#barttersyndrome

[anadama]

Day 1

[val31213]

As parents, we happy that our baby boys’ kidney check-up.. weight & height, potassium & sodium chloride, urine & blood.. is all in good status🥰 even though he still needs to take his kidney medicine, along with all his other meds n vitamins daily, his health is looking good 🙏thank you God🙏#gratefulfordoctorsandnursesandmeds💚 #barttersyndrome #mywascalwabbit #isaacam #val31213 💜 #valsfiles13 https://www.instagram.com/p/B7S1V7KHXVl/?igshid=q6nhsh0utfe6

[val31213]

Isaac’s kidney check-up went well✅ #barttersyndrome #mywascalwabbit #isaacam #gratefulfordoctorsandnursesandmeds💚 #val31213 💜 #valsfiles13 https://www.instagram.com/p/B7SwMVWnoX9/?igshid=1kc2t9pxxh96g

[val31213]

[01.08.20 - wednesday] I got a call while I was at work, from the lab, saying that “they” “under” drew blood. Basically, they need more blood, which is irritating & a very inconvenience having to do it all over again when they could’ve done right the first time..ughh!! I wonder if I’m the only one this happens to because this happened before. 🤦🏻‍♀️ #blooddraw #needmoreblood #bloodtest #barttersyndrome #mywascalwabbit #mybraveisaac #val31213 💜 #valsfiles8 https://www.instagram.com/p/B7IG0zTHYXL/?igshid=1u32py2j94fvn

[val31213]

[09.09.19] Monday. Check-up at kidney doctor. Isaac did really well. And all levels of potassium & calcium looks good.🥰 #gratefulfordoctorsandnursesandmeds💚 #mybraveisaac #barttersyndrome #isaac #val31213 🦋 #valsfiles252 https://www.instagram.com/p/B2vMiP2nj6X/?igshid=8k94hnoxt6af

[val31213]

[09.06.19] Friday. Blood draw. Isaac patiently gets his #blooddraw again for his 3 month check-up. #mywascalwabbit #isaac #barttersyndrome #mybraveisaac #val31213 🦋 #valsfiles249 (at Oahu, Hawaii) https://www.instagram.com/p/B2j0BiWnsDz/?igshid=aj994ctlpymi

[val31213]

[09.06.19] Friday. After school. It’s that time again.💉 3 months blood draw. Weird he seems happy, but no matter, I’m very grateful for that beautiful smile. #mywascalwabbit #isaac #isaacam #lookatthatsmile #barttersyndrome #mybraveisaac #val31213 🦋 #valsfiles249 (at Kapiolani Medical Center for Women & Children)
https://www.instagram.com/p/B2jzOJunsvm/?igshid=136remcjbidsc

[val31213]

[06.03.19] [late post] While waiting for Isaac’s blood results, Isaac traced Humpty Dumpty on a paper towel. Got a second height reading (to make sure numbers were correct) it was correct, he only grew a few inches since last visit🙁 and Nurse Carol mentioned she was leaving the office in August; so this would be the last time we see her for his appointments😕 so Isaac decided to give her his traces drawing😏 #gratefulfordoctorsandnursesandmeds💚 #mybraveisaac #barttersyndrome #val31213 🦋 #valsfiles153 https://www.instagram.com/p/ByYBZuEn13H/?igshid=1d8b0miblod0b