may is ehlers danlos awareness month, and it’s my first one since being diagnosed with hEDS!
there are 13 types of EDS, and hEDS is by far the most common subtype. it naturally gets the most attention as a result of this, so for anybody who has hEDS, use this month to shed a little light on our friends with rare and ultra rare subtypes. they could use our help!
i have immense privilege. i have doctors who know what hEDS is, and take me seriously. it may feel like a rarity to come across that as someone with hEDS, but can you imagine how rare it actually is to find doctors like that when you have a rare or ultra rare subtype?
our friends with other forms of EDS need and deserve more attention. they are not our competition, and the attention that they do get is not dismissing hEDS.