click-clack of her heels walking down the hall. I love to think I’m one of her favorites too, after all, she did recommend me to speak at the CFF event she spearheads every year. ☺️💚 • I’m so lucky to have had such great doctors in my life. Too many to thank, but these two are near and dear to my heart. #cysticfibrosis #doublelungtransplant #pretransplant #posttransplant #duke

[cjhippos]

Carpe diem

Now that I have a new life, dialysis free and healthier than before. I’ve been trying to live a more yoga lifestyle, and including more adventures into my everyday life. About 2.5 months post kidney transplant, I actually started to feel better! I have more energy. I have more interest in doing activities. With the 3 months medical leave Joel and I have been taking advantage of the free time off. 

We had planned to go to Maryland and New York. Initially, for Joel’s friend’s wedding. And then talked about making it a vacation, especially now that I don’t have to schedule dialysis appointments. But after the biopsy, we decided it wouldn’t be safe to travel so far away at the moment. I was totally bummed. The east coast would have been such an exciting adventure. 

So we’ve been having local adventures. 

We went to Salvation Mountain. 

We went to one of the Desertx exhibits in Palm Springs. 

I’ve also been cooking, cleaning, and doing laundry. Sounds less than exciting but I’ve enjoyed it so far. I honestly never used to have time or energy to do those things pre-transplant. It’s pretty nice to be able to do those things. 

We just came back from a weekend in the Bay Area. I’ll post more about these adventures and SF later. I just wanted to put it out there that there really is life after post kidney transplant. 

[cjhippos]

Three Days Left of Steroid Therapy

I was in the hospital for 5 days for steroid therapy. Steroid therapy was basically an infusion of high dose prednisone for 4 days, and a tapered I.V. push of prednisone on the 5th day. 

Nothing really happened during that stay. I just relaxed, got the meds, saw the doctors once a day. I seriously watched a lot of tv. I did some treadmill on the 4th day to pass the time. Elaine and my parents came to visit. 

All my labs came out great. Doctors did not seem worried at all. I did go home with more tapering of prednisone, in pill form. I am currently taking 10mg a day until my follow-up biopsy, which is this Thursday at 9am. 

My dad picked me up on the 5th day at around 1pm.